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Linda Elsegood: I'd like to introduce Anne from England who takes LDN for Multiple Sclerosis. Thank you for joining me Anne.
Anne: Okay.
Linda Elsegood: Could you tell me when you first started to notice ms symptoms?
Anne: It was probably in the early eighties.
Linda Elsegood: What symptoms were you experiencing at that time?
Anne: They were pretty mild. It was restless legs in the night. That's very mild to start with and then I started to get tingling in my feet, in my hands. And the aggressively, they got worse and worse. In the beginning, I was having about one minor attack every couple of years. Then I was having one a year, and they were getting progressively more severe. And by the time I started taking LDN I was having up to two big attacks a year and losing all my ability to see colour in my left eye. Another time having double vision so I couldn't drive, I couldn't even walk on my own. I was chipping up, and I'm finding it very, very difficult. I was on crutches. It was getting very bad. They were getting worse and worse and worse.
Linda Elsegood: So at that point, if you'd had to rate it your quality of life on a score of 1 to 10, 10 being the best, what would it have been?
Anne: When I was having an attack, it was going down to like a 3.
Linda Elsegood: And how did you hear about LDN?
Anne: I had a friend who heard about LDN with ms, and she went on it. She got major remission. She sent me the information pack. I read that. I was very encouraged and then I did everything I could to get it. This is quite a procedure. Linda Elsegood: Did you manage to get your own GP to prescribe it for you?
Anne: It took me years before I could do that. I started the LDN in May. I didn't get it prescribed until about 3 years ago. I was getting it from Skips pharmacy in America for a long time. Then I found a doctor in London because I live in London. Who would prescribe it for me? Then I contacted my consultant at Neurology Hospital in Queen's square and he was very unfriendly and very rejecting. I sent him all the information pack. I sent him a lot of information, and eventually, I petted him so much that he got fed up with me and said: " Look, I have a consultant colleague." So I went to see the colleague who was really kind and recommended I would have it subscribed on the NHS. So that is a huge victory for me ever since.
Linda Elsegood: And when you first started, did you notice any introductory side effects?
Anne: No. None.
Linda Elsegood: And how long did it take before you started to notice any improvements?
Anne: I never had another attack since starting LDN. I didn't have one attack.
Linda Elsegood: Wow, and has your ms progressed?
Anne: No.
Linda Elsegood: Okay. So what symptoms do you have of ms now on a daily basis?
Anne: I have the visual nerve damage. My balance still isn't as great as it was but it is okay. I don't fall over or anything like that. But I'm not as bad balanced as I used to be. I still can't go river walking now, going from the sentences down, then toss myself. I do have some pain in my left foot but it's better. It doesn't really spoil my quality. I can't go for a good long walk, which is a shame, but that's all.
Linda Elsegood: Well, that's amazing, isn't it?
Anne: It's fantastic. I was getting so bad that the attacks were getting really tightening. I was loosing so much capacity.
Linda Elsegood: What would you say to other people who are thinking of trying out LDN and maybe are bit sceptical?
Anne: It has really worked for me, and although there's no guarantee it'll work, everybody is well worth a try.
Linda Elsegood: Thank you for sharing your experience, Anne.
Any questions or comments you may have, please Contact Us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.