LDN Video Interviews and Presentations

 

Malcolm from the United States, takes Low Dose Naltrexone (LDN) for multiple sclerosis (MS). He was diagnosed around 1991, in his early thirties. Now 53. 

Before his diagnosis, Malcolm was involved in sports. He worked for a large corporation in sales and marketing, as well as having a child.  

At first his optic neuritis, which was treated with steroids, did not affect his life too much but stopped him with the sports. Malcolm did not know about LDN until around 2003, 2004,where he learnt about it over the internet. 

His doctor recommended Low Dose Naltrexone (LDN) to Malcolm, after finding out that his old medication - Tysabri - was extremely dangerous, causing sometimes death and brain diseases. 

Malcolm has been taking LDN for nearly three years now, he has noticed that his MS is not progressing, where he seems not to have gotten any worse. Now, Malcolm no longer naps like he used to, when he used to be exhausted all the time. He has no more fatigue and his balance is much better. He even quotes that he ‘will continue taking LDN for as long as he lives.’ So he values it greatly, and recommends to all who are struggling with symptoms such as Multiple Sclerosis. 

Please watch the video to hear the full interview. Thank you

Any questions or comments you may have, please contact us.

Maija - US: Chronic Fatigue Syndrome (CFS/ME) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Maija from Finland shares her Chronic Fatigue Syndrome (CFS/ME) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Maija’s Chronic Fatigue Syndrome (CFS/ME) symptoms began over a very prolonged period of time. The first symptoms appeared in 2000, when she was only 15 at the time. Over the next few years she developed many other neurological symptoms.

In 2007 she came across Low Dose Naltrexone (LDN) in a medical magazine. Having read such glowing reviews of the drug, she was determined to obtain a prescription. Within 24 hours of starting on LDN, Maija already felt better. 

This is a summary of Maija’s interview. Please listen to the rest of Maija’s story by clicking on the video above.

Lynn - US: Hashimoto's, High Antibodies, Benign Tumors (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Lynn from the United States takes LDN for high antibodies, Hashimotos. Her body was attacking my thyroid and other organs. But was also in agony constantly. She had undiagnosed Hashimotos for 10 years, her thyroids were destroyed, with only a small amount left.

13 different specialists always said they would not prescribe such a drug as Low Dose Naltrexone (LDN). Synthetic thyroid medications were not working, it was causing a huge amount of pain and brain fog, the inability to think straight, and was also in chronic pain. 

After taking LDN for a few days, she started to notice a huge difference in her pain. She built up strength in her muscles, and her brain fog was disappearing. 

Even her husband, who had Parkinson's disease is now also taking LDN, after 7 months he has also noticed a huge relief, and less pain. 

LDN has given Lynn a new lease of life, she feels as though she can now take care of herself and exercise.

Please watch the video to hear the full interview. Thank you

Any questions or comments you may have, please contact us.

Lynn - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Lynn from England shares their Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Lynn was diagnosed with multiple sclerosis (MS) in 1995, at the age of 49. Her diagnosis seriously impacted upon her health and overall activity, meaning she could no longer run as frequently as she previously would have liked.

Her dropped foot meant she could not walk properly, yet she came across Low Dose Naltrexone (LDN) which completely revolutionised her health.

In this interview she explains how LDN has changed her life, restored her balance and ability to walk properly and is now able to get back to doing the things she enjoys.

This is a summary of Lynn’s interview. Please listen to the rest of Lynn’s story by clicking on the video above.

Lynn - Australia: Graves Disease, Nephropathy (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Lynn from Australia shares her Graves Disease and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Lynn began to feel unwell around the age of 50 when she began to lose weight and was unable to control her bladder. On top of a loss of energy, Lynn had to cancel many social activities and holidays, leaving her with a bleak life.

Despite the initial struggles, Lynn was able to obtain a prescription for Low Dose Naltrexone (LDN) and began to work her way up to her optimal dose. She is now able to eat properly again and socialise with her friends and family.

“My life has improved so dramatically, I felt the pain before almost constantly and my overall quality of life was 3/10. Now I’m operating at 90% capacity, minimum. Everything’s rosy.”

This is a summary of Lyn’s interview. Please listen to the rest of Lynn’s story by clicking on the video above.

Louise - US: Rheumatoid Arthritis (RA) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Louise from the United States uses Low Dose Naltrexone (LDN) for Rheumatoid Arthritis. She had numerous issues for many decades, but was never tested for rheumatoid arthritis, and nobody thought to do that. 30 years ago, Louise had carpal tunnel syndrome in both hands and. Today, her rheumatologist tells her that if she had been tested for it, she thinks that she would have shown positive for rheumatoid arthritis. Two years ago, Louise had a flare, five joints were in pain, feeling really bad, and the pain kept increasing.

Louise was tested for the antibody, which was four times the normal high, and also for rheumatoid factor. 

A naturopath prescribed her with Low Dose Naltrexone (LDN) after seeing wonders with other diseases. Now her flares have disappeared. 

Fortunately for Louise, LDN is inexpensive in the United States. Although Louise recommends people research into LDN, she has noticed far fewer side effects. But also recommends people to try one thing at a time, opposed to herself.

Please watch the video to view the full interview. 

Any questions or comments you may have, please contact us.

Louise - England: Psoriasis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

We’re speaking with Louise from England. She takes LDN for psoriasis. Thank you for joining me, Louise. 

Louise: Thank you. 

Linda Elsegood: Could you tell us when you first noticed there was something wrong with your skin?

Louise: It was approximately 20 years ago, just after my dad died. I had it on my elbows, and the doctor diagnosed it as psoriasis. It's in my family, but it didn't really bother me too much at the time because it stayed on my elbows for a good few years before it started to spread. And I tried all the different creams that the doctor gave us, but it didn't work. So I just sort of ignored it for a while until it started to spread.

Linda Elsegood: So how long do you think you had it before it started to spread? 

Louise: I can't really remember, but possibly as much as between five and ten years. I'm guessing, to be honest. I don't know exactly. 

Linda Elsegood: So when it spread, where did it spread?

Louise: Well, it's spread more around my arms, and I've got some patches on my knees and this stayed like that for quite a while before spreading again. And then it spread all up and down my arms and to my lower legs. And it got quite bad. My arms got infected, but I didn't know what was wrong with them at the time. So it was a while before I went to the doctors. And what happens is if psoriasis gets infected, it just spreads like wildfire, and there is not a word to describe the intense itching. It's really awful, and it really makes your life very miserable. 

Linda Elsegood: So how far did that spread at that point? 

Louise: All up and down my arms. 

Linda Elsegood: So it was contained just your arms and your legs?

Louise: At that point in time, it was. 

Linda Elsegood: Even at that point, the medications didn't do much. Is that right? 

Louise: That's right. I probably thought it knocked it back at a little bit, but they certainly didn't make it go away. It just continued to get worse.

Linda Elsegood: And I suppose the more you worried about it, probably made it worse.

Louise: Probably. Yeah. 

Linda Elsegood: So did it go any further than just your arms and legs? 

Louise: Well, five years ago I had light treatment on my arms and legs. And it worked really well. I thought, Ooh, it's gone after it. Nobody told us it was going to come back. I thought that was it. So 10 to 12 months later, it started creeping back, and it came back worse than before the light treatment. And it just continued to get worse, really bad. And then my legs got infected, but I knew what it was because I had infected arms. And last July I was badly infected and went to the doctor, and went on the waiting list for light treatment again. I spent from August last year to March this year having all three light treatments. So I had the yellow light first, cause that's the mildest form. After a few weeks, they knew it wasn't going to work, so they put us on to the pink light and then it became obvious after a few weeks that that wasn't going to work. I was desperate because I really thought that it worked five years previously.

And then they put us on the UV light with psoralen, and that started to work. But I was going through a divorce at the time which was not very nice, and it just stopped working halfway through it, and my psoriasis, because it was stress-induced, it really came back very badly.

And I was actually accidentally burned with the light on my body because I had some on my stomach by then. And I ended up actually with more than what I had and it would actually be easier to tell you where I didn't have it. The only places I haven't got it is on my scalp, palms of my hands, and the soles of my feet. It is everywhere else; quite prolific. And you just feel like a complete - I want to say the word, but you just feel like a freak and like, you've got to cover yourself up; I've even got it on my face from my neck right down to my feet, even in the summer, which is really awkward.

And it’s just cruel in that it just makes you feel so isolated. When it was infected really bad, I just looked like I had the bubonic plague. I just couldn't bear in the morning when I go in the bath in the winter, I get up early in the morning, it's still dark, and I don't put the light on because I can't bear to look at myself, which doesn't work in the summer. Cause obviously you get off so bad, I couldn't stand even looking at myself. And when I tell people how bad it was, they say I look all right, and I say that’s because I'm wearing clothes so you can't see it.

And I'm very good at covering up the redness on my face so it isn't obvious to other people when I'm in my day-to-day life, but I know it’s there. It's uncomfortable. It's itchy. It's unsightly. And I just felt like quite frankly, if I could shoot myself in the head, I probably would have done, to be honest before I got onto the LDN.

Linda Elsegood: Wow. Did you have any other symptoms, other than the skin?

Louise: Yeah, I've had uveitis two or three times, which is inflammation of the coloured part of the eye that's linked to it. And I've also had arthritis and muscle soreness, but that was about 12 years ago. And unfortunately, it hasn't fled since, and it just destroyed a joint in my toe, which is neither here nor there. It doesn't affect my life in any way, but it just shows you the damage it can do when it comes back. Both it hasn’t, touch wood, it hasn't come back and the only incidence I’ve had is arthritis. 

Linda Elsegood: Wow. The skin - I mean, that sounds horrendous! 

Louise: When it started on the face, I couldn't believe it. I was kind of stopped because you can’t cover the rest of your body. I thought I'll attack that with creams, you know, two and three times the strength you’re supposed to, but I couldn't let it spread because once it takes the hold, it doesn't let go.

Well, four months ago I started on LDN because the doctors at the hospital wanted to give us methotrexate and I didn't want to take it because I work and I don't want to lose my immunity in what I'm doing, I'm in the wrong job for that. But also my sister, who has psoriasis, she took it years ago, and she suffered severe nausea and hair loss. So I just didn't want to take it. 

So when I heard about LDN, I thought I would like to give that a try, cause it appears to have little or no side effects. So I contacted the doctor in Glasgow, Dr. Andrew McCall. He prescribed it for me. So I've been taking it for just over four months now. And I would say within the last week that I've noticed an improvement, but I have to say it did get worse before it got better. And I'd watched a YouTube video of it - Jenny, I think she was called, and she had said it got worse before it got better. So I wasn't too worried when it got worse, and she talked about how she was getting completely better. So I just kept persevering with it. And within the last week, I've noticed that there is a dramatic improvement. 

Linda Elsegood: Wow. That's amazing. 

Louise: And that for the first time, in many, many, many years, this last week I've got bare arms outside in the sun. Oh, I'm thrilled that I can actually show part of myself, and just be comfortable in the hot weather and have the sleeveless top on, because I couldn't do that for years. I couldn't possibly do it. 

Linda Elsegood: That is such a great story. Isn't it? It really isn't so inspirational for the people to listen to it. Like you listened to Jenny's story. It's very important to share. 

Louise: Absolutely, because I think people should definitely try it. 

Linda Elsegood: That's amazing. 

Louise: Cause I'm so glad that I actually heard about it on an American support site. And it was where you send your emails through with a list of different threads that I've gone on with different conversations. And I just thought, well, I don't even know what naltrexone is, I'll click on it. I think it was prescribed in America for quite a long time. And this man was taking it and said that he tried all the other treatments that are heard of, some of which have horrible side effects, and he'd been taken this and there were no side effects. And so that's why I investigated it, not just taking it off the internet. 

Linda Elsegood: I actually like to interview you next year and find out how you are getting on.

Louise: Yeah, that's fine.

Linda Elsegood: Okay, well, thank you very much for sharing your story with us, Louise.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Louise - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Louise from England shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Louise was first diagnosed with Multiple Sclerosis (MS) in January 1995 at the age of 26. Working in her local store, she began to notice a constant sensation of pins and needles in her left leg. Going to see her doctor, she was dismissed and told the problem would disappear eventually.

Her MS returned following the birth of her son, when for about a year afterwards her head would not stop spinning. Determined to find a solution, she began to research alternative treatment plans which is when she came across Low Dose Naltrexone (LDN).

Having obtained LDN from a local chemist as her doctors wouldn’t prescribe it for her, Louise is overjoyed with her progress and is able to spend more time with her son.

This is a summary of Louise’s interview. Please listen to the rest of Louise’s story by clicking on the video above.

Lorraine - Scotland: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Lorraine from Scotland has multiple sclerosis (MS), where she first started noticing symptoms in February 2000. She developed extreme headaches, and recalls her scalp was sore, as well as bad weakness on her left side and fatigue. A day after an MRI scan she had received her MS diagnosis.

After taking Low Dose Naltrexone (LDN), she now has that “Wow energy”. To Lorraine it was amazing, and it also kept her awake and more active.

Lorraine heard about LDN through a neighbour who knew someone who was suffering with MS, who advised her to try it. Lorraine did have problems trying to convince her GP to prescribe it to her. Within three days, she felt so much better, she even ended up moving back to work full time. Lorraine even experienced no first initial side effects. Her quality of life has improved 100%, now feeling more human. 

Lorraine recommends people to try Low Dose Naltrexone (LDN), quoting that it will not harm you, so there is no loss to give it a go. 

Please watch the video to view the full interview.

Any questions or comments you may have, please contact us. 

Lorraine - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Lorraine from England who takes Low Dose Naltrexone (LDN)  for multiple sclerosis, she was diagnosed at the age of 36, her legs started to behave rather awkwardly, and had some strange sensations in one leg and a strange sensation at the base of her spine. 

When she was diagnosed she was with her husband and was crying saying “tell me whether I've got multiple sclerosis (MS) or not” After the extensive tests she had to ask again. She found out a week later from her doctor who told her she has MS and was told they would  send some brochures. She felt pretty much on her  own. 

The first 10 years were not too bad and then small things started to happen. She was in a lot of pain. It was excruciating. She refused steroids. That was her first attack. For five to six years, nothing really happened. After about ten years,  she had her second relapse, which left her with some disability. She had numbness in her legs, arms and fingers. 

She started Low Dose Naltrexone (LDN)  about 2 years ago with good success and recommended it to everyone.

Play the video to listen to the whole story.

Any questions or comments you may have, please contact us.