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Linda Elsegood: I’d like to introduce Annemarie from England who has multiple sclerosis. Good morning Annemarie.
Annemarie: Good Morning.
Linda Elsegood: Could you tell me when you were diagnosed with MS?
Annemarie: Yes, it was 2004, when it first started. it didn't get diagnosed straight away because I felt ill, I went into a hospital, and they didn't know what was wrong with me. They took some blood samples and after I'd been there for two days I just went completely paralyzed. All I could do was open my mouth my eyes. And they just had no idea of what was wrong with me. I've never had anything like this before. So they told me that it was probably Transverse myelitis and that was like that for about a good six months.
And, you know, until my next attack came. I think it was just after Christmas and I was sent to a specialist in Queen's square, professor Thompson, and he said, Ann Marie, he said, I'm sorry, but I think we are going to have to tell you that it is MS, which was devastating because, you know, Transverse myelitis I could cope with.
But MS, it's not something that can be cured. And it's a very bad illness. Anyway he said because I had two attacks I could now go on some treatment, modifying treatment and they put me on something called Copaxone, which was at that time, not new, but not very well known, a BETA Interferon was much more known but has got terrible side effects, so I was happy to go on with the Copaxone. Uh, and after, I can't remember exactly, but after about three or four months I had another attack and another one. So that meant that the Copaxone was not stabilizing me completely.
My husband's desperately trying to research for other things which could possibly help me and came across Bob Lawrence and his all his research and got in touch with him and Bob Lauren said that he would be happy for me to try it on a very low dose of LDN. I think that's what it's called, isn't it?
Yeah. And, unfortunately, it didn't agree with me in the beginning. I was only on one milligram but he said, just press on with it. But of course, I was given so many tablets, and I didn't really know what I was doing, being honest with you. So I let it lapse for a few months, and then I got another attack, and my husband said, well, you know, let's try this LDN again. And I did and I slowly, slowly built myself up, up to about, well at the moment I’m on 4 mg and do I dare say I haven't had any attacks for about three and a half to four years after I’d been on the LDN and my life has definitely changed. I wouldn't say I'm leaping forward, but I haven't had any attacks.
And for that reason, I am slowly building myself up, and I am absolutely convinced that the LDN that's doing it or not the Copaxone and I would love to stop the Copaxone, but I'm frightened. So at the moment, I'm still carrying on with the two in conjunction. Um, and I just cannot thank Bob Lawrence more, for doing all this research because it is definitely much, much better than the injection, I'm convinced of it. So there you have it.
Linda Elsegood: What would you say to other people who were thinking of trying LDN?
Annemarie: Well, I would say persevere. It is difficult to get - your body has to get used to new medicines and new drugs and whatever. And it is difficult, but don't give up because there is definitely, definitely, a benefit from this.
I have absolutely no doubt about it. And I'm, I'm hoping that you know, the government will release it so it can be available to more people.