LDN Video Interviews and Presentations

Kate - US: Multiple Sclerosis (MS), Feb 2013 (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Kate from the United States was diagnosed with Multiple Sclerosis (MS) in 2004 at the age of 54. She experienced severe back pain, enough to put her in a wheelchair. After wrongfully diagnosing Kate with a trapped nerve in the neck, and operations cancelled, they found a lesion.

After searching the internet for medication that wasn’t Copaxone, she found Low Dose Naltrexone (LDN). Kate was prescribed it by her specialist neurologist and has been taking the medication for eleven months; noticing improvements in her fatigue and saying she feels stronger. It has allowed Kate to return to work after many years off. Initially, once upping the dosage to 4.5mm, she felt stiffer, so consequently lowered it down to 3.5mm.

Kate urges people that are debating trying LDN, to “give it a shot” and talks about the fact the medication is affordable.

This is a summary to listen to the entire interview by click the video link.

Kat - US: Fibromyalgia, Interstitial Cystitis, RA, Pain (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Kat from the United States shares her story of how low dose naltrexone (LDN) has helped her with fibromyalgia and other chronic pain conditions, including interstitial cystitis, arthritis, and a displaced SI joint.

Kat first developed fibromyalgia, arthritis, and interstitial cystitis in the years following an automobile accident in February of 2004. Her symptoms include extreme fatigue, constant headaches, different odd pains that would come at random, as well as bladder and gastrointestinal problems. She learned about Low Dose Naltrexone (LDN) while searching for treatments for her fibromyalgia. She brought the information packet about LDN to her doctors, who prescribed it for her as it seemed like it was unlikely to do any harm, and it could help her condition.

When she began taking LDN, any side effects were very very slight compared to the reactions she had to other medications her doctors had prescribed. She had a little stomach disturbance and some strange dreams, but those side effects were very short-lived. 

LDN has given Kat decent sleep, a lot more energy now that she’s off narcotics, and she has a clearer mind. Her pain is very much reduced and much more manageable than before. She knows that the LDN provides significant relief because about a month ago, she forgot to put the LDN in her pill organizer, and within three days without LDN, she felt terrible. And not only is the LDN helping with her various pains, but she’s also been sick much less often.

Kat started at 1.5 mg per night, and gradually increased her dosage to 4.5 mg each night. However, she has found that her best dosage is 4.5 mg morning and evening. Kat notes that while she felt a difference on LDN fairly quickly, some people take longer, even months to feel better, so it’s best to be patient when you start taking Low Dose Naltrexone (LDN).

This has been a summary of Kat’s interview. For the whole story, please listen to our recording at the link provided above.

Karen - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Karen from England takes LDN for multiple sclerosis (MS), where she was diagnosed in  November 2006. She had difficulty walking and falling over, as well as bladder problems. Karen first started using steroids at the beginning, but then went on straight to Low Dose Naltrexone (LDN) medication; where she hast had many problems since!

She rated her quality of life a 7 when the pain and problems began, but now rates it an 8/10.

Karen heard about LDN online, unfortunately her Neurologist would not prescribe Karen with the LDN medication, which she has now successfully been taking for 18 months. 

Karen had no side effects on the LDN medication, but now realises she dreams a lot.

Karen advises people to go for LDN, she feels as though it does no one any harm, and does the world of good! She has even called it a “Wonder Drug!”

To view the whole story, please follow the link.

Any questions or comments you may have, please contact us. 

Karalyn - New Zealand: Myasthenia Gravis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Karalyn from New Zealand shares her Myasthenia Gravis and Low Dose Naltrexone (LDN) story. 

Karalyn started getting symptoms of weakness in her legs to begin with and she suffered from unexplained fatigue, her doctors treated her for Fibromyalgia initially but the medication made her worse. Karalyn saw a few neurologists while trying to get a real diagnosis but they still weren’t sure what was going on - this went on for years. Her eyelids were drooping and her speech became slurred. 

Eventually, she got a diagnosis of probable Myasthenia Gravis. Karalyn researched herself, listened to other people’s experiences and eventually found Low Dose Naltrexone (LDN). 

Karalyn took her first dose of 1 mg and woke up the next morning feeling virtually normal again. She increased her dose as directed and says that her progress was absolutely amazing and she had no side effects at all from LDN other than a couple of nights of vivid dreams and disturbed sleep but that passed quickly. 

Karalyn got her life back after taking Low Dose Naltrexone and is very grateful that she found it. 

 

Linda Elsegood: I'd like to welcome Kaija from Germany. And Kaia has multiple sclerosis. Would you like to tell us your story, Kaia?

Kaija: Oh, hello? Hello. Uh, but I had my first symptoms here in Germany, and it was just after I left school. Um, and, and the sort of, you know, stuff handy for stuff in your life.

Um, and, uh, that's how. Turned out

Linda Elsegood: what symptoms. Did you have at that time?

Kaija: Um, I had, uh, my very first symptoms, uh, was, uh, a numb area around my backside. It's really difficult to explain. Isn't it? Um, yeah. And then, um, I went to doctors, and they couldn't find anything. At first. And, uh, then, uh, I had the move to England, and of course, it was, um, quite an exciting time and, uh, you know, really unsettled and, uh, Uh, I then had, uh, many more symptoms and there weren't kind of symptoms like in the book. I could walk very well. My, uh, my sense of balance when, uh, the, um, couldn't really walk stairs very well. Um, what else? Anything I had just about everything. In the book, it was very easy. And I went to a doctor, and he'd known MS.

You had patients before. And he said, well, that looks very much like he was honest about us, which I'm very happy about. 

Linda Elsegood: so how old were you at that time?

Kaija: 21

Linda Elsegood: And how that affects you emotionally?

Kaija: I was devastated, you know, I was just about to start a new life.

I just finished school, you know, uh, and you know, I was going to embark on a new life. Now with my partner at the time. Yeah.

Linda Elsegood: So where did you go from there? I mean, you were diagnosed, and you had all these awful symptoms.

Kaija: I stayed at home for a while. I didn't do much, but after about a year, I decided to go to college.

Right. Uh, and, um, uh, And I had this idea. I wanted to study fashion and fashion design, and I went to college and right.

Linda Elsegood: So were you given any medication at that time? Uh,

Kaija: I can't remember? I think so.

Linda Elsegood: Did your MS . Progressed from there or did it, was it relapsing and remitting?

Kaija: um. For a while. Yeah, it was sort of the first year, uh, it happened quite often and, uh, and then the photos tape it down, you know, and it went into, uh, sort of secondary progressive offers out, you know?

Linda Elsegood: So what were you suffering with? You said everything in the book. I mean,

Kaija: I can, I can read out because I broke down a few notes. Okay. Uh, my, my business was affected my balance, my coordination. I felt numbness in some parts of the body. Um, my speech was affected, which was very handy as I, uh, sometimes in language, school talk. And, uh, it's was a bit difficult time, uh, anyway, uh, my walking, um, that's about mainly what was, yeah.

Linda Elsegood: Yeah. What about your bowel and bladder were they, okay.

Kaija: Um, my bladder is in fact, uh, I, if it was at that time as well.

Linda Elsegood: What about fatigue?

Kaija: Yes.

Linda Elsegood: Okay. So life was quite difficult. I take it for you.

Kaija: Yes. Yeah. Yeah. And they end up the first year. But after that, uh, it's sort of, yeah. You know, as you know, you know, kind of seems to disappear and you keep on hoping that it does.

And uh, you know? Yeah.

Linda Elsegood: So when did it start to come back again?

Kaija: Uh, late run-up after about five years.

Linda Elsegood: Right. And then what Happened?

Kaija: Um, Hmm, hang on. Let me think. Uh, I've gone back to Germany. I started work. Yes. I was at work for a few years, and everything seemed to be fine then. And, uh, then I, uh, I felt weaker, you know, my fatigue set in and of course, uh, I worked full time. Which was a, it hard for that. Um, later on I started taking time off.

Yeah. I spent my holidays to be ill, but you know, I never really went away or anything out of work sort of four days a week or something.

Linda Elsegood:  what were your symptoms like before you found LDN that they all come back game?

Kaija: Um, well when, um, Hmm, the LDN was a lot later, you know, I found out about 2004. Which was, uh, quite a long time after I fought for the, you must, you know, I started in 1980, so 24 years later.

Um, so I actually write about it, uh, in, in your magazine, right? Uh, uh, and, uh, And in fact, it was, my husband was and said, well, why don't you have a go and try? I said, well, you know, I don't keep trying and hoping that things go back to normal or anything, you know, sort of, uh, I lived life, Metro factually sort of thing, you know, you know, try to, um, Within the boundaries of this illness.

Linda Elsegood:  what were you like at that point?

Kaija: Oh yeah. That's what you want to know. Yeah. Sorry. I'm sorry. Um, well mainly affected by the fatigue. Um, my walking wasn't very good. Yeah. Which isn't very much now. Because I don't walk at all. I use a wheelchair. yeah, and the, the coordination, you know, the hands, I've always been very good with my hands and artistic and everything. And the fact that anymore.

Linda Elsegood: Yeah. Upsetting then, isn't it. When something, you know? Yeah. It's on him anymore. so your husband tried to get you to take LDN. What happens? How did you manage to obtain it?

Kaija: It's really good. Mmm. Um, I feel stronger. Sorry.

Linda Elsegood: Sorry. How did you manage to get the prescription?

Kaija: Um, I've got a friend doctor. No, my husband's got a friend who's a doctor. Right. Who agreed to prescribe it for me.

Linda Elsegood: Was it easy to obtain the LDN in Germany?

Kaija: Yes. Yeah. Right. You know, we have heroin addicts here as well, so, you know, they pay cause don't, they.

Well, they take it in

Linda Elsegood:  So, um, what were your symptoms? Did you have any initial side effects when you started taking

Kaija: Netherlands? It's wonderful. And in fact, I, uh, I picked off my MF friend. We live quite far away, but, uh, uh, I, I, I told her about this, and she's tried it, and she's feeling much better as well.

So because we're both sorts of a 30 year, um, experience, uh, I miss people. So, um, it's really great.

Linda Elsegood: So what did you find it did for you?

Kaija: Um, Well, I feel stronger and, uh, feel well, you know, when your sense of balance is better, and when it wasn't, you feel more grounded, you know, um, Even though I can't walk. I think, but if I, if I say help, I can say top without holding on.

Right. You know, that sort of thing, that, that wasn't like that all the time. So it helps, uh, it's improving my bladder control, physical things, dental, well being, uh, wrote down. Basically, the nation. My handwriting is legible now. Oh,

sorry.

Linda Elsegood: So your handwriting is better.

Kaija: yeah, it's, it's metrical now it doesn't even look that bad. 

Linda Elsegood: So would you be able to draw again

Kaija: now? Yes, I do. Do you? Yeah. Well,

Linda Elsegood: fantastic.

Linda Elsegood: So that must be quite a lift for you.

So you, um, will be continued taking indefinitely?

Kaija: definitely. Yeah. And I've, I think I've taken it four or five years now. Seven years.

Linda Elsegood: Seven years. Well, that's good.

Linda Elsegood: So what would you say to other people in Germany who would

Kaija: have a go

Linda Elsegood: and how easy and how easy do you think it would be for them in Germany to obtain a prescription?

Kaija: Well, if you have a front of Patrick doctor, uh, it works, but you know how you can get it. Uh, if even any other doctor can prescribe it for you. So you could ask your friendly dentist to prescribe it for you. Okay.

Any a doctor can, can, you know, and in fact, uh, some I, um, I joined some, um, Uh, the cold and internet type.

Yes, you're in Germany. Uh, and some, some somebody says, why don't you try your dentist? You know, my dentist is my friend, and I asked him, and he did, you know, so I thought that's a good idea. I have to try. Yeah. So I tried, and I got a prescription, so it's no problem.

Good. Well,

Linda Elsegood: is there anything else you'd like to add?

Kaija: Mmm, no. I can only for commend to have a go. Is it, is it really, if it's my a friend who tried  it she calls it a wonder drug.

Linda Elsegood: maybe you could ask your friend if she'd like to share her story with us.

Kaija: I thought I could ask her,

Linda Elsegood: does she speak English?

Kaija: Um, I think so.

Linda Elsegood: Okay. Well,

Kaija: I'm not sure whether she feels, uh, she feels she can do it well enough, but I can let her know.

Linda Elsegood: Okay. Well, thank you very much for sharing your story with us.

Kaija: Thanks very much for letting me, Ferris.

Linda Elsegood: Thank you. Okay. And Kaija, before you go, um, if anybody in Germany wants to talk to somebody in Germany, who's taking LDN. Would you be willing to do that?

Kaija: Oh, yes. Yes.

Linda Elsegood: Okay. That would be

Kaija: great. Yeah.

Linda Elsegood: Thank you very much.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Julie - US: Hashimoto's Thyroiditis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Julie from the United States takes LDN for Hashimoto's thyroiditis after noticing issues after the birth of her son, at the early age of 30. Julie started experiencing some fatigue, constipation and eczema. And then after the birth of her son, she was getting the flu a lot; feeling exhausted. Julier found out that she had the MTHFR gene mutation. Which also further hinders your body's ability to detoxify.

After 12 different physicians that never helped her. Julie told them what her symptoms were, her theories, and that her thyroid was not well. They carried on telling her she was fine. 

Julie has been very disappointed with endocrinologists, after her strange experience with her antibody testings. During this time she hasn't been able to find one to prescribe Low Dose Naltrexone medication (LDN). Even after taking it and telling an endocrinologist that it helped, they still wouldn't prescribe it or even expressed interest in learning about it.

Julie felt the difference with the Low Dose Naltrexone medication (LDN) immediately. She felt perkier, better moods, and had more energy .

Julie’s advice to people who have Hashimoto’s is to try LDN, work on your diet, eliminating gluten and cutting down on superfoods. The LDN medication has also made Julie happier, she feels a world of a difference with less anxiety and depression also.

Please watch the video for the full interview!

Any questions or comments you may have, please contact us. We look forward to hearing from you. 

Julie - England: Fibromyalgia, Lupus (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I’d like to introduce Julie from England who takes LDN, fibromyalgia, and lupus. Thank you for joining me, Julie.

Julie: That's okay. You do it for pleasure.

Linda Elsegood: Could you tell us when you first started to feel unwell?

Julie:Um, it was about 1999 when I looked back. Um, and it was just, I used to get swelling in my left foot. I probably had it about free time.

Um, and then it just goes away. It was when I was really tired, and then it would go away when I sat and, um, You forget about it, you know, you just, um, a secret about it and seeing, oh, I don't know. Maybe he does a dummy or something, but then it went on to about 2006. I got pneumonia. Um, and I was hospitalized for eight days.

I couldn't find why it wasn't bacterial. Um, and in the end, I just kept here on my own. And then. After that, I had a lot of pain, and it's a long time to get over it. Um, and then they said I had side the myalgia, and that went. I was diagnosed in 2007, 2008, with fibromyalgia. And then I just used to have a flare if I would feel if I had a cold, if I had an upset stomach, just as that was passing, I would be then laid completely bedridden, total pain, complete from head to toe And couldn't move my head for about four or five days after being ill.

After that, he called after having an upset stomach and, um, I still, they said it was fibromyalgia. Um, and that went on actually until 2012. When by that time, I was losing weight. Um, I was very, very. Nearly lost my job. Very nearly just come on to it by the tips of my fingers. Um, I had just gone part-time. They made me go part-time because of side myalgia, but, um, I was still just cleaning into it and, um, At the end.

And then I started getting really bad man falses. And by the end of 2012, just at the beginning of 2013, I signed me, got diagnosed with lupus, add alone, along with the side, the mild child.

Linda Elsegood: And before you discovered that LDN, what would you say it now? Which day was like for you.

Julie: I don't remember what day it was going to be like. Um, it was, yeah, might have a good day, but mostly it would be staying on the sofa. Um, not knowing what was wrong. No. You know, just in my, in my head, I want you to do so much, but I just could not physically do it. I just did not do it. Um, in a flare during a flare, you know, all bets were off, but when I was not in a flare, I would still get pain, um, everywhere, even driving with NITSA, just, um, you know, Just get ready to go out and then I'd realize that I'd get to the car.

And then we like actually I've left from the upstairs, and I have to go back to the house. And that would be such an effort. Every day was a struggle good days. And bad days were struggles. I had some better days where I've got a bit more done, but my quality of life wasn't very good at all. And like I said, you know, I was on, I was on the verge of losing my job.

Linda Elsegood: So at that time, if you had to score your quality of life on a score of one to 10 and 10 being the best, What would it been?

Julie:I suppose three, four. I still I'd hoped that it was par. Yeah. Now I still had hope, but, um, yeah, I was very, very down and. And it wasn't depression. I know it wasn't depression because I've not, I don't think I really suffered from depression. I know that depression can be linked with lupus, but for me, it was because of my situation because.

I just couldn't shake it off. I just couldn't shake it off. And you know, you are asleep and think I'll just have a little shape, and it'll be a bit that I'm going to wake up, but I never was. I never was. The fatigue was always there. Pain playing in a net, Lisa random, you know, one day you just wouldn't be able to lift your arm.

It's so random, and I never knew what any day was, you know, I could never plan anything. It would be it depending on how I am, you know, it was just, couldn't make times really, um, and had to cancel things. And

just not going out because. That was my quality of life. You know, it just wasn't, um, letting people down and then feeling that feeling bad because of that. And that would get you down, but I couldn't help it. I just could not help it. I could not do very much at all.

Linda Elsegood: Yeah. Okay. So how did you hear LDM?

Julie: I first heard about it on the internet, um, actually on the health and looked site. Um, the lupus health on Luxilight, which I joined. And I stood up to Chris Steele's, um, video or DVD on YouTube. And I watched that, and I thought, well, I've got to investigate this. So then I just really started investigating, and yeah, I learn for it.

Linda Elsegood: And when you first started, did you notice any introductory side effects?

Julie: I would say, and I would want, this would happen because when I first started here, I was still on steroids. I was on steroids for lupus because other medication that had been on methotrexate for one hadn't agreed with me for that to come off of that.

And I was on steroids. So 10 milligrams a day, um, So I continued to take steroids and started LDN very low. And initially, I'd say maybe three days, three, maybe four days I was on this would happen by my prescribing doctor. The pain got a bit worse. Um, but I persevered, um, And then just slowly, very gradually began reducing steroid, letting it stabilize and up in the LDM, but it was a gradual process.

And I did, I would say about the second week of taking the LDN. I got a cold normally. It's the cold would be subsiding. I would be bedridden with pain, really, really raked with pain everywhere. But I managed to carry on going to work, which for me was fantastic. It was almost like a normal person having a cold.

I managed to work for it. I was tired, and you know, to rest when I got in from work. But. It was great to be able to, to not go into the fare. I didn't go into the flair. And that was the LDM working. I know it was 2000, 2008, any little cold, I, you know, just not used to fix.

Linda Elsegood: So how long have you been on LDN now?

Julie: I started LDN, and I know the day if my mom's birthday or on March 11, 2014.

Okay. And I haven't had to go and work.

Linda Elsegood: I mean, you haven't been on it that long. I mean we're now June.

Julie: Yeah. So like, yeah, exactly. And are now still it free to about the power. Four or five weeks, they were afraid. I'm just an LDN now. And I'm high blood pressure tablets. I still take those. But other than that, there's the occasional occasionally if I do still get pain, but I can cope with it.

It doesn't wear me down. It's all manageable. If I get, at the bad time I will take ascent or paracetamol, but that's it that's the most touch it. That's what I'm taking now.

Linda Elsegood: Okay. And on the score of one to 10, for the quality of life, 10 being the best, what would it be now?

Julie: It's eight or nine. I've still got lupus.

Um, and like you said, it's early days. I'm not cured, but I am living again previously. I was not living. I was just existing, and I can plan, I can plan things. Um, Lastly comment on a union conference for five days managed to do all that previously. I couldn't have said I'll go somewhere. We've worked for five days because I couldn't, I wouldn't have known how I was going to be each day.

So I am living now, and it's great. I'm so I just really, really. 10, if you to give it a try, you've got absolutely nothing to leave and every sheet again,

Linda Elsegood: thank you very much for sharing your wonderful experience with us. It's really amazing. Very inspiring. Thank you.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.
 

Julie - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Julie from England shares her LDN story she takes for multiple sclerosis, she started showing symptoms around 2002, she was feeling fatigues and having balance problems and couldn’t see very well either. She was around 57 when this first started. She had side effects from LDN that included bladder problems and constipation. She said with a healthy diet it settled down and it ended up going away. Her life improved after being on LDN and she recommends it to anyone who needs it.

Click the video link to hear the whole story.

Any questions or comments you may have, please contact us. I look forward to hearing from you. 

Julie - England: Chronic Fatigue Syndrome (CFS/ME) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Julie from England shares her Chronic Fatigue Syndrome (CFS/ME) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Julie first noticed symptoms of Chronic Fatigue Syndrome (CFS/ME) around the age of 53 when she had a respiratory infection which she seemingly was unable to fight off. Following on, she suffered from severe chest pain and found that it required incredible effort to go out or go anywhere as her energy levels were so low.

Now that she has discovered Low Dose Naltrexone (LDN), her overall energy levels have increased again and the pain has been dramatically reduced. This rapid increase in her quality of life means that she is now able to spend more time with her family and live her life the way she wants to, unrestricted by CFS/ME.

This is a summary of Julie’s interview. Please listen to the rest of Julie’s story by clicking on the video above.

Julie - Australia: Hashimoto's Thyroiditis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Julie is from Australia and takes LDN for Hashimoto’s disease. She was diagnosed in 2007, but looks back on having symptoms several years before. She was tired all the time, losing her hair, had dry skin, couldn’t eat well and living on one meal a day, had aches throughout her body, started to lose strength and muscle, depression, had brain fog almost every day, frequent urination, constipation, loss of balance, dry eyes, blurred vision, cold hands and feet – her hands would go numb in air conditioning - sensitivity to heat, tightness in the throat, neck pain, feeling her head too heavy for her neck to hold up, and limited neck range of motion. She had an internal tremor that made her feel weak; and air hunger as if not getting enough oxygen despite deep breathing. She had low blood pressure and body temperature.

The symptoms started to impact her job and social life. An ultrasound showed 2 nodules on her thyroid and a shrunken left side of the thyroid. Initially she refused medication, thinking she could get better on her own. She went to a naturopath to try for a natural way to heal, but 12 months later had to go on medication. She chose natural desiccated thyroid and got some good from it balancing her hormones, but symptoms didn’t go away no matter how much doctors tweaked her medication. She saw lots of doctors over 5 years, but remained debilitated by the symptoms. She attributes it to the hormone not actually entering the cells.

About 18 months ago her doctor recommended LDN and Julie researched it and decided to try it. When she started she quickly was able to reduce her thyroid medication. But then she had a bad virus lasting 3-4 weeks; then got Candida, which she heard can stop LDN from working. She got fantastic support from a Facebook group.

Julie feels her improvements from LDN are fantastic - from being sad, debilitated, and tired, to loving life and cheerful. Over the last 18 months she has gotten about 50% of her life back, and knows she’ll continue to get better. She feels she started at a quality of life of about 2 on a 10 point scale, and currently is about 7

She tells others about how good it is, and gives much credit to Deb who runs the Facebook group on beating Hashimoto’s disease with LDN.

Summary of Julie's interview, please listen to the video for the full story.

Keywords: LDN, low dose naltrexone, Hashimoto’s, thyroiditis, thyroid, thyroid nodules, natural desiccated thyroid, Candida

 Any questions or comments you may have, please contact us.