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I'd like to introduce Kevin from England, and Kevin has multiple sclerosis. Welcome
Kevin: Kevin. Hello, Linda,
Linda Elsegood: could you tell us, when were you diagnosed with ms.
Kevin: Diagnosed in 1997,
Linda Elsegood: right? Yeah. And how old were you at the time?
Kevin: I would have been 37 coming up to 37. Anyway.
Linda Elsegood: So, what led to your diagnosis? What was your life like before then?
And what kind of symptoms did you have?
Kevin: Um, well, I was at a Bible college. So some do a little bit of stress, I suppose. And I just started with pain in my elbow, which I went to the doctors and they said it was tennis elbow combat next week. And I'll give you an injection. I went back the next week, but by that time, my hand was just doing whatever he wanted to do.
So he said, I don't think it plans yourself and send me to the hospital where they did all sorts of tests that
Linda Elsegood: trauma you had in your hand. Um,
Kevin: I'm not sure what you call it. My fingers were just one shape. They were twitching and moving. I just had no control over them. Um, really the lower parts of my arm. I had very little control over.
Uh, he sent me into a hospital where they did all sorts of tests and finally came up with the position straight away.
Linda Elsegood: That's unusual because most people tend to have to wait quite a while.
Kevin: I feel so sorry for people, but that must be horrible.
Yeah. I mean, if, if fall back, I did have problems with my eye. They just said that was probably an infection and Tom had to go away.
Linda Elsegood: So how long did you have ms before you learned of LDN?
Kevin: Um, well, I was diagnosed 97 lent about probably 2005, 2006 and spent the next two or three years trying to convince the doctor to prescribe it.
Linda Elsegood: Did your own GP prescribed it for you?
Kevin: I did eventually. Yeah.
Linda Elsegood: Very lucky.
Kevin: It was, it was, it was a lovely man had,
Linda Elsegood: sorry, are you still getting it
Kevin: on the NHS?
, I'm at the moment, but I did send you an email today because we've just moved. I had to give up work because of my ms. And we've moved out and changed doctor, and my doctor holds those. The one I spoke to was very sympathetic. Just tells me a lot to try and get me to a neurologist and questioning whether they can continue with my LDN.
Hopefully, I'll continue, but I don't know. I've got to try and take lots of information to it to convince her.
Linda Elsegood: Yeah. How has that LDN helped? What symptoms is it helped with?
Kevin: I was. Very, very urgent and going to the toilet and it's come knocked down a lot. I was getting, you know, five, six times during the night. Now I, if I get to one-story night, I'm not the most. Sometimes it doesn't get too possibly.
Linda Elsegood: Yes. Well, I used to get up six times a night, and I guess at once, and I still feel hard by, I like my sleep that I really shouldn't complain once it's not handled there is that my mother always, always gets it twice anyway, so she's worse than me.
Kevin: Yeah. It's an that's affected my leaving away. Well, now something that will be enough. I'll go to bed. A good night's sleep. You can wake up feeling just as tired about something could happen.
Linda Elsegood: do you feel that the Fatigue you use to?
Kevin, I'm not sure how. I think I probably come back to feeling as fatigued as they used to. Certainly, initially, it helps a lot with fatigue. Hmm.
Just cause I've got work or not. I want,
Linda Elsegood: did you have any initial side effects when you started LDN?
Kevin: I did no, no dreams or anything. I was looking forward to my dreams, but I never got it. Well, I don't want to dislike it. Would it be nice? Not
Linda Elsegood: so what's your level of fitness now?
Kevin: Um, I can still walk in the house.
And I can get the time side, but if I go sort of reality beyond the gate, I can get to my car, or I need my wheelchair.
Linda Elsegood: Did you ever have any cognitive problems?
Kevin: No, I don't think so. No. No.
Linda Elsegood: What would you say to other people with ms. Who to thinking of trying LDN?
Kevin: Tell them it's really worth trying.
And I say, even if it's just for my sleep, I'm certain if I think deeply other, even if it's just with my toilets in there, nothing is worth me taking it. And there are so many things that come out that I advise anybody I speak to try and get the,
Linda Elsegood: what about your eyesight?
Kevin: is back to normal.
Linda Elsegood: Yeah. What about your hand?
Kevin: that went back to normal. Thirdly, quickly, I had a course of steroids and went back, although I've still got numbness in my hands and my feet, it came off at the same time.
Linda Elsegood: So will you be continuing to take LDN?
Kevin: I will definitely. Yeah. I don't want to stop taking it. Yeah. If I'm open, I'll convince the dumpster to apply by October looking at all the options tonight, because I, I do also feel that eight days old dating back, even though my wife would dying, I know I'm feeling a little bit worse and I lost two or three years ago.
Linda Elsegood: Good. Well, thank you very much for sharing your story with us.
Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.