Gisli - Iceland: ME/CFS (LDN, low dose naltrexone)

Gisli - Iceland: ME/CFS (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Gisli had been suffering from CFS/ME since he was near 10 years old, the illness commonly known as Chronic Fatigue Syndrome and Low Dose Naltrexone. 

Gisli didn’t recognise the illness until he was 25 years old where he then received anti-depressants for his depression and mood swings. During this time, where he was commonly ignored by doctors, or receiving the wrong diagnosis treatment; before low dose naltrexone (LDN), Gisli was in a critical condition after encountering the common flu. He was in the third state of progression of his disease, which lead to paralysis for one and a half years, making him bed bound. Furthermore, Gisli also experienced the harsh reality of losing the ability to talk, difficulty to form sentences, as well as finding it a challenge to read text. This was not the end, he also became very hot which resulted in having post access to no malice. Most activities Gisli tried proceeded in him being in bed after. 

Like mentioned earlier, Gisli received little to no help from doctors, the medical system left his condition untreated which made him realise he would have to face his demons on his own. Gisli found patient and medical groups online, a community to connect with like people, experiencing similar conditions. Realising they had received help from LDN. Now knowing and gathering up further information from other people; Gisli managed to receive a prescription for low dose naltrexone (LDN) after visiting his General Practitioner with articles of the medication he desired to receive and try for himself. The GP understood Gisli’s situation and his deterioration from the past and agreed to it; trying out one half of a milligram for roughly three months. 

His side effects were sleeping more, sometimes for 18 hours a day. Although, Gisli did take this as a positive side effect, as before the medication he was finding it hard to sleep for near enough one and a half years. On the fourth day of medication he noticed the ability to concentrate more, the feeling of success through this medication made her tearful towards friends and family, where he had the positivity of hope, feeling as if he could live again. 
Now, Gisli posts positivity on online groups and resources. 

Summary of Gisli's interview, please listen to the video for the full story. 

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