LDN Video Interviews and Presentations

Gill - Wales: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Gill from Wales was diagnosed with Multiple Sclerosis(MS) in 2000 after experiencing numb feet, pins and needles sensations and bladder issues.

She heard of Low Dose Naltrexone (LDN) through articles about a lady with MS trying Low Dose Naltrexone (LDN) , so tried to get her GP to prescribe her it.

She was eventually given LDN through a private prescription. Upon initially taking the medication, Gill experienced “terrible dreams.” She has also stated that symptoms had gone; although she still cannot walk properly, her mental health has drastically improved.

Gil - US: Psoriasis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I'd like to introduce Gil from the United States who use LDN for psoriasis. Thank you for joining me, Gil.

Gil: Thank you.

Linda Elsegood: Could you tell us when you first noticed there was something wrong with your skin?

Gil: Um, I was 30 years old. It was about 25 years ago, and I started to getting psoriasis on my forehead, and I thought it was just some kind of a fungus or something.

So immediately I went to the doctor, and he said, Nope, it's psoriasis. And it's going to get worse. Every year for yourself. Yeah. Yeah.

Linda Elsegood: So what treatments did he give you apart from that little snippet of information?

Gil: He had depressing information, but, um, he gave me some creams, uh, to put on like topical that helped it a little bit, but, um, that was it.

Uh, but for the last 25 years, I just never took no for an answer. Just keep trying different things.

Linda Elsegood: What would you say you've tried?

Gil: I think I've tried everything. I haven't tried UV light, but I tried, um, I've had like ten different acupuncturists over the years. I've done your Vedic. I've done different diets.

I've done different supplements. I bought a sauna. I did the fast exercises, special foods. Um, Chiropractor, everything that anything that anybody ever said, I just did all that stuff. And, you know, things helped a little bit, but nothing made it go away. It just, it did keep getting worse every year.

Linda Elsegood: So could you describe for us and explain, um, what areas on your body were covered before you, um, discovered LDN and how that impacted on your life?

Gil: Um, I was kind of, you know, it was like, it was never like on my face, so I could kind of cover it in, cover it up the whole time. Uh, but it was always on my, my legs, my thighs, my knees, my elbows, buttocks back, uh, scalp, um, you know, front and back, even though the front of the body. Um, and then through the years it would just like it.

Sometimes it would go away and then come back worse. Um, And then it would like sometimes he would get a rash and then the rash would turn into psoriasis and whole part or parts that you had reached. Um, so, uh, the impacting my, my life would be the first thing is just feeling itchy all the time. My, my skin would hurt.

Uh, we were to have a lot of, um, psoriasis if I had to sit on it or lean on it. Um, that was painful, sleeping at night was uncomfortable. Um, and then also always was covered up cause I was, um, I just felt very self-conscious to be out in public.

Linda Elsegood: So what about swimming or anything like that? Did you ever do those kinds of activities?

Gil: Less and less, um, you know, the first ten years or so. Yeah, but the last 15 years, um, haven't gotten like massages. Haven't done a lot of swimming, the public hasn't gotten to like tropical places or beaches where I'm wearing shorts and t-shirts, that was just kind of taken away year by year and more, more and more, um, out of my life, without even noticing it.

You just kind of like. You just don't do those things anymore. And don't notice how much your life has gotten smaller in some ways.

Linda Elsegood: Yeah. Did you experience any other symptoms other than the skin with your psoriasis?

Gil: Uh, just the skin. Um, I was lucky it didn't turn into arthritis. Um, it was just skin, uh, flaky and then burning sensations on the skin, but that was about it.

Linda Elsegood: And how did you hear about LDN?

Gil: Um, actually you know, it's from not giving up. Um, I kept asking different people and different doctors and I was, um, in Yuma at a friend's party. And there was a doctor there, um, from Australia that practices in Mexico. And I sat down with him. I said, well, what can we do about psoriasis?

And his first reply was like. There's nothing. It just keeps getting worse, this nothing. And then he stopped, and he thought about it, and he went, you know what. LDN. And he looked it up and has been working with cancer patients with LDN, and I think other autoimmune conditions as well. And you looked it up, and psoriasis is on there.

So, um, he gave me a prescription for LDN that day.

Linda Elsegood: How long ago was that? 

Gil: That was about ten months or nine months ago.

Linda Elsegood: And when you first started, did you notice any introductory side effects?

Gil: side effects, you know, um, not sleeping the first week. It was harder for me to sleep, but it's because I had so much energy.

Um, all the side effects I had were really. Great. I mean, um, more mental focus, um, a lot more energy. Um, I have to tell you, as I said, I took it at night and then the next day had the most horrible bowel movement. It was black and smelly, and it was like all the toxins from my stomach came out, and it was the next morning.

And I think LDN just started working then. Wow.

Linda Elsegood: And how long did it take before you started to notice a difference on your psoriasis?

Gil: It took about six months to notice the difference. Um, but I've noticed so many other positive changes with me, with my body and outlook on life and energy, from when I started, um, the LDN that I was just very hopeful.

I felt like, you know, this is going to do it. And sure enough, six months later, I could just see, wow, the patches aren't angry anymore, and they're not fighting back so much. And my skin feels better.

Linda Elsegood: And, and how would you say your skin is today? Ten months later,

Gil: 10 months later. It's about 70% better. Um, it's not angry.

It's not fighting back. It's not angry. Um, I still do the, uh, topical creams. But I don't need to stay on them as much, whereas before it's like, Oh, you have to do it twice a day. You have to stay in everything. Now it's more like a little bit of a kind of irritation. I have to still take care of this. Um, but it feels like it's not there.

I still have like 30% of it, but it's just, it's just going away. Wow.

Linda Elsegood: So have you got areas of your skin that had psoriasis that actually now looks like clear skin?

Gil: Yes. Yeah. There are areas on my, my legs were, um, you know, six months ago or so they only were crusty. They were dark. They were inflamed.

And the Queens weren't helping. I mean, it was just, it was just getting worse and worse and, um, They're gone completely. I mean, it's pink, beautiful, smooth skin. And also I realized like, after a few months of taking LDN, I already realized that I wasn't getting the itchy feeling and the rashes weren't appearing.

So there was a certain level that I was already taken care of that.

Linda Elsegood: Well, if we have a very good summer next year, maybe you'll go swimming.

Gil: Yes, definitely. Actually, I already got a massage. I haven't had one in 15 years. We went to Hawaii, had a vacation at shorts and tee-shirt on, and I got a massage, and I was just ready to cry, and I'm ready to cry now. It's just so amazing.

Linda Elsegood: Wonderful. Make it so much easier for you to sleep anyway, without having the itching and the burning and yes, all that is amazing. And what would you say to other people with psoriasis who are very sceptical about LDN? I know we spoke before the recording, how a lot of people with psoriasis had tried everything and they're just fed up with hearing about new remedies.

Gil: Exactly exactly what I, I don't know. I think the first thing is, is you have to keep trying different things in order to find a solution. And the second thing is that, uh, you know, LDN worked really good for me and the side effects were minimal and positive. I mean, even if I don't have sort of fits, I keep taking LDN for everything else that is, that it's giving me.

Linda Elsegood: I mean, I don't want to give anyone. False hope we know that this is actually working for everybody, but for the majority of people, they do notice some improvements. So, so that itself is certainly worth trying with the lack of side effects and it not being expensive, et cetera, et cetera. Oh, that's really inspirational. And thank you so much for sharing your story with us. I do appreciate it.

 

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

George - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

George from England shares his Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) Story on the LDN Radio Show with Linda Elsegood

George was diagnosed with Multiple Sclerosis (MS) when he was fifty years old. The fatigue limited George’s ability to complete simple tasks and was offered no medication when he was diagnosed.

“There was little hope at the beginning that I would improve. My GP didn’t offer me any medication and insisted that we see how it goes. Though, as soon as I started Low Dose Naltrexone (LDN), things changed.

LDN has solved my bladder issue, helped me with my sleep and I can now go on longer walks than I used to. I feel like I’ve got my life back.

I would like to recommend LDN to anyone who’s thinking about trying it, because it’s very low risk and it could yield great results for anyone who tries it”.

This is a summary of George’s interview. Please listen to the rest of George’s story by clicking on the video above.

Gary - England: The Sinclair Method for Alcohol Addiction (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Gary from England shares his Alcohol Use Disorder and Naltrexone (LDN) experience on the LDN Radio Show with Linda Elsegood.

Gary’s issue with drinking began in the nineties when social drinking began to creep into his private life as well. He states that he used to drink a few beers just in order to sleep, which began a vicious cycle leading to more beers and more money being spent.

His weeks would be made up of constant hangovers which impacted upon his ability to work properly. Recognising his problem, he began to research for a solution which is when he found out about how effective Low Dose Naltrexone (LDN) can be against alcoholism.

During this interview Gary discusses “Alcohol Use Disorder” (AUD) and how successful The Sinclair Method is in treating the problem. Simply explained, the patient takes a 50 mg Naltrexone tablet one hour before drinking alcohol. It negates the effects and over time, reduces the addictive aspects. She explains how this is safe and inexpensive and that the success rate is 78%.

This is a summary of Gary’s interview. Please listen to the rest of Gary’s story by clicking on the video above.

Gary - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Gary from the United States shares his Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Gary was at work in late 2011 when he first noticed his Multiple Sclerosis (MS) symptoms when the ends of his fingers began to feel very numb and tingly. The next day it was his hand, and he went to his GP who turned him away for no signs of a stroke. Within a week it was his whole arm, yet his local practice refused to diagnose him with MS.

Many years later after suffering minor seizures and increasing fatigue, Gary began to research his own MS treatment which is when he came across Low Dose Naltrexone (LDN). Gary praises the effect LDN has had on his life and how it had significantly reduced his reliance on his girlfriend.

This is a summary of Gary’s interview. Please listen to the rest of Gary’s story by clicking on the video above.

Garri - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Garri was diagnosed with MS aged 40. She is now 60.

In 2008 a shoulder X ray showed demyenolating disease but she was wrongly diagnosed as having Merniere's Disease. As an athlete she used a chiropractor. When nerve pain in shoulders, neck and back began and she had numbness and tingling in her extremities she assumed that playing too much tennis was to blame. After experiencing eye twitching an MRI scan revealed brain lesions - symptomatic of MS. She didn't want to take strong, conventional drugs, risking severe side-effects, but chose Low Dose Naltrexone after doing some research.

Following an episode of unrelenting trigeminal neuralgia pain when she asked her GP for LDN but was refused, she changed to a sympathetic doctor  who prescribed it. After only one week the pain had diminished and a month later it had completely gone. The eye twitching also stopped.

She has always had a good diet and exercised regularly. She firmly believes that for LDN to be effective it's imperative to follow a healthy regime. The emphasis should be on strengthening the systems that  keep us well whereas modern medicine focusses on their suppression. 

This is a summary. To listen to the whole Garri's Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) interview please click the video link.

Gabi - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Gabi from the United States shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) Story

Gabi's symptoms began in 1994 during a trip to Italy when she suffered a severe episode of vertigo and was taken to hospital where the diagnosis was inconclusive. It was assumed to be caused by a virus. Two days later it had passed.

Two years later she experienced numbness in her fingers but after two weeks it had gone. Then, in 2000 after her son was diagnosed with cancer she collapsed, sustaining a head injury which required stitches. An MRI scan revealed plaques in the brain. The neurologist advised annual MRI scans.

In 2004 she suffered optic neuritis and although a spinal tap proved negative she was given a Multiple Sclerosis diagnosis. She didn't want to take the strong drugs prescribed so spent 18 months researching and discovered Low Dose Naltrexone (LDN).

In 2005 following an episode of leg weakness she saw a neurologist who refused to prescribe LDN, but she found a GP wbo prescribed it. She started on 3.5mg increasing to 4.5mg in 2006. Her symptoms gradually improved almost imperceptibly and after 3-4 months she had no symptoms. 

Two years ago, when the whole family had a cold she took Nytol containing alcohol and the feelings of numbness returned. The alcohol was rendering the LDN ineffective. 

Since then she takes part in many activities including skiing, cycling and scuba diving. No one realises she has multiple sclerosis. She has publicised it on various MS websites to help other sufferers. 

This is a summary. To listen to the whole LDN and MS interview please click the video link.

Flora - Scotland: Myasthenia Gravis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Flora from Scotland takes Low Dose Naltrexone  (LDN) for Myasthenia Gravis (MG). 

At the end of last year, Flora was put on medication for bad fatigue and weakness in muscles. She managed to have a prescription for Low Dose Naltrexone  (LDN)  from her GP. 

Flora had no introductory side effects and even noticed improvements within the first month. Flora loves LDN, she recommends all to try it for Myasthenia Gravis (MG), saying that you have nothing to lose.

Please watch the video for the full interview. Thank you

Any questions or comments you may have, please contact us.

Fiona - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Fiona shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Fiona began to feel symptoms of Multiple Sclerosis (MS) in 1979 when she noticed she had pins and needles in her feet much of the time. She went to a doctor who managed to remove the pins and needles and Fiona thought nothing of it for another 20 years.

However, on the way back from work in 1997 she began to feel extraordinarily tired which eventually led to another trip to the GP and her diagnosis. 

Luckily Fiona found Low Dose Naltrexone (LDN) and says that her life has changed for the better, saying that she has regained almost all of her mobility and is functioning almost at 100%.

This is a summary of Fiona’s interview. Please listen to the rest of Fiona’s story by clicking on the video above.

Fiona - England: Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Fiona from England takes Low Dose Naltrexone (LDN) for Fibromyalgia. She first started noticing symptoms four years ago after back surgery, being 47 years old. 

Symptoms included, joint pain, and described it as having the flu everywhere. Sleepless nights and fatigue were also a major problem. Fiona rated her quality of life a 1 out of 10 during this time. During this time, she left her job and Fiona went to physiotherapy after having problems walking. 

Luckily, Fiona managed to be prescribed the Low Dose Naltrexone (LDN) by her doctor. After testing the waters with the LDN medication, she did not notice introductory side effects, she also explains how it has made such a difference to her life. Now, Fiona is sleeping better, she has had no sprained ankles due to no pain.

Now she has been on the LDN medication for five months, and has improved her quality of life to now a 8 out of 10. 

Please watch the video to view the full interview. Thank you.

Any questions or comments you may have, please contact us.