LDN Video Interviews and Presentations

David - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

David from the United States shares their Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story with Linda Elsegood.

David first noticed something wrong with him around 30 years ago when a carton of orange juice fell out of his hand in the supermarket. Despite being only 34, his symptoms progressively became worse, developing a limp in his right leg and losing almost total control of his hands.

David received multiple treatments that had little effect on improving his Multiple Sclerosis (MS) until he found Low Dose Naltrexone (LDN) online. Ever since he has had great success: less muscle spasms, regain of muscle control and better sleep.

David is a strong advocate for LDN and recommends it to all who have been diagnosed with MS and those who are yet to try it.

This is a summary of David’s interview. Please listen the rest of David’s story by clicking on the video above.

David - US: Chronic Fatigue Syndrome (CFS/ME) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

David from the United States shares his Chronic Fatigue Syndrome (CFS/ME) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

David first noticed symptoms of his Chronic Fatigue Syndrome (CFS/ME) in the spring of 2000 upon returning from a trip to the West Coast. For the next 6 months David suffered from a drop in his overall energy levels and was unable to exercise regularly anymore.

David thankfully had prior knowledge of Low Dose Naltrexone (LDN) and sought it out from his local pharmacy. Within three weeks of starting on LDN he was already beginning to feel much better and was able to return to regular running.

David strongly recommends that people research LDN and learn about its benefits so that if you know someone, or even if you yourself, is diagnosed with an autoimmune disease you can tackle the issue swiftly.

This is a summary of David’s interview. Please listen to the rest of David’s story by clicking on the video above.

David - Spain: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

David from Spain shares his LDN story for multiple sclerosis.

It was 11 years ago when he started having symptoms. He was losing feeling in his legs so he looked up different therapies and medicines and he found out about LDN.

LDN helped him get his quality of life back. He can swim, walk and run now. He can also do daily task much easier.

To listen to the full interview play the video.

Any questions or comments you may have, please contact us. I look forward to hearing from you. 

David - England: Lyme Disease (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

David from England takes Low Dose Naltrexone (LDN) for Lyme disease. He first noted symptoms when he was around 21 or 22, when his health started to fall apart quite quickly. He was practically housebound. He was exhausted, suffered from brain fog, upset stomach, and a lot of muscle aches and pains. He suffered from confusion, inability to concentrate, headaches, and IBS. He had to rely on state benefits and could only work part-time. Once his specialist diagnosed the Lyme disease and prescribed LDN, his symptoms improved dramatically, and he was able to work full-time.

At one point, he went off of the LDN for a two month period, but found that his health deteriorated again and his symptoms returned. However, once he resumed the LDN, he again saw benefits as before. 

David also notes that for him, LDN side effects were mainly vivid dreams, but other than that, no negative side effects.

This is a summary of David’s interview. Please listen to the interview for the full story. 

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David - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

David from England shares his Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

David first noticed issues with his health a year following his marriage in 1998. It was in fact his brother who pointed out that David may be unwell during a game of football as he kept giving the ball away, something David says he didn’t usually do.

At the time David was 30 years old and as his energy levels decreased, so did his bladder control. As his eye sight also deteriorated, David became motivated to find a solution to the problem which is when he came across Low Dose Naltrexone (LDN).

After finding his optimal dose, David began to reap the benefits of LDN and was able to return to football and travelling with his wife. His life quality before LDN was a 3; now it is a 8/10.

This is a summary of David’s interview. Please listen to the rest of David’s story by clicking on the video above.

Darren McDuffy interviews Linda Elsegood about LDN (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) Story on Phat Man Radio with Darren McDuffy.

In 1969 at the age of 13, Linda had glandular fever (Epstein-Barr virus). She was seriously ill and away from school for six months. 

Late 1999 Linda’s mother had a serious heart attack and the trauma affected her badly. She was working full time, travelling two and a half hours every day and running the home. This excessive workload and stress began to take its toll on her health, and by May 2000 she had lost her balance, lost feeling in the left side of her face and her head, tongue and nose were numb with pins and needles.

In early December 2003 Linda started Low Dose Naltrexone (LDN), and the results were incredibly positive. By Christmas Linda was functioning again, and her liver tests were back to normal. She felt like herself again.

Linda founded the LDN Research Trust in May 2004. In this interview she says that it is the most exciting thing she has ever done. She is able to give many hours a week to the Trust, helping people to get LDN and trying to get it into clinical trials.

This is a summary of Linda Elsegood’s interview. Please listen to the rest of Linda’s story by clicking on the video above.

 

Linda Elsegood: I'd like to introduce Darlene from the United States who takes LDN. Thank you for joining me, Darlene.

Darlene: I had lupus for many years and started back when I was raising my young children, and I felt fatigued and feel all the time. So I found the LDN.

Linda Elsegood: Before we start Darlene, what are the conditions do you have?

What autoimmune conditions that you use LDN for?

Darlene: Well, I use it for Myasthenia Gravis also, another autoimmune disease.

Linda Elsegood: And do you said about Raynaud's syndrome?

Darlene: I couldn't take it for that. I haven't really seen any results from that.

Linda Elsegood: And do you have IBS as well. Is that right?

Darlene: Yes. They said I would need a lower dose for that, but I've tried the lower dose, and it helps the IBS. I don't get the benefit for Lupus.

Linda Elsegood: Ok. So how old were you when you had the Lupus?

Darlene: It started when I was about 29 years old.

Linda Elsegood: And what symptoms did you have at that time?

Darlene: Just feeling ill and weak like you had the flu or fever but didn't run a fever.

Linda Elsegood: That must've been very difficult with young children.

Darlene: Oh, it was terrible.

And I would go to the doctor, and he couldn't find anything wrong with me. "Oh, you're just feeling bad." Everybody would try to blame it on nerves, depression and it took ten years for them to find a diagnosis.

Linda Elsegood: And what were you offered once you had your diagnosis?

Darlene: They said it was Lupus, Systemic Lupus and put me on the Prednisone and all different drugs,

which didn't really help or do any good for me.

Linda Elsegood: And how long were you before you had these other autoimmune conditions?

Darlene: So my opinion? It was about 20 years then I had Lupus.

So I really didn't respond to anything else.

Linda Elsegood: And how many years was it from first being ill to having heard about LDN? How many years in between?

Darlene: Oh, I didn't hear about LDN until 2009, and I started with Lupus in 1989 when I was diagnosed. So that would be 20 years.

Linda Elsegood: So in those 20 years, what was your health like just before you found LDN?

Darlene: If I planned anything, I would get sick, and my family thought I was just sick all the time, but I would feel well some days, and then other days I'd feel sick.

So every time we'd plan something, we'd have to cancel because I'd get a flare of the Lupus. And I didn't feel well. So we had to cancel our plan. I went around like that, just raising my kids and living that way for 20 years.

Linda Elsegood: And what would you say your quality of life was like at that point with ten being the best?

 Darlene: Probably two or three. And then when I got the Myasthenia Gravis, it got even worse. The weakness was worse. I had some days where I couldn't get out of bed. I couldn't walk. I had to use a wheelchair. Couldn't walk distances at all. And some days I would crawl to the bathroom from the bed would be so weak I couldn't lift up a fork to eat.

And that was also in Myasthenia Gravis when that came. So then I had two diseases. I did get the thymus removed for the Myasthenia Gravis because I ended up getting a fibroid cancer to make a long story short. They said they would remove the thymus then along with the fibroid because I had wanted to find this out because they say you improve and it helped them somewhat, but not a whole lot.

Then after that, I still had flares of Lupus and the MG, whatever it was because they just called it the lupus syndrome because I didn't know which one it was bothering me. I tried to treat Lupus with all the lupus medicines and none of them worked for me. None of them helped. Then one day I got an email about the LDN and so I thought: "Wow, check it out."

So I started looking on the web and saw that people were really getting well with MS. And there were a couple of Lupus patients on there. So I said, "Well, why not? I haven't got anything to lose. Try it."

Linda Elsegood: How easy was it to get the prescription?

Darlene: Well, it wasn't too bad. I talked to Crystal on the internet to find a doctor in my area.

And of course, my Rheumatologists didn't know anything about it, but I went to the doctor in my area. He was a regular internist, and he gave me the prescription right away.

Linda Elsegood: And when you first started, did you notice any introductory side effects?

Darlene: I noticed no side effects at all for me, but I did notice a great difference in my energy.

I was helping to move my mother. She was moving, and I had lifted boxes and all that. And everyone thought I'd be fit because, with Lupus, you can't do that. And you'll pay the next day, I guess, just like MS. And the next day I wasn't sick. I kept feeling good and kept helping her pack and lift boxes the whole week.

I never got sick. I just felt more energy. It was great, like a miracle overnight for me.

Linda Elsegood: Wow. So how long has he been taking LDN now?

Darlene: I've been taking since 2009. So about five years.

Linda Elsegood: Amazing! So how long did LDN continue to improve your condition?

Darlene: Well, it just kept working, and I haven't had any flares for the six years.

I even went through a lot of stress with my son because he had leukaemia and was hospitalized since his treatments. It was very stressful, but he came through it, and I came through it without any medicine taking it.

Linda Elsegood: And what would you say your quality of life is like now on that score scale of one to 10, 10 being the highest?

Darlene: Mines at 10. I'm like the difference between night and day. My whole family tells me that. I am a different person because I've been doing things I've never done before. I'm able to do the things a normal person does and I am so thankful for that.

Linda Elsegood: Well, amazing testimony, isn't it?

Darlene: And that's just one email sent to me really changed my whole life to get that drug.

Linda Elsegood: So, what would you say to other people who are thinking about trying LDN, but maybe are a bit sceptical?

Darlene: Well, I can't guarantee it works for everyone. I have heard some people say it didn't work for them, but I don't know the situation or if they tried it long enough or any of the particulars. If I can say it's worth a try because it has little side effects and it doesn't hurt to try it. If you're as sick as I was, you have to try something. I couldn't go on like that.

Linda Elsegood: Well, that's one amazing story! Thank you very much for sharing with us Darlene!

Any questions or comments you may please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well!

Danielle - US: Hashimoto’s Thyroiditis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Danielle from the United States shares her Hashimoto’s and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Danielle was around 20 years old when she first started to notice hyperthyroid symptoms but remained undiagnosed for several years until 2014.

She was previously taking T3 in order to alleviate some of her symptoms, but has more recently found LDN which she believes has significantly increased the quality of her life.

She said “LDN has taken my life to a ten out of ten. It’s brilliant. It’s really helped with my leg inflammation and spasms which were causing me so much trouble on a daily basis.

I could barely get out of bed for my three-year old child at the time, which was really concerning for not only me but for him too. I can finally keep up with my child nowadays, which is great.”

This is a summary of Danielle’s interview. Please listen to the rest of Danielle’s Hashimoto’s and Low Dose Naltrexone (LDN) story by clicking on the video above.

Daisy - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Daisy from England shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) Story on the LDN Radio Show with Linda Elsegood.

Daisy was diagnosed with Multiple Sclerosis (MS) at the age of 21 in 1993. She had suffered from fatigue and numbness since she was a child but it wasn’t until she was a student that her symptoms took a turn for the worst, including serious numbness in her left leg and optic neuritis.

She said “It seemed that all the problems were all on my left side; I had trouble seeing out of my left eye and trouble walking with my left leg.

LDN has helped with both of those problems. I also had no major side effects other than my vivid dreams, which were quite fun to be honest. I wish I still had them.

Even though I’m not sure Low Dose Naltrexone (LDN)  can do lots of positive things for everyone, it seems to do lots of positive things for me. It seems like a safe bet, so by that token you should try it.”

This is a summary of Daisy’s interview. Please listen to the rest of Daisy’s story by clicking on the video above.

Crystal - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I'd like to introduce Crystal from the United States to take LDN.  Thank you for joining me, Crystal.

Crystal: Thank you.

Linda Elsegood: Could you tell me when you first started to feel your MS symptoms?

Crystal: I wonder if some of the strange symptoms I had during my last two or three pregnancies was really a mass related. I would get tingling and numbness in my fingers and visual disturbances like blurry vision or spots in my vision. And we would just wonder what in the world is going on.

I asked my OB about it and he just kind of dismissed it as maybe babies on a nerve or something like that. And nobody ever thought anything of it. And I didn't have it after pregnancy. So I don't know if that was related or not.  It's hard to remember the specifics of everything because of the fact that we were just kind of blew it off. I can remember weird things. A couple of years later after my last pregnancy, this may be a year afterwards, I can remember some weird things like waking up biting my tongue because it was kind of loose or hanging off to the side. Then shortly after this, I would have insomnia, restless legs syndrome, and my arms and skin would crawl and itch.

All of this would make me feel really crazy and I started having double vision after this and dizziness when I stood up or just got up too fast. This was right before I had my major symptom. My primary care sent me to an Ophthalmologist for the double vision who said my eyes and optic nerve were just fine.

So everybody was baffled why I would be having double vision. Shortly after this was when I woke up one morning with a numb mouth on the right side. My lips and my tongue were numb and tingly. I was also having headaches at the same time. So I had an MRI scheduled because of the headaches that just persist even major medication. Narcotics did not help these headaches. When I woke up with numbness one morning, my husband said: " That does just not seem right. You need to call the doctor." And my husband is not the type to recommend going into the doctor. You know how men are. When he said that I should go into the doctor, I really took that seriously. That must have sounded serious to him. I went in, I saw a doctor that wasn't my primary care because she was out that day and they tested my sensations with Q-tips to see if I could actually feel.

The acute tip being touched my tongue and different parts of my face, and I could still feel the sensation of the Q-tip there, even though I was numb and tingling. So it wasn't that all feeling was gone. We eventually, after discussing things concluded it might have something to do with my usual nighttime teeth clenching.

I was told to follow up in a couple of days, which I did, but I still had the numbness. So when my doctor that oversaw my primary she didn't feel comfortable waiting for my scheduled MRI, the one that was set up because of my headaches. She said: " I'm going to have to send you down to the ER right now for an emergency MRI."

And so that's what happened. And I went down right away. At that time, the results were read by the ER doctors and radiologists. That night I was very tired. I had to wait quite a while to get the MRI and then for them to read it. The ER doctors and radiologists looked at the MRI and they all thought it looked most like MS. Later on, when I finally got an appointment with the Neurologist, I don't know how it is there and in England but it takes a long time to get an appointment with the Neurologist. When I did finally see him, he did confirm a MS diagnosis. I never did go on a disease-modifying therapy because an older lady from my church had read about LDN, and I knew that the disease-modifying therapies were kind of toxic. She told me about LDN and I asked for it immediately from my Neurologist, and fortunately, he was the type of Neurologist to go ahead and prescribe that for me, even though they did encourage me to start DMT because they said the prognosis for people is much better the earlier you start.

I don't have much to base. I only had that first attack. I can't tell you how much of a difference LDN made in my disease, but I do know it helped with insomnia, and I have been feeling pretty good for having MS..

Actually, when I talked to my pastor the other day, he said:" I'm impressed with how well you've been doing." Sometimes with MS once you start going downhill, it's quick. It's like going off a cliff, and I haven't had that battles so far, and maybe it's due to the LDN that I haven't gotten any worse.

I know that LDN has helped me tremendously with insomnia. I don't have that anymore. I don't have the itching and crawling of the skin or the restless arm. So it seems that LDN has done the job and I do plan on going on Copaxone just because I don't want to take measures to prevent further damage which LDN hasn't yet clinically been proven to do.

But I will be taking the LDN at the same time because I know Copaxone and LDN are the only one you can take with LDN. So as long as I can, I'm going to stay on the LDN.

Linda Elsegood: Would you like to tell people what the regular day for you is like?

Crystal: Sure, as I said, right now,  I just have pain.

I haven't had much fatigue anymore. In the beginning, right after my diagnosis, I had tremendous amounts of fatigue. I would hit a certain part in the morning and I would just have to lay down at night. I tell my kids:" Can you kids please clean this room and they would work together, and I'd go lay down because I was just so fatigued. I don't have that anymore. I've been on LDN now for six months, and I wonder if that fatigue that I used to experience isn't gone because I take it and get a good rest. But now I just have intermittent bouts of pain in various places.

I can feel twinges of pain. They're fleeting. They come and go pretty quickly. I don't have much muscle weakness or anything like that, which is good because I need to take care of my children. So it's good that I don't have anything major right now. I do have visual disturbances sometimes when I get up too fast. I do feel like I'm going to get double vision, but I never actually get it.

Linda Elsegood: But on a daily basis, you have seven children. And how many do you home school?

Crystal: I homeschool the oldest four. I don't homeschool the youngest three.

Linda Elsegood: So that is one busy mum. So I see you're doing extremely well. I mean, it would be a big job, I think for a healthy person, let alone somebody with MS. You are doing extremely well.

Crystal: Thank you. I do have a lot of help. I have the homeschooling materials we use are very helpful. My two younger ones that I homeschool have videos they watch so it's a tremendous help. We have an outside teacher that teaches them.  I'm just there to help out and they do very well there. I have some wonderfully smart kids.

Linda Elsegood: Well, thank you very much for sharing your story with us.

Any questions or comments you may have, email us a Contact@ldnresearchtrust.org.  I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.