LDN Video Interviews and Presentations

Radio Show interviews, and Presentations from the LDN 2013, 2014, 2016, 2017, 2018 and 2019 Conferences

They are also on our    Vimeo Channel    and    YouTube Channel

 

Jade's Journey with Hashimoto's and Low Dose Naltrexone

Jade from South Africa talks about dealing with Hashimoto's and her journey with Low Dose Naltrexone (LDN). Jade was diagnosed with Hashimoto's in 2010, but she only discovered LDN in 2019 after stumbling upon it in a Hashimoto's Facebook group. She consulted with a functional doctor in South Africa who prescribed LDN for her.

Before receiving her Hashimoto's diagnosis, Jade experienced severe hair loss, which prompted her to seek medical attention. Although she didn't exhibit typical symptoms such as weight gain, she suffered from fatigue, which she later learned was related to Hashimoto's. Initially diagnosed with an underactive thyroid, it took years before she was informed of her Hashimoto's condition.

After moving to Germany in 2016, Jade's symptoms worsened, leading her to research and seek out support groups to manage her condition better. Despite making dietary changes, she found that her antibodies remained high, which motivated her to explore LDN as a potential solution. Since then, she has seen significant improvement, with her antibodies dropping to remission levels.

Obtaining LDN in Germany proved to be challenging, as many doctors were unfamiliar with the medication. Ultimately, Jade continues to source her LDN from her doctor in South Africa and relies on family members to bring it to her when they visit.

Jade started LDN at a low dosage of 0.5mg, gradually increasing the dose each week until she reached 4.5mg. Initially, she experienced vivid dreams and fatigue for the first few weeks.

Overall, Jade's journey with LDN and Hashimoto's highlights the challenges of accessing specialized treatments and the importance of advocating for oneself in managing chronic conditions.

In addition to managing her Hashimoto's with LDN, Jade continued taking LDN throughout her pregnancy. Despite some doctors advising against it during pregnancy, she did her own research and found a supportive community. She believed LDN potentially helped her from having a miscarriage and had a positive impact during her pregnancy. She had a healthy pregnancy and a smooth birth, and her baby is now three months old and healthy. She values the importance of doing her own research and seeking second opinions from doctors and is grateful for the positive experience she had during her pregnancy.

 

 

Makiah’s Seeking Answers to Complex Health Conditions

Makiah from the US, shared her health journey, which began in childhood but became more noticeable after her second pregnancy. She experienced fatigue, gut issues, and abnormal postpartum recovery. After her third pregnancy, which was difficult and ended tragically with the loss of her son, she faced persistent health challenges, including bleeding, weight fluctuations, and fatigue. Seeking answers, she was diagnosed with endometriosis, adenomyosis, insulin-resistant PCOS, adrenal insufficiency, and gut dysbiosis. Despite following treatment protocols, she still experienced fatigue and food reactions, eventually discovering a potential link to Ehlers-Danlos syndrome (EDS) and mast cell activation syndrome.

 

 

Mandi talks about LDN, MCAS, EDS, POTS and Thoracic Outlet Syndrome

This interview offers a detailed and introspective look into Mandi's journey with LDN, thoracic outlet syndrome, MCAS, POTS and EDS. Through her account, she delves into the intricacies of her diagnosis, the complexities of surgical interventions, and the impact of her children's medical challenges on her own health journey. Additionally, Mandi provides an in-depth exploration of how LDN has played a pivotal role in managing these intricate conditions, offering a comprehensive and informative perspective.

 

 

Living with Multiple Health Conditions: Veronique's Story

Veronique from Canada shared her experience of living with multiple health conditions, including MCAS, EDS, POTS, ADHD, and autism. She faced challenges with late diagnoses, frequent falls, injuries, dislocations, and gaslighting by medical professionals. Her typical day involved extreme fatigue, cognitive difficulties, chronic pain, digestive issues, and the struggle to function normally. She also experienced vertigo, fluctuating blood pressure, and difficulty eating. Veronique's story highlights the physical, emotional, and mental impact of her conditions and the challenges she faced in managing her daily life.

Lindsay shared her health journey. She discussed her experience of being diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), Ehlers-Danlos Syndrome (EDS), and Mast Cell Activation Syndrome (MCAS). She described first noticing symptoms in her early 30s, leading to her POTS diagnosis in 2017 after fainting during a tilt table test. Lindsay also shared her battle with breast cancer, undergoing treatment, and successfully overcoming the challenges. In 2022, she encountered a frightening episode of rapid heart rate, trembling, and other distressing symptoms, prompting her to seek help from a functional gastroenterologist. Lindsay explained her ongoing struggle with gut issues, constipation, a dairy allergy, and skin problems, and how she has found relief through dietary adjustments and medication.

Cindy, a guest on the LDN radio show, shared her remarkable health journey. She described experiencing hypermobility from a very young age and enduring a multitude of health challenges, including menstrual issues, pots, and food allergies. Her difficult pregnancies and the revelation of her genetic predisposition to certain conditions shed light on the intricate genetic component of her health issues. Through her story, she emphasized the complexities of managing multiple health conditions and underscored the significance of comprehending the genetic factors at play in her health struggles.

An interview with Teresa, who has been dealing with multiple health issues, including mold and hormone problems. Teresa's symptoms were severe, and she had been struggling with them for over two years. When she was at her sickest, Teresa had histamine intolerance, gut problems, and neuroinflammation. She also experienced hot flushed red faces whenever she worked out, endometriosis-type symptoms, diarrhea, increased heart rate, weakness, and jumbled thoughts. Teresa sought help from multiple doctors but found no relief. She had to go to functional medicine and naturopathic medicine to get the help she needed. The doctors prescribed her supplements, herbs, and homeopathics, among other treatments, to improve her health. However, it took her some time to feel better despite adopting a healthy lifestyle and following protocols. She learned about how to eat properly, take care of her mitochondria, and improve her nervous system and relaxation through meditation. Teresa describes her typical day when she was at her sickest, and it is a poignant story. She would wake up feeling either nauseous or sweating and had to move her bowels frequently. Within two hours of waking up, her heart rate would increase, and she would feel weak, forcing her to sit down. Teresa had to work as an online therapist and tried to see clients despite feeling unwell. She couldn't be around intense smells, go outside, or eat without feeling sick or nauseous. Her life was limited, and she was essentially homebound. It wasn't until Teresa started taking LDN that things started to improve drastically. Her functional medicine doctor prescribed her LDN, which was initially a source of hesitation for her. However, as she saw her roommate getting better after taking LDN, Teresa decided to give it a try. LDN is a promising treatment option that has been used for various health conditions, including autoimmune diseases, chronic pain, and cancer. It works by boosting the body's natural immune response, reducing inflammation and pain. Teresa's LDN treatment was a turning point, and she started to feel better. She felt less sensitive to smells and was able to tolerate more foods. She started to gain weight, have more energy, and exercise again. It took her a while to feel better completely, but LDN was the key that unlocked her health. It is a testament to the power of functional medicine and the importance of finding the right treatment for each person's unique health condition.

In this interview, Linda has the pleasure of speaking with Kelly, a guest from the United States who shares her journey of dealing with MCAS and POTS. Kelly discusses how she first noticed that something was wrong with her body when she was a child due to severe GI symptoms, which led to her receiving her first colonoscopy at the age of ten. However, despite years of experiencing worsening symptoms, Kelly did not receive a formal diagnosis until 2019. She describes her frustration and the challenges she faced while seeking answers from various specialists, highlighting the systemic factors within the healthcare system that make it difficult for patients like herself to receive proper care. As a social worker and a patient herself, Kelly provides unique insights into how care for undiagnosed patients could be improved, emphasizing the importance of physicians believing and trusting their patients, providing them with resources, and access to care to help them find accurate diagnoses. Kelly also discusses the complexity of MCAS, a multi-system disorder that can affect various organs and the skin, making it difficult to recognize and diagnose. She shares her experience of how finding a physician who understands the condition was crucial to getting it under control. Overall, Kelly's story sheds light on the challenges of living with an undiagnosed condition and the importance of improving healthcare systems to support these patients. Kelly is taking LDN, Low Dose Naltrexone.

Nicole, from the United States, speaks about the challenges she has faced due to several complex health conditions. Ehlers-Danlos syndrome (EDS) is a genetic condition affecting connective tissue, leading to hypermobility of joints and easy injury. Mast Cell Activation Syndrome (MCAS) is a condition in which mast cells, which are part of the immune system, are overactive and cause symptoms such as hives, swelling, and abdominal pain. Postural Orthostatic Tachycardia Syndrome (POTS) is a type of dysautonomia that affects blood circulation and can cause symptoms such as lightheadedness, fainting, and rapid heart rate upon standing. Endometriosis is a condition in which the tissue that normally lines the inside of the uterus grows outside of it, leading to pain and other symptoms. Finally, Lyme Disease is a bacterial infection transmitted by ticks that can cause a range of symptoms including fever, headache, and joint pain. Despite the difficulties she has faced, Nicole remains an inspiration to others who may be struggling with similar health challenges.

Kerriann, from Canada, shares her experience of living with multiple chronic illnesses. These conditions include Lyme disease, which is known to cause a range of symptoms from fatigue to joint pain, MCAS (Mast Cell Activation Syndrome), a rare condition that causes allergic-like reactions, EDS (Ehlers-Danlos Syndrome), a genetic disorder that affects connective tissues, POTS (Postural Orthostatic Tachycardia Syndrome), a condition that affects blood flow, and Fibromyalgia, a chronic pain disorder. Despite facing these challenges, Kerriann has chosen to share her story in the hope of raising awareness and providing support to others in similar situations.