LDN Video Interviews and Presentations

Laurie - US: Lupus, Raynaud's, Mixed Connective Tissue Disease, Scleroderma (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Laurie was diagnosed with Raynaud's disease aged 12 and at 22 suffered mixed connective tissue disease, various types of arthritis, progressive scleroderma and lupus. Despite seeing many different doctors her symptoms deteriorated leaving her feeling useless with a low quality of life scoring only 1. She had little energy and was losing muscle strength. Often unable to walk she was forced to crawl. As a professional pianist who could no lomger play she was miserable.

Since the age of 22 she had taken Prednisone in fluctuating doses. She was taking other drugs to offset the side effects of steroids which simply masked the pain.

She runs a B&B and when a guest suffering from MS told her about LDN in 2013 she began an autoimmune diet with supplements and weaned herself off strong medication taking only 5mg of steroids daily. Her inflammation reduced considerably and she is now full of life. She is able to dress herself, do chores and prepare breakfast for her guests. She has her life back and no longer suffers from depression.  She can even run! Her quality of life she  now rates at 10.

This is a summary. To listen to the whole LDN interview please click the video link.

Laurie - US: CFS/ME, Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Laurie from the United States shares her story about using low dose naltrexone (LDN) for Chronic Fatigue Syndrome (CFS) and Fibromyalgia.

Laurie began getting symptoms of her illness at the beginning of the 1980s, but was not diagnosed until 1998. By that time, she could not work, she could not take care of her kids, and her husband quit his job to work from home to be able to help her. She was depressed and suicidal and in a great deal of pain. She had no energy, as well as memory problems and severe insomnia.

It took seeing multiple doctors to find a doctor that recognized that something was wrong with her and the pain and illness was not just in her head. The doctor told her she was depressed because she was sick. She diagnosed Laurie with Epstein Barr, chronic fatigue, and fibromyalgia. She was depressed because she was sick.

Laurie was very sensitive to medications, but found Low Dose Naltrexone (LDN) while researching treatment for fibromyalgia. When she asked her doctor about LDN, the doctor had heard of it, and eventually prescribed Low Dose Naltrexone (LDN) for Laurie. She began LDN at a dose of 0.5 mg, and the next morning she already noticed a difference. She gradually increased her dosage to 3.5 mg, and when she did, she had a few days of increased fatigue, headache and sleepiness, but that went away and she was left with better energy and better sleep. She is decreasing her dosage back to 3 mg, because that’s the dosage where she felt the best. Her pain is 90% better, and her endurance is better, as well as her mood. Her aphasia is better as well, to the point that people around her have noticed. 

This has been a summary of Laurie’s interview. For the whole story, please listen to the recording located at the link above.

Laura - US: Cancer (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Laura from the US shares her story about her grade 4 Glioblastoma and Low Dose Naltrexone.  Laura first noticed symptoms with cognitive difficulty and then disorientation. The hospital diagnosed the grade 4 glioblastoma and told her she would die by November (the year before this interview). Laura went through the full cycles of radiotherapy and chemotherapy which of course made her situation worse. Laura’s daughter found out about Low Dose Naltrexone and suggested that as a possibility to help and they found a doctor who would prescribe it. Pretty quickly Laura regained some quality of life and now walks over a mile a day, which before was impossible.  Low Dose Naltrexone is not a cure but has given Laura some life back, she is convinced the tumour is shrinking.  Laura says the Low Dose Naltrexone is worth trying as it’s essentially side effect free and has prolonged her life with quality time.

Larry - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Larry from the United States shares his Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Larry had his first attack in early 1991 and found that it was chocolate which caused the attack, yet this was not the root of the problem. Years later in 2002, Larry had 4 serious attacks which led to his admission to hospital and diagnosis with Multiple Sclerosis (MS).

Following his diagnosis his eyesight began to deteriorate and energy levels dipped. This damage to his health further motivated Larry to research an alternative treatment, which is how he came across Low Dose Naltrexone (LDN).

Following his success on LDN and regain of bladder control, Larry has convinced his father to also go onto LDN, who has had equal success.

This is a summary of Larry’s interview. Please listen to the rest of Larry’s story by clicking on the video above.

Kristin - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Kristin from the United States shares their Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Kristin was diagnosed with Multiple Sclerosis (MS) in 2006 but had been searching for a diagnosis for over 12 years beforehand, meaning she was 36 when she finally got her diagnosis.

Kristin mainly suffered from muscle pain all over her body and muscle spasms, the former of which had been a constant issue for a long time. Fortunately, she came across Low Dose Naltrexone (LDN) on Facebook and recognised the many benefits this drug has to offer.

“Why not try LDN? It’s cheap. It’s effective. It’s available. Why spend $30,000 a year on medical insurance to get a treatment that has a 30% chance of working when you can pay $30 a month for a treatment that can only do wonders.”

This is a summary of Kristin’s interview. Please listen to the rest of Kristin’s story by clicking on the video above.

Kristie - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Kristie from the United States shares her  LDN story  for multiple sclerosis. She first started getting symptoms when she was in her twenties. The doctors just kept telling her she was pulling muscles or she had an inner ear infection that was making her off balance. She then lost the feelings in her legs when she was in her 40’s.

Kristie's life quality before LDN was at a 3/10. Her quallity now is around a 9/10. She didn’t really experience any side effects from the drug. She’s been taking LDN for 8 years and doesn’t even need a cane anymore. 

Click the video link to hear the whole story.

Any questions or comments you may have, please contact us. I look forward to hearing from you.

Kimberly - US: Cancer, Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Kimberly, from the US takes LDN for fibromyalgia, and she also has a service dog (a cocker spaniel) who takes LDN for liver disease and liver cancer. 

She started her dog on the medication around a year ago, and noticed she could now walk, after spending a year without being able to do so, and is also surviving cancer and liver disease.

Kimberley has been ill with Fibromyalgia for around 17 years. Her symptoms were chronic fatigue at first, which eventually led to not being able to walk for three months after being incredibly active. 

Before taking LDN, Kimberly would spend the majority of her time housebound and depressed. She would also get mouth sores and a chronic cough along with a swollen face occasionally. Sometimes these symptoms lasting weeks upon weeks. Kimberly also mentions feeling pain as though someone has beaten her with a baseball bat. Exhaustion, lack of appetite, migraines and struggling to breathe also were felt regularly.

After taking LDN sourced from her own GP in California, she has felt more stable with an increased quality of life with no side effects.

Kimberly urges that people try the medication when asked if she recommends it saying “LDN can give them the quality of life.” She is very grateful for LDN, for herself and her service dog.

To view the entire interview, watch the video.

Any questions or comments you may have, please Contact Us. 

Kim - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Kim from England shares her Low Dose Naltrexone (LDN) story which she takes for multiple sclerosis.

She first notice her symptoms when she was 17, she had numbness in her legs and slight paralysis and was full paralyzed around 6 weeks later.

Kim went to the doctors and got diagnosed with MS, before LDN she couldn’t walk far and had no balance and couldn’t bend over and had to stay in bed.

After LDN she had a drastic change in life quality, she gained her balance back and was able to do everyday things again.

To listen to the full story click the video link.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. 

Kevin - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

I'd like to introduce Kevin from England, and Kevin has multiple sclerosis. Welcome

Kevin: Kevin. Hello, Linda,

Linda Elsegood: could you tell us, when were you diagnosed with MS.

Kevin: Diagnosed in 1997,

Linda Elsegood: right? Yeah. And how old were you at the time?

Kevin: I would have been 37 coming up to 37. Anyway.

Linda Elsegood: So, what led to your diagnosis? What was your life like before then?

And what kind of symptoms did you have?

Kevin: Um, well, I was at a Bible college. So some do a little bit of stress, I suppose. And I just started with pain in my elbow, which I went to the doctors and they said it was tennis elbow combat next week. And I'll give you an injection. I went back the next week, but by that time, my hand was just doing whatever he wanted to do.

So he said, I don't think it plans yourself and send me to the hospital where they did all sorts of tests that

Linda Elsegood: trauma you had in your hand. Um,

Kevin: I'm not sure what you call it. My fingers were just one shape. They were twitching and moving. I just had no control over them. Um, really the lower parts of my arm. I had very little control over.

Uh, he sent me into a hospital where they did all sorts of tests and finally came up with the position straight away. 

Linda Elsegood: That's unusual because most people tend to have to wait quite a while.

Kevin: I feel so sorry for people, but that must be horrible.

Yeah. I mean, if, if fall back, I did have problems with my eye. They just said that was probably an infection and Tom had to go away.

Linda Elsegood: So how long did you have MS before you learned of LDN?

Kevin: Um, well, I was diagnosed 97 lent about probably 2005, 2006 and spent the next two or three years trying to convince the doctor to prescribe it.

Linda Elsegood: Did your own GP prescribed it for you?

Kevin: I did eventually. Yeah.

Linda Elsegood: Very lucky.

Kevin: It was, it was, it was a lovely man had,

Linda Elsegood: sorry, are you still getting it

Kevin: on the NHS?

, I'm at the moment, but I did send you an email today because we've just moved. I had to give up work because of my MS. And we've moved out and changed doctor, and my doctor holds those. The one I spoke to was very sympathetic. Just tells me a lot to try and get me to a neurologist and questioning whether they can continue with my LDN.

Hopefully, I'll continue, but I don't know. I've got to try and take lots of information to it to convince her.

Linda Elsegood: Yeah. How has that LDN helped? What symptoms is it helped with?

Kevin: I was. Very, very urgent and going to the toilet and it's come knocked down a lot. I was getting, you know, five, six times during the night. Now I, if I get to one-story night, I'm not the most. Sometimes it doesn't get too possibly.

Linda Elsegood: Yes. Well, I used to get up six times a night, and I guess at once, and I still feel hard by, I like my sleep that I really shouldn't complain once it's not handled there is that my mother always, always gets it twice anyway, so she's worse than me.

Kevin: Yeah. It's an that's affected my leaving away. Well, now something that will be enough. I'll go to bed. A good night's sleep. You can wake up feeling just as tired about something could happen.

Linda Elsegood: do you feel that the Fatigue you use to?

Kevin, I'm not sure how. I think I probably come back to feeling as fatigued as they used to. Certainly, initially, it helps a lot with fatigue. Hmm.

Just cause I've got work or not. I want,

Linda Elsegood: did you have any initial side effects when you started LDN?

Kevin: I did no, no dreams or anything. I was looking forward to my dreams, but I never got it. Well, I don't want to dislike it. Would it be nice? Not

Linda Elsegood: so what's your level of fitness now?

Kevin: Um, I can still walk in the house.

And I can get the time side, but if I go sort of reality beyond the gate, I can get to my car, or I need my wheelchair.

Linda Elsegood: Did you ever have any cognitive problems?

Kevin: No, I don't think so. No. No.

Linda Elsegood: What would you say to other people with MS. Who to thinking of trying LDN? 

Kevin: Tell them it's really worth trying.

And I say, even if it's just for my sleep, I'm certain if I think deeply other, even if it's just with my toilets in there, nothing is worth me taking it. And there are so many things that come out that I advise anybody I speak to try and get the,

Linda Elsegood: what about your eyesight? 

Kevin:  is back to normal.

Linda Elsegood: Yeah. What about your hand? 

Kevin:  that went back to normal. Thirdly, quickly, I had a course of steroids and went back, although I've still got numbness in my hands and my feet, it came off at the same time.

Linda Elsegood: So will you be continuing to take LDN?

Kevin: I will definitely. Yeah. I don't want to stop taking it. Yeah. If I'm open, I'll convince the dumpster to apply by October looking at all the options tonight, because I, I do also feel that eight days old dating back, even though my wife would dying, I know I'm feeling a little bit worse and I lost two or three years ago.

Linda Elsegood: Good. Well, thank you very much for sharing your story with us.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Kevin - England: Cancer (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Kevin from England, takes Low Dose Naltrexone (LDN) for Chronic Hepatitis, which then developed into Hepatocellular Carcinoma.

Kevin found LDN through a friend and his wife, who have been taking LDN for months, saying they are now symptom free. Due to LDN not being official within the NHS, Kevin managed to get some LDN privately. Now, two and a half years later, Kevin has had no further recurrences.

After Kevin had a liver transplant, he no longer takes LDN due to him being prescribed immunosuppressants. 

Although, Kevin does recommend Low Dose Naltrexone (LDN) to other people, his mother and friends. He also quotes that it probably did help save his life from his cancer journey.

This is a summary to listen to the entire interview by click the video link.