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I'd like to introduce Amarjid from India who takes LDN for CFS/ME.
Thank you for joining me. Could you tell me when you first started to notice any symptoms?
Amarjid: I'm 72 now. I had been suffering from it since I was a small child.
Linda Elsegood: Really? Wow.
Amarjid: A long time. Yes, all my life I suffered from Chronic Fatigue Syndrome.
Linda Elsegood: And how did that impact on your life?
Amarjid: I have not been able to work since 1975. It gives me extreme tiredness and aching in almost all the muscles of the body.
Linda Elsegood: And what would you say, before you heard about LDN, what would you have scored your quality of life on a score of one to 10 and 10 being the best?
Amarjid: It's still there before LDN only have to be about 10%.
Linda Elsegood: What would you have said your quality of life was like on a scale of one to 10 before?
Amarjid: It was really bad and it still bad. Then I felt 10% better.
Linda Elsegood: What had it done to help you? How did LDN help? Has it helped with the fatigue?
Amarjid: It gives me more energy and reduces the muscle pain
Linda Elsegood: And how did you manage to get a prescription for the LDN?
Amarjid: Here It's imperative the GP. He has been describing it me. I only have guidance until next year. I don't know how to do after that.
Linda Elsegood: I might be able to help you with that. I'll tell you details at the end, and I'll send you what you need to do. What would you say to other people who are thinking of trying LDN for EME/CFS?
Amarjid: It doesn't help very much but it helped me 10%.
Linda Elsegood: When you first started, did you have to start on an Ultra-Low Dose and work your way up?
Amarjid: Yes.
Linda Elsegood: And did you notice any side effects?
Amarjid: No. Because it was a small dose. I started in 1 mg and then every month I up to and then 3 mgs 2 mgs two, and now 3,5 mg.
Linda Elsegood: Good. And how long have you been taking LDN?
Amarjid: I think two years now.
Linda Elsegood: Right. Well, that's good. Well, I hope LDN continues working for you, even if it hasn't been that spectacular. 10% is certainly better than where you were before, wasn't it?
Amarjid: Yes, indeed. Thank you very much for sharing your story with us.