LDN Video Interviews and Presentations

Laurie - US: CFS/ME, Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Laurie from the United States shares her story about using low dose naltrexone (LDN) for Chronic Fatigue Syndrome (CFS) and Fibromyalgia.

Laurie began getting symptoms of her illness at the beginning of the 1980s, but was not diagnosed until 1998. By that time, she could not work, she could not take care of her kids, and her husband quit his job to work from home to be able to help her. She was depressed and suicidal and in a great deal of pain. She had no energy, as well as memory problems and severe insomnia.

It took seeing multiple doctors to find a doctor that recognized that something was wrong with her and the pain and illness was not just in her head. The doctor told her she was depressed because she was sick. She diagnosed Laurie with Epstein Barr, chronic fatigue, and fibromyalgia. She was depressed because she was sick.

Laurie was very sensitive to medications, but found Low Dose Naltrexone (LDN) while researching treatment for fibromyalgia. When she asked her doctor about LDN, the doctor had heard of it, and eventually prescribed Low Dose Naltrexone (LDN) for Laurie. She began LDN at a dose of 0.5 mg, and the next morning she already noticed a difference. She gradually increased her dosage to 3.5 mg, and when she did, she had a few days of increased fatigue, headache and sleepiness, but that went away and she was left with better energy and better sleep. She is decreasing her dosage back to 3 mg, because that’s the dosage where she felt the best. Her pain is 90% better, and her endurance is better, as well as her mood. Her aphasia is better as well, to the point that people around her have noticed. 

This has been a summary of Laurie’s interview. For the whole story, please listen to the recording located at the link above.

Kimberly - US: Cancer, Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Kimberly, from the US takes LDN for fibromyalgia, and she also has a service dog (a cocker spaniel) who takes LDN for liver disease and liver cancer. 

She started her dog on the medication around a year ago, and noticed she could now walk, after spending a year without being able to do so, and is also surviving cancer and liver disease.

Kimberley has been ill with Fibromyalgia for around 17 years. Her symptoms were chronic fatigue at first, which eventually led to not being able to walk for three months after being incredibly active. 

Before taking LDN, Kimberly would spend the majority of her time housebound and depressed. She would also get mouth sores and a chronic cough along with a swollen face occasionally. Sometimes these symptoms lasting weeks upon weeks. Kimberly also mentions feeling pain as though someone has beaten her with a baseball bat. Exhaustion, lack of appetite, migraines and struggling to breathe also were felt regularly.

After taking LDN sourced from her own GP in California, she has felt more stable with an increased quality of life with no side effects.

Kimberly urges that people try the medication when asked if she recommends it saying “LDN can give them the quality of life.” She is very grateful for LDN, for herself and her service dog.

To view the entire interview, watch the video.

Any questions or comments you may have, please Contact Us. 

Kay - US: Fibromyalgia, Lichen Planopilaris, Chronic Sinusitis, Allergies/Chemical Sensitivities (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda shares a wonderful LDN success story of Kay who suffered for years with fibromyalgia. She had a weak immune system and also had chronic sinus infections, allergies, colds, and migraines constantly. She had immediate relief after starting Low Dose Naltrexone (LDN) a year ago. The pain and other FM symptoms are gone and her energy is back to normal. Her quality of life has gone from 3 to 9 out of 10. Listen to her encouraging story.

Katie - US: Fibromyalgia, 15 Nov 2017 (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Katie from the US has been taking Low Dose Naltrexone (LDN) for Fibromyalgia for two years.  In this interview, Katie talks about how her doctor measures her progress with blood work every three to six months looking at the inflammation markers, which have been consistently decreasing. 

Katie suffered from fatigue to such a degree that she had to stop working and her days were pretty grim. Katie says that Low Dose Naltrexone is worth trying primarily because there are no side effects.  Katie says “I think for other people who have fibromyalgia, there can be chemical sensitivities or sensitivities to medications. It's really nice to take a medication [LDN] that has very minimal side effects”.  Katie was unable to return to work but, as she says, she’s not suffering any more and that’s enabled her to do all the social things that she was missing previously. Katie says she feels she now has her life back.

Kat - US: Fibromyalgia, Interstitial Cystitis, RA, Pain (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Kat from the United States shares her story of how low dose naltrexone (LDN) has helped her with fibromyalgia and other chronic pain conditions, including interstitial cystitis, arthritis, and a displaced SI joint.

Kat first developed fibromyalgia, arthritis, and interstitial cystitis in the years following an automobile accident in February of 2004. Her symptoms include extreme fatigue, constant headaches, different odd pains that would come at random, as well as bladder and gastrointestinal problems. She learned about Low Dose Naltrexone (LDN) while searching for treatments for her fibromyalgia. She brought the information packet about LDN to her doctors, who prescribed it for her as it seemed like it was unlikely to do any harm, and it could help her condition.

When she began taking LDN, any side effects were very very slight compared to the reactions she had to other medications her doctors had prescribed. She had a little stomach disturbance and some strange dreams, but those side effects were very short-lived. 

LDN has given Kat decent sleep, a lot more energy now that she’s off narcotics, and she has a clearer mind. Her pain is very much reduced and much more manageable than before. She knows that the LDN provides significant relief because about a month ago, she forgot to put the LDN in her pill organizer, and within three days without LDN, she felt terrible. And not only is the LDN helping with her various pains, but she’s also been sick much less often.

Kat started at 1.5 mg per night, and gradually increased her dosage to 4.5 mg each night. However, she has found that her best dosage is 4.5 mg morning and evening. Kat notes that while she felt a difference on LDN fairly quickly, some people take longer, even months to feel better, so it’s best to be patient when you start taking Low Dose Naltrexone (LDN).

This has been a summary of Kat’s interview. For the whole story, please listen to our recording at the link provided above.

Karalyn - New Zealand: Myasthenia Gravis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Karalyn from New Zealand shares her Myasthenia Gravis and Low Dose Naltrexone (LDN) story. 

Karalyn started getting symptoms of weakness in her legs to begin with and she suffered from unexplained fatigue, her doctors treated her for Fibromyalgia initially but the medication made her worse. Karalyn saw a few neurologists while trying to get a real diagnosis but they still weren’t sure what was going on - this went on for years. Her eyelids were drooping and her speech became slurred. 

Eventually, she got a diagnosis of probable Myasthenia Gravis. Karalyn researched herself, listened to other people’s experiences and eventually found Low Dose Naltrexone (LDN). 

Karalyn took her first dose of 1 mg and woke up the next morning feeling virtually normal again. She increased her dose as directed and says that her progress was absolutely amazing and she had no side effects at all from LDN other than a couple of nights of vivid dreams and disturbed sleep but that passed quickly. 

Karalyn got her life back after taking Low Dose Naltrexone and is very grateful that she found it. 

Julie - England: Fibromyalgia, Lupus (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I’d like to introduce Julie from England who takes LDN, fibromyalgia, and lupus. Thank you for joining me, Julie.

Julie: That's okay. You do it for pleasure.

Linda Elsegood: Could you tell us when you first started to feel unwell?

Julie:Um, it was about 1999 when I looked back. Um, and it was just, I used to get swelling in my left foot. I probably had it about free time.

Um, and then it just goes away. It was when I was really tired, and then it would go away when I sat and, um, You forget about it, you know, you just, um, a secret about it and seeing, oh, I don't know. Maybe he does a dummy or something, but then it went on to about 2006. I got pneumonia. Um, and I was hospitalized for eight days.

I couldn't find why it wasn't bacterial. Um, and in the end, I just kept here on my own. And then. After that, I had a lot of pain, and it's a long time to get over it. Um, and then they said I had side the myalgia, and that went. I was diagnosed in 2007, 2008, with fibromyalgia. And then I just used to have a flare if I would feel if I had a cold, if I had an upset stomach, just as that was passing, I would be then laid completely bedridden, total pain, complete from head to toe And couldn't move my head for about four or five days after being ill.

After that, he called after having an upset stomach and, um, I still, they said it was fibromyalgia. Um, and that went on actually until 2012. When by that time, I was losing weight. Um, I was very, very. Nearly lost my job. Very nearly just come on to it by the tips of my fingers. Um, I had just gone part-time. They made me go part-time because of side myalgia, but, um, I was still just cleaning into it and, um, At the end.

And then I started getting really bad man falses. And by the end of 2012, just at the beginning of 2013, I signed me, got diagnosed with lupus, add alone, along with the side, the mild child.

Linda Elsegood: And before you discovered that LDN, what would you say it now? Which day was like for you.

Julie: I don't remember what day it was going to be like. Um, it was, yeah, might have a good day, but mostly it would be staying on the sofa. Um, not knowing what was wrong. No. You know, just in my, in my head, I want you to do so much, but I just could not physically do it. I just did not do it. Um, in a flare during a flare, you know, all bets were off, but when I was not in a flare, I would still get pain, um, everywhere, even driving with NITSA, just, um, you know, Just get ready to go out and then I'd realize that I'd get to the car.

And then we like actually I've left from the upstairs, and I have to go back to the house. And that would be such an effort. Every day was a struggle good days. And bad days were struggles. I had some better days where I've got a bit more done, but my quality of life wasn't very good at all. And like I said, you know, I was on, I was on the verge of losing my job.

Linda Elsegood: So at that time, if you had to score your quality of life on a score of one to 10 and 10 being the best, What would it been?

Julie:I suppose three, four. I still I'd hoped that it was par. Yeah. Now I still had hope, but, um, yeah, I was very, very down and. And it wasn't depression. I know it wasn't depression because I've not, I don't think I really suffered from depression. I know that depression can be linked with lupus, but for me, it was because of my situation because.

I just couldn't shake it off. I just couldn't shake it off. And you know, you are asleep and think I'll just have a little shape, and it'll be a bit that I'm going to wake up, but I never was. I never was. The fatigue was always there. Pain playing in a net, Lisa random, you know, one day you just wouldn't be able to lift your arm.

It's so random, and I never knew what any day was, you know, I could never plan anything. It would be it depending on how I am, you know, it was just, couldn't make times really, um, and had to cancel things. And

just not going out because. That was my quality of life. You know, it just wasn't, um, letting people down and then feeling that feeling bad because of that. And that would get you down, but I couldn't help it. I just could not help it. I could not do very much at all.

Linda Elsegood: Yeah. Okay. So how did you hear LDM?

Julie: I first heard about it on the internet, um, actually on the health and looked site. Um, the lupus health on Luxilight, which I joined. And I stood up to Chris Steele's, um, video or DVD on YouTube. And I watched that, and I thought, well, I've got to investigate this. So then I just really started investigating, and yeah, I learn for it.

Linda Elsegood: And when you first started, did you notice any introductory side effects?

Julie: I would say, and I would want, this would happen because when I first started here, I was still on steroids. I was on steroids for lupus because other medication that had been on methotrexate for one hadn't agreed with me for that to come off of that.

And I was on steroids. So 10 milligrams a day, um, So I continued to take steroids and started LDN very low. And initially, I'd say maybe three days, three, maybe four days I was on this would happen by my prescribing doctor. The pain got a bit worse. Um, but I persevered, um, And then just slowly, very gradually began reducing steroid, letting it stabilize and up in the LDM, but it was a gradual process.

And I did, I would say about the second week of taking the LDN. I got a cold normally. It's the cold would be subsiding. I would be bedridden with pain, really, really raked with pain everywhere. But I managed to carry on going to work, which for me was fantastic. It was almost like a normal person having a cold.

I managed to work for it. I was tired, and you know, to rest when I got in from work. But. It was great to be able to, to not go into the fare. I didn't go into the flair. And that was the LDM working. I know it was 2000, 2008, any little cold, I, you know, just not used to fix.

Linda Elsegood: So how long have you been on LDN now?

Julie: I started LDN, and I know the day if my mom's birthday or on March 11, 2014.

Okay. And I haven't had to go and work.

Linda Elsegood: I mean, you haven't been on it that long. I mean we're now June.

Julie: Yeah. So like, yeah, exactly. And are now still it free to about the power. Four or five weeks, they were afraid. I'm just an LDN now. And I'm high blood pressure tablets. I still take those. But other than that, there's the occasional occasionally if I do still get pain, but I can cope with it.

It doesn't wear me down. It's all manageable. If I get, at the bad time I will take ascent or paracetamol, but that's it that's the most touch it. That's what I'm taking now.

Linda Elsegood: Okay. And on the score of one to 10, for the quality of life, 10 being the best, what would it be now?

Julie: It's eight or nine. I've still got lupus.

Um, and like you said, it's early days. I'm not cured, but I am living again previously. I was not living. I was just existing, and I can plan, I can plan things. Um, Lastly comment on a union conference for five days managed to do all that previously. I couldn't have said I'll go somewhere. We've worked for five days because I couldn't, I wouldn't have known how I was going to be each day.

So I am living now, and it's great. I'm so I just really, really. 10, if you to give it a try, you've got absolutely nothing to leave and every sheet again,

Linda Elsegood: thank you very much for sharing your wonderful experience with us. It's really amazing. Very inspiring. Thank you.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.
 

Julie - England: Chronic Fatigue Syndrome (CFS/ME) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Julie from England shares her Chronic Fatigue Syndrome (CFS/ME) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Julie first noticed symptoms of Chronic Fatigue Syndrome (CFS/ME) around the age of 53 when she had a respiratory infection which she seemingly was unable to fight off. Following on, she suffered from severe chest pain and found that it required incredible effort to go out or go anywhere as her energy levels were so low.

Now that she has discovered Low Dose Naltrexone (LDN), her overall energy levels have increased again and the pain has been dramatically reduced. This rapid increase in her quality of life means that she is now able to spend more time with her family and live her life the way she wants to, unrestricted by CFS/ME.

This is a summary of Julie’s interview. Please listen to the rest of Julie’s story by clicking on the video above.

Janet - US: Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Janet from Georgia takes LDN for Fibromyalgia, and has been having problems for just over four years, which is when she began to notice it. Symptoms included severe aches and pain in muscles, extreme fatigue and trouble concentrating. 

Janet heard about the Low Dose Naltrexone (LDN) medication through researching for a company she was working with at the time. She saw how well results were and that was her initial thought, to try it for herself. She stopped all of her other medications, and went to her neurologist who agreed to prescribe it. 

Janet did not have any initial side effects when she first started the LDN medication.

Janet has now been on the LDN medication for 8 months, she quoted that before, she did not have any quality of life at all, she was miserable, and her work hours dropped to below half. Now, after the medication, she feels fantastic. , she has managed to get her license back also. Although her symptoms are not completely gone, she says they are a lot more manageable, and she is back to working her full hours.

Janet fully recommends LDN to other people, and quotes that there is no choice about it. She says it is also the best thing to exist.

Please watch the video to view the whole interview.

Any questions or comments you may have, please contact us.

Jamie - US: Epstein-Barr Virus, CFS/ME, Fibromyalgia, Resless Leg Syndrome... (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Jamie from the United State shares her LDN story which she takes for, the chronic Epstein BARR virus.

She first started getting shooting pains in her arms and legs like she couldn’t move, after doing research she realised what she had.  She found out through a FaceBook group that LDN was a great way to help with ME/CFS.

At first she had weird dreams from LDN but they went away quick. Her life wasn’t the best quality before LDN she could barley get out of the bath, and now she is getting around just fine.

To listen to the full story click the video link.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today.