Claire - England: Inflammatory Breast Cancer (LDN, Low Dose Naltrexone)

I'd like you to introduce Claire from England that uses LDN for inflammatory breast cancer. Thanks for joining me, Claire.

Claire: Okay.

Linda Elsegood: Could you tell us when you first noticed that there was something wrong with you?

Claire: Yes. It was back in 2012 in March. I, um, found kind of a long sort of lump in my left breast.

Um, I didn't do anything about it for a few weeks, because I was so scared. Then I went to my doctor, she examined me, and she showed me it was fibroadenoma and said there was no need to be referred, um, and sent me back home. So I wasn't worried. And then about seven months later I noticed swelling, and the lump was a lot bigger and my breast is very red, and I knew there was something wrong. So at that point, I went back, she referred me straight away. And, um, that actual day that I went to the breast clinic, they did a biopsy that did just kind of, they said they were pretty sure it was inflammatory breast cancer. Um, so then obviously at the time I've got two children, five and seven. So like my world just, fell apart, basically. I was in shock and yeah, so probably a very difficult time as you can imagine.

Linda Elsegood: And it's horrible, isn't it?

Claire: It really is. We were in shock my husband or me you know, for looking back, I think really sharp for a good year, really. Um, but straight away, I didn't really have time to digest it because straight away they said I needed to have, uh, chemotherapy seven rounds of chemo, which I had then a mastectomy and then 15 lots of radiation.

Actually, I did have a really good response. Um, and they found, they said I was in the top 5% of, you know, there that could find that, but basically hardly any cancer at all. So that was really, really, really good. And we were all very happy. Um, uh, kind of gummed up in my life, not the same as it was before, obviously inflammatory breast cancer has 90% chances that it comes back.

So you can't exactly go back to how it was before, but I, you know, I tired, I, we sort of made the best of it. And then in October last year, 2014, I found a lump in my neck. Um, Went back to the hospital. They did a biopsy, and they found three small tumours in my neck. So obviously again that my world crashed around me.

Um, I went straight on to cut side of it which is supposed to be the wind to drug chemotherapy, but psychologically I really wasn't good. I really don't like hospitals anyway, and just the whole process. So quite depressed, very depressed at times. Um, but trying to lead a normal life for my children.

And then after the six months of cuts side, I had a scan, and it showed that the tumor, is doubled in size? Now all this time that was having to cut silo, I'd also been doing lots of alternative things that I'd read about taking lots of supplements, apricot kernels, all these kinds of things. And I've been doing a lot of research into the effects of chemo and alternative things.

And so at that point, I decided to give up on the chemotherapy. Uh, they wanted me to carry on by. I said, no, I'd like to carry on with all my alternative things, um, which I did. And I'd found out about LDN. I can't remember how I found out about LDN. Oh, it's Patricia Peat. That's it. I spoke to a charity Yes To Life, uh, and had a consultation, which they pay for with Patricia Peat who used to be an oncology nurse, but now looks into the whole, sort of a holistic approach to cancer treatment. And she mentioned LDN, but she said it was going to be probably quite difficult to get it because it's not licensed for cancer.

Luckily for me, I've got a very, very understanding doctor and I explained about it, and I gave her all the information about LDN, which she looked at and she said she was happy to prescribe it, which she did. Yeah, which I was very happy about. And from the research I've seen, I did really believe it was going to work.

And I think that's half the battle as well. Isn't it? You've got to believe something's going to work. So yeah, it didn't have chemo. And then I had a scan, I started in July on the LDN, and I had a scan in August, and the scan came back. I've got my results here, basically all three of the lymph nodes and shrunk. One from 6.3 millimetres from 7.1 millimetres to 6.3 millimetres one from 7.7 millimetres to 6.3 and near the one 7.7 to 5.8. Um, which I believe is I haven't changed anything about apart from taking the LDN. I'm absolutely convenienced it was the LDN. Um, I'm doing the scan now when I'm sort of, I never needed to have a scumbag kind of putting off a little bit, but I still do believe in it.

And I know some people, you know, they've gone into remission, so LDN, so I'm very hopeful that my next scan would show that they've continued to shrink.

Linda Elsegood:  You have to let me know. That'd be really interesting.

Yeah. That is totally amazing. So what are you taking now alongside the LDN?

Claire:  I take Graviola, which is, it's a plant that goes in his face that I'd heard about.

That meant to be very good. So I take five Graviola tablets a day. I've just started on sweet wormwood, which apparently has amazing, um, effects. I take vitamin D three, Boswellia. Let's see. These are all the things that Patricia Peat suggested, daily immune protection, aspirin, which I've just found out about. Apparently that can help to curcumin, which I think is a form of turmeric. Isn't it? 38 a day and LDN. So quite, quite a few things.

Linda Elsegood: What do you do with your diet?

Claire: No. Um, I tried a raw vegan diet, but I don't always achieve that. Especially with, I'd say 50 to 60% of my diet is all vegan. Uh, I try to do things really don't like the taste of the juices, but I made that for me. So I tried to do that. I don't, I've always been, um, a pescatarian, so I've never eaten meat for about 20 years.

So a little bit of fish occasionally and some cooked foods like say 30, 40% of the time, but only sort of vegetable-based. And I have a battery I've heard it's really, really good for cancer. So I just stay in that for literally two or three minutes and have that most days. So it was hard, to begin with because I wasn't a person that really disliked my food, but actually, you can leave them with a raw vegan diet is quite tasty things as long as you're well organized, really in advance.

So. So, yeah, I really tried to be healthy. I hardly ever have any sugar. Cause again, I've heard that should cause we did not go to pretend, so, and I don't have any dairy, so yeah, it was quite hard, to begin with, but yeah, you get used to it, and I actually paid a lot healthier, so I can't have bread or potatoes, and it's mainly vegetables that I eat, but as I said, my husband really good and we've got a raw vegan book.

And he just needs some ball crackers, and it can be tasty. It's not as bad as it sounds so. Yeah.

Linda Elsegood: But whatever you are doing,  you're doing the right thing. I mean that they were amazing results.

Claire:  were. Yeah, I was. So, yeah, as I said, I believe that the LDN would work, but, but then you never know cause anything missing just 2%.

Um, obviously that was because it was strange because the oncologist, she couldn't. So Scott had drowned it really, I was on chemo, and they doubled, I came off chemo was on LDN and they shrunk. And obviously, that isn't what you're led to believe is going to happen. Is it because they're great. So, yeah, I haven't actually heard from her. So I've got to contact her about the scan.

Linda Elsegood: Yeah. That's amazing. Thank you very much for sharing your amazing, wonderful, inspirational story with us. And I'm sure everybody wishes you every success in the future.

 

Any questions or comments you may have, email us a contact@ldnresearchtrust.org.  I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.