Lindsay shared her health journey. She discussed her experience of being diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), Ehlers-Danlos Syndrome (EDS), and Mast Cell Activation Syndrome (MCAS). She described first noticing symptoms in her early 30s, leading to her POTS diagnosis in 2017 after fainting during a tilt table test. Lindsay also shared her battle with breast cancer, undergoing treatment, and successfully overcoming the challenges. In 2022, she encountered a frightening episode of rapid heart rate, trembling, and other distressing symptoms, prompting her to seek help from a functional gastroenterologist. Lindsay explained her ongoing struggle with gut issues, constipation, a dairy allergy, and skin problems, and how she has found relief through dietary adjustments and medication.
Radio Show interviews, and Presentations from the LDN 2013, 2014, 2016, 2017, 2018 and 2019 Conferences
They are also on our Vimeo Channel and YouTube Channel
Cindy, a guest on the LDN radio show, shared her remarkable health journey. She described experiencing hypermobility from a very young age and enduring a multitude of health challenges, including menstrual issues, pots, and food allergies. Her difficult pregnancies and the revelation of her genetic predisposition to certain conditions shed light on the intricate genetic component of her health issues. Through her story, she emphasized the complexities of managing multiple health conditions and underscored the significance of comprehending the genetic factors at play in her health struggles.
An interview with Teresa, who has been dealing with multiple health issues, including mold and hormone problems. Teresa's symptoms were severe, and she had been struggling with them for over two years. When she was at her sickest, Teresa had histamine intolerance, gut problems, and neuroinflammation. She also experienced hot flushed red faces whenever she worked out, endometriosis-type symptoms, diarrhea, increased heart rate, weakness, and jumbled thoughts. Teresa sought help from multiple doctors but found no relief. She had to go to functional medicine and naturopathic medicine to get the help she needed. The doctors prescribed her supplements, herbs, and homeopathics, among other treatments, to improve her health. However, it took her some time to feel better despite adopting a healthy lifestyle and following protocols. She learned about how to eat properly, take care of her mitochondria, and improve her nervous system and relaxation through meditation. Teresa describes her typical day when she was at her sickest, and it is a poignant story. She would wake up feeling either nauseous or sweating and had to move her bowels frequently. Within two hours of waking up, her heart rate would increase, and she would feel weak, forcing her to sit down. Teresa had to work as an online therapist and tried to see clients despite feeling unwell. She couldn't be around intense smells, go outside, or eat without feeling sick or nauseous. Her life was limited, and she was essentially homebound. It wasn't until Teresa started taking LDN that things started to improve drastically. Her functional medicine doctor prescribed her LDN, which was initially a source of hesitation for her. However, as she saw her roommate getting better after taking LDN, Teresa decided to give it a try. LDN is a promising treatment option that has been used for various health conditions, including autoimmune diseases, chronic pain, and cancer. It works by boosting the body's natural immune response, reducing inflammation and pain. Teresa's LDN treatment was a turning point, and she started to feel better. She felt less sensitive to smells and was able to tolerate more foods. She started to gain weight, have more energy, and exercise again. It took her a while to feel better completely, but LDN was the key that unlocked her health. It is a testament to the power of functional medicine and the importance of finding the right treatment for each person's unique health condition.
In this interview, Linda has the pleasure of speaking with Kelly, a guest from the United States who shares her journey of dealing with MCAS and POTS. Kelly discusses how she first noticed that something was wrong with her body when she was a child due to severe GI symptoms, which led to her receiving her first colonoscopy at the age of ten. However, despite years of experiencing worsening symptoms, Kelly did not receive a formal diagnosis until 2019. She describes her frustration and the challenges she faced while seeking answers from various specialists, highlighting the systemic factors within the healthcare system that make it difficult for patients like herself to receive proper care. As a social worker and a patient herself, Kelly provides unique insights into how care for undiagnosed patients could be improved, emphasizing the importance of physicians believing and trusting their patients, providing them with resources, and access to care to help them find accurate diagnoses. Kelly also discusses the complexity of MCAS, a multi-system disorder that can affect various organs and the skin, making it difficult to recognize and diagnose. She shares her experience of how finding a physician who understands the condition was crucial to getting it under control. Overall, Kelly's story sheds light on the challenges of living with an undiagnosed condition and the importance of improving healthcare systems to support these patients. Kelly is taking LDN, Low Dose Naltrexone.
Nicole, from the United States, speaks about the challenges she has faced due to several complex health conditions. Ehlers-Danlos syndrome (EDS) is a genetic condition affecting connective tissue, leading to hypermobility of joints and easy injury. Mast Cell Activation Syndrome (MCAS) is a condition in which mast cells, which are part of the immune system, are overactive and cause symptoms such as hives, swelling, and abdominal pain. Postural Orthostatic Tachycardia Syndrome (POTS) is a type of dysautonomia that affects blood circulation and can cause symptoms such as lightheadedness, fainting, and rapid heart rate upon standing. Endometriosis is a condition in which the tissue that normally lines the inside of the uterus grows outside of it, leading to pain and other symptoms. Finally, Lyme Disease is a bacterial infection transmitted by ticks that can cause a range of symptoms including fever, headache, and joint pain. Despite the difficulties she has faced, Nicole remains an inspiration to others who may be struggling with similar health challenges.
Kerriann, from Canada, shares her experience of living with multiple chronic illnesses. These conditions include Lyme disease, which is known to cause a range of symptoms from fatigue to joint pain, MCAS (Mast Cell Activation Syndrome), a rare condition that causes allergic-like reactions, EDS (Ehlers-Danlos Syndrome), a genetic disorder that affects connective tissues, POTS (Postural Orthostatic Tachycardia Syndrome), a condition that affects blood flow, and Fibromyalgia, a chronic pain disorder. Despite facing these challenges, Kerriann has chosen to share her story in the hope of raising awareness and providing support to others in similar situations.
Tracy, from the United States, shares her personal experience with various medical conditions. These conditions include MCAS (Mast Cell Activation Syndrome), a condition where the mast cells in the body are triggered to release chemicals causing symptoms such as itching, flushing, and swelling; POTS (Postural Orthostatic Tachycardia Syndrome), a condition where changes in position cause an abnormally high increase in heart rate; RA (Rheumatoid Arthritis), a chronic autoimmune disease that causes inflammation and pain in joints and can lead to joint damage; Fibromyalgia, a condition characterized by widespread pain, fatigue, and tenderness in muscles and joints; and finally, a potential diagnosis of EDS (Ehlers-Danlos Syndrome), a genetic disorder that affects the connective tissues in the body and can cause joint hypermobility, skin that is easily bruised or stretched, and other symptoms.Tracy, who is from the United States, discusses her experience with several medical conditions including MCAS (Mast Cell Activation Syndrome), POTS (Postural Orthostatic Tachycardia Syndrome), RA (Rheumatoid Arthritis), Fibromyalgia, and a potential diagnosis of EDS (Ehlers-Danlos Syndrome).
Kris has generously shared her personal journey with Low Dose Naltrexone (LDN), a medication used to treat a variety of conditions, including autoimmune diseases, and MCAS, a condition where mast cells release excessive amounts of histamine and other chemicals, causing an array of symptoms such as hives, itching, and digestive problems. In her story, Kris discusses her experiences, including the challenges she faced and the treatments that worked for her. Her story may provide valuable insights and support to others who are also dealing with similar conditions.
Linda Elsegood engages in a conversation with Amy, who shares her journey with multiple health conditions, including small fiber neuropathy, mold toxicity, MCAS (mast cell activation syndrome), EDS (Ehlers-Danlos syndrome), and POTS (postural orthostatic tachycardia syndrome). Amy recalls that she has been experiencing symptoms her whole life, such as hives, reactions to medication, and odd food reactions. She describes having weird physical quirks that were dismissed as "just an Amy thing." For instance, she would feel hot in her head after eating peanuts or feel dizzy. Despite undergoing allergy testing, her results were negative, and doctors attributed her symptoms to being "sensitive." However, after contracting mono and strep in college, Amy's symptoms became more debilitating. She felt extremely tired all the time, and nothing seemed to help. She experienced GI (gastrointestinal) problems, brain fog, and heat intolerance. Her symptoms continued to worsen, and she had episodes every few months where she felt like she was dying. She would have trouble eating, and it felt like a brick was in her stomach. Despite seeking help from countless doctors, none could diagnose her condition or connect all her symptoms. Her doctors would refer her to specialists, such as gastroenterologists, allergists, and pulmonologists, but it didn't help. They would attribute her symptoms to panic attacks, stress, or other unrelated conditions. They even removed her gallbladder, but it didn't alleviate her symptoms. Amy recalls that her body kept reacting to everything, and she could only eat rice for a while. After two back-to-back pregnancies, her body could no longer tolerate certain foods. She experienced anaphylaxis, which she knew was not a panic attack, and her face swelled up, and her tongue became tingly. Her body began reacting to everything, and she now only eats six foods. In conclusion, Amy's story highlights the challenges of living with multiple health conditions and the difficulties of finding a diagnosis and proper treatment. Her experiences could help others who may be going through the same struggles. #LDN #Low Dose Naltrexone
Linda Elsegood interviewing Andrea, a patient from the United States who has been taking low dose naltrexone (LDN) to manage her health concerns. Andrea has been struggling with various conditions, including postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), long Covid, fibromyalgia, and myalgic encephalomyelitis.
Throughout the interview, Andrea delves into the details of her journey with LDN. She explains how her search for relief from long Covid ultimately led her to LDN, and how it has significantly improved her quality of life despite her many health concerns. Andrea expresses her gratitude for how LDN has been instrumental in helping her manage her symptoms and improve her overall health.
Linda and Andrea are able to discuss the benefits of LDN in managing a wide range of health issues. Their conversation provides insight into the effectiveness of LDN as a treatment option, and the importance of finding the right approach to managing complex health conditions.
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