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Linda Elsegood: I'd like to introduce Claire from England who has Lyme disease.
Welcome, Claire. Could you tell us your story?
Claire: I've gotta start at the beginning. Um, in 1988, I got toxic fume poisoning from smouldering polyethene, which severely affected my immune function. I recovered a little bit, and then I was gradually getting increasingly ill.
I didn't know why. Um, and it turned out that, um, I was becoming allergic to all sorts of everyday things. Non-functioning immune system. Um, Yes, in 1988. And then, um, in 2003 autumn, I developed a mild form of so-called Emmy, which later was diagnosed with diabetes a lot later. And then, um, just every year later, um, Oh, the mile form left me able to still do work about half the time.
Um, but, um, Acute bronchitis on boxing day, 2005 started then, um, started back to steroids. I'd always had a bit of a sluggish style anyway, and, um, and the Lime disease got going. I never recovered. Um, I was flowed from that day on. I couldn't. I couldn't work. Couldn't do anything.
Linda Elsegood: So how old were you when all this started
Clare:Um, Well, I was born in 40, uh, 49. Um, when the mild form of, um, sort of called ME started
in 50, uh, when I was struck down to say What are you saying? Nothing. I ain't got a clue. Hmm, I'm sympathetic. But, um, the doctor said what he needs to do is eat organic, get an allotment who didn't seem to work out, but I haven't got enough energy to dig an allotment. I did get one, but I couldn't do anything with it.
Linda Elsegood: So how did you hear about LDN?
Clare: Um, that was, um, about a year or so ago in, uh, let's see, in 2005, um, A friend of mine is a scientist who knew she had Lyme disease but hadn't been diagnosed, finally found one GP in the country who was pleasing people. And,
um, so I went, she said, she thought I had it and I went to him, and I gave half of it.
And he's been treating me since 2005 and gradually killing off the bacteria and, uh, microphone area worms. Cause I've got them as well. Those strong, poor ammonia, sort of a common word, but I think it changed the name recently. Um, and as I was gradually getting better, but I used to plateau, I'd have a series of treatments now keep flattering.
And so he'd keep introducing altering the treatments. And, um, then I got to a reasonable state.
She said, okay, try LDN. And so I did, and I'm on now on, I kept him. Many grams twice a day, which is pretty high dose. I know, but that's how much I need. I quit built up gradually from whatever it was, the lowest amount, one, one gram, a half a gram or whatever.
Linda Elsegood: So how did you find LDN did you experience any symptoms as side effects and then this side of it?
Claire: Um, I just kept increasing the dose until I actually did what it was meant to do. I give me a bit more energy. And, um, uh, this is the first year for several years, and I haven't had hay fever, which I need to, everything went wrong.
When I got ill in 1995, I've been perfectly fit, extremely fit, healthy, energetic, very energetic.
And then everything went wrong. I developed just about everything except a plaque on my teeth. So other than the fatigue,
Linda Elsegood: has the LDN, anything else for you?
Clare: It's mainly improving, put my energy and immune function, and it's an ongoing process and it still helping, I don't tend to pick up local bugs.
I do take lots of numbers, like a hint of a sore throat or a sniffle. Um, but it would have been in the past. It would have developed a little bit. Now it doesn't really, but it's definitely, um, strengthening my system.
Linda Elsegood: Thank you very much for sharing your experience.
Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.