LDN Video Interviews and Presentations

 

Linda Elsegood: I'd like to welcome Kaija from Germany. And Kaia has multiple sclerosis. Would you like to tell us your story, Kaia?

Kaija: Oh, hello? Hello. Uh, but I had my first symptoms here in Germany, and it was just after I left school. Um, and, and the sort of, you know, stuff handy for stuff in your life.

Um, and, uh, that's how. Turned out

Linda Elsegood: what symptoms. Did you have at that time?

Kaija: Um, I had, uh, my very first symptoms, uh, was, uh, a numb area around my backside. It's really difficult to explain. Isn't it? Um, yeah. And then, um, I went to doctors, and they couldn't find anything. At first. And, uh, then, uh, I had the move to England, and of course, it was, um, quite an exciting time and, uh, you know, really unsettled and, uh, Uh, I then had, uh, many more symptoms and there weren't kind of symptoms like in the book. I could walk very well. My, uh, my sense of balance when, uh, the, um, couldn't really walk stairs very well. Um, what else? Anything I had just about everything. In the book, it was very easy. And I went to a doctor, and he'd known MS.

You had patients before. And he said, well, that looks very much like he was honest about us, which I'm very happy about. 

Linda Elsegood: so how old were you at that time?

Kaija: 21

Linda Elsegood: And how that affects you emotionally?

Kaija: I was devastated, you know, I was just about to start a new life.

I just finished school, you know, uh, and you know, I was going to embark on a new life. Now with my partner at the time. Yeah.

Linda Elsegood: So where did you go from there? I mean, you were diagnosed, and you had all these awful symptoms.

Kaija: I stayed at home for a while. I didn't do much, but after about a year, I decided to go to college.

Right. Uh, and, um, uh, And I had this idea. I wanted to study fashion and fashion design, and I went to college and right.

Linda Elsegood: So were you given any medication at that time? Uh,

Kaija: I can't remember? I think so.

Linda Elsegood: Did your MS . Progressed from there or did it, was it relapsing and remitting?

Kaija: um. For a while. Yeah, it was sort of the first year, uh, it happened quite often and, uh, and then the photos tape it down, you know, and it went into, uh, sort of secondary progressive offers out, you know?

Linda Elsegood: So what were you suffering with? You said everything in the book. I mean,

Kaija: I can, I can read out because I broke down a few notes. Okay. Uh, my, my business was affected my balance, my coordination. I felt numbness in some parts of the body. Um, my speech was affected, which was very handy as I, uh, sometimes in language, school talk. And, uh, it's was a bit difficult time, uh, anyway, uh, my walking, um, that's about mainly what was, yeah.

Linda Elsegood: Yeah. What about your bowel and bladder were they, okay.

Kaija: Um, my bladder is in fact, uh, I, if it was at that time as well.

Linda Elsegood: What about fatigue?

Kaija: Yes.

Linda Elsegood: Okay. So life was quite difficult. I take it for you.

Kaija: Yes. Yeah. Yeah. And they end up the first year. But after that, uh, it's sort of, yeah. You know, as you know, you know, kind of seems to disappear and you keep on hoping that it does.

And uh, you know? Yeah.

Linda Elsegood: So when did it start to come back again?

Kaija: Uh, late run-up after about five years.

Linda Elsegood: Right. And then what Happened?

Kaija: Um, Hmm, hang on. Let me think. Uh, I've gone back to Germany. I started work. Yes. I was at work for a few years, and everything seemed to be fine then. And, uh, then I, uh, I felt weaker, you know, my fatigue set in and of course, uh, I worked full time. Which was a, it hard for that. Um, later on I started taking time off.

Yeah. I spent my holidays to be ill, but you know, I never really went away or anything out of work sort of four days a week or something.

Linda Elsegood:  what were your symptoms like before you found LDN that they all come back game?

Kaija: Um, well when, um, Hmm, the LDN was a lot later, you know, I found out about 2004. Which was, uh, quite a long time after I fought for the, you must, you know, I started in 1980, so 24 years later.

Um, so I actually write about it, uh, in, in your magazine, right? Uh, uh, and, uh, And in fact, it was, my husband was and said, well, why don't you have a go and try? I said, well, you know, I don't keep trying and hoping that things go back to normal or anything, you know, sort of, uh, I lived life, Metro factually sort of thing, you know, you know, try to, um, Within the boundaries of this illness.

Linda Elsegood:  what were you like at that point?

Kaija: Oh yeah. That's what you want to know. Yeah. Sorry. I'm sorry. Um, well mainly affected by the fatigue. Um, my walking wasn't very good. Yeah. Which isn't very much now. Because I don't walk at all. I use a wheelchair. yeah, and the, the coordination, you know, the hands, I've always been very good with my hands and artistic and everything. And the fact that anymore.

Linda Elsegood: Yeah. Upsetting then, isn't it. When something, you know? Yeah. It's on him anymore. so your husband tried to get you to take LDN. What happens? How did you manage to obtain it?

Kaija: It's really good. Mmm. Um, I feel stronger. Sorry.

Linda Elsegood: Sorry. How did you manage to get the prescription?

Kaija: Um, I've got a friend doctor. No, my husband's got a friend who's a doctor. Right. Who agreed to prescribe it for me.

Linda Elsegood: Was it easy to obtain the LDN in Germany?

Kaija: Yes. Yeah. Right. You know, we have heroin addicts here as well, so, you know, they pay cause don't, they.

Well, they take it in

Linda Elsegood:  So, um, what were your symptoms? Did you have any initial side effects when you started taking

Kaija: Netherlands? It's wonderful. And in fact, I, uh, I picked off my MF friend. We live quite far away, but, uh, uh, I, I, I told her about this, and she's tried it, and she's feeling much better as well.

So because we're both sorts of a 30 year, um, experience, uh, I miss people. So, um, it's really great.

Linda Elsegood: So what did you find it did for you?

Kaija: Um, Well, I feel stronger and, uh, feel well, you know, when your sense of balance is better, and when it wasn't, you feel more grounded, you know, um, Even though I can't walk. I think, but if I, if I say help, I can say top without holding on.

Right. You know, that sort of thing, that, that wasn't like that all the time. So it helps, uh, it's improving my bladder control, physical things, dental, well being, uh, wrote down. Basically, the nation. My handwriting is legible now. Oh,

sorry.

Linda Elsegood: So your handwriting is better.

Kaija: yeah, it's, it's metrical now it doesn't even look that bad. 

Linda Elsegood: So would you be able to draw again

Kaija: now? Yes, I do. Do you? Yeah. Well,

Linda Elsegood: fantastic.

Linda Elsegood: So that must be quite a lift for you.

So you, um, will be continued taking indefinitely?

Kaija: definitely. Yeah. And I've, I think I've taken it four or five years now. Seven years.

Linda Elsegood: Seven years. Well, that's good.

Linda Elsegood: So what would you say to other people in Germany who would

Kaija: have a go

Linda Elsegood: and how easy and how easy do you think it would be for them in Germany to obtain a prescription?

Kaija: Well, if you have a front of Patrick doctor, uh, it works, but you know how you can get it. Uh, if even any other doctor can prescribe it for you. So you could ask your friendly dentist to prescribe it for you. Okay.

Any a doctor can, can, you know, and in fact, uh, some I, um, I joined some, um, Uh, the cold and internet type.

Yes, you're in Germany. Uh, and some, some somebody says, why don't you try your dentist? You know, my dentist is my friend, and I asked him, and he did, you know, so I thought that's a good idea. I have to try. Yeah. So I tried, and I got a prescription, so it's no problem.

Good. Well,

Linda Elsegood: is there anything else you'd like to add?

Kaija: Mmm, no. I can only for commend to have a go. Is it, is it really, if it's my a friend who tried  it she calls it a wonder drug.

Linda Elsegood: maybe you could ask your friend if she'd like to share her story with us.

Kaija: I thought I could ask her,

Linda Elsegood: does she speak English?

Kaija: Um, I think so.

Linda Elsegood: Okay. Well,

Kaija: I'm not sure whether she feels, uh, she feels she can do it well enough, but I can let her know.

Linda Elsegood: Okay. Well, thank you very much for sharing your story with us.

Kaija: Thanks very much for letting me, Ferris.

Linda Elsegood: Thank you. Okay. And Kaija, before you go, um, if anybody in Germany wants to talk to somebody in Germany, who's taking LDN. Would you be willing to do that?

Kaija: Oh, yes. Yes.

Linda Elsegood: Okay. That would be

Kaija: great. Yeah.

Linda Elsegood: Thank you very much.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Justin - Scotland: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: Justin, from Scotland who uses LDN for multiple sclerosis.

Justin: Thanks. No problem.

Linda Elsegood: Could you tell us your MS. Story when you first got sick?

Justin:  It is the way I first got sick. It was probably noticed about when I was 30 but 15 years ago, but now they can hide it maybe ten years before that. And that was five. I was falling every day.

I was dropping things. I couldn't talk, I couldn't walk the answer myself. I couldn't walk no a hundred yards. I couldn’t walk a hundred yards without having to take her a rest. Basically, my life was not very good.

Linda Elsegood: you had to rate your quality of life at that time on a score of one to 10, 10 being best, what would it have been?

Justin: That was not a good place mentally and physically. So I would say it was as low as one. Really.

Linda Elsegood: What would a typical day have been like for you at that time?

Justin: Typical day would be waking up, open my eyes. Dreading the day, just not looking forward to getting up too, because I leave to talk to people. I know I relate to confess, but I couldn't, I couldn't do it so I can add shied away.

I had aware when we inside myself and I just, wasn't looking for me to get up just get up forcing myself to get our show on a wash and a shave some days then haven't. But. Most days, but it wasn't very good. And

Linda Elsegood: how did you hear about LDN? 

Justin: about an LDN in 2010. I got the result. I can't remember this neurologist named miss Southern general.

And she said there was no SPMS and it was on a slide, and it would probably be 18 months to two years and maybe be in a chair. So she recommended that I should go and. Reclaim my benefits because I was getting worse and it was while I was reclaiming my benefits, it was a total chance. The ghetto there was had to rate the forum for me because I couldn't even write, I couldn't even hold a pen.

And then she asked me what I was on and I said nothing. I say I want me to inject myself with Avonex twice a week to try and slow down the relapses. And she just. Last mission CDW. They're not trying to LDN. This is what the heck. No, I held her up, and she said, that's what I'm on. So it took me to go and to go and reclaim, to find out about that, which was fantastic.

And since then changed my life.

Linda Elsegood: Totally. Wow. was it easy getting a prescription?

Justin: Not from my own GP. I just met the one GP that knew me for 35 years would not write me a prescription for it. And in other GPS on the practice, all I'd done was I just went to our practice. We had a new that the people gotta get an LDN from.

So all I've done is made them an appointment to see the doctor at a specific doctor. And then. I think it was in 10 minutes, they took my blood pressure and looked me up a prescription.

Linda Elsegood: Wonderful. When you first started, did you notice any side effects?

Justin: Not one only one side effect of hiding. I tell people is complacency thinking that I'm not, not well it's what can not, well, I don't think I've got MS.

She honestly, that is just, it's been, I don't run about the house. Things like that, that you, you, you know, you shouldn't be doing, you shouldn't be able to do button by doing them again. So

Linda Elsegood: what's the typical day for you? Like now?

Justin: It's a typical day. I'm up at half-past five. I'm up. I walk every single day, every single day.

If I've not got my grandson, I'm working in a national park, my volunteer park ranger. National park. Which is a fine task, the best thing that's ever happened to me? And it's all. Thanks to LDN.

Linda Elsegood: You were telling me before we started that you wouldn't have been able to even hold your grandson, let alone look after him.

Justin: No, no, I wouldn't. I couldn't. I couldn't. My balance was don't have it. 65%. I was fallen asleep every tongue, every time I couldn't walk and look up at the same time. I had to, you know, I wasn't a very good place, but holding my son is just if anybody's got grandkids, they all know how to see. It was

Linda Elsegood: definitely well, that's amazing. What would you say to other people who are thinking of trying LDM it may be a little bit.

Justin: Okay. Can you give it a go? If you don't give it a go, you'll never know and sort of shake off. I've recommended a SABIC. That's probably about 20, you know, people run the boat, I have come to me, and I've never told anybody to buy, rate this and get online.

You can get up and go. I've told anybody to go through a doctor, find a doctor, that'll write you a prescription. And if it doesn't work for you, you're only going to lose 18 pounds, 50 nothing else, no side effects. Well, I personalized my, just my story. I have no side effects. Yeah. Tell everybody, go for it.

Nothing to lose and so much to gain.

Linda Elsegood: So did, what did I ask you? What your quality of life is like now on the score of one to 10

Justin:  it's beyond 10. It's wow. That's exactly. Yes. It's my life, as I'm using right now. Well really

Linda Elsegood: long. May it continue and thank you very much for sharing your amazing inspirational story with us, and being a ranger up in Scotland must be really wow. We'll have to get you to take some photographs.

Justin: Yeah. If you go onto my Facebook page, you'll see some pictures that I've put on already, and every day I'm up, I'm going to try and put some more on it.

Linda Elsegood: Oh, okay. Thank you very much, Justin.

Justin: No problem. Thank you very much.

Linda Elsegood: I'd like to introduce Justin's mother Elizabeth, um, who wants to share her experience that she's observed Justin taking LDN for multiple sclerosis. Thank you for joining me, Elizabeth. Welcome.

Linda Elsegood: Could you tell us what you noticed when Justin started to take LDN?

Elizabeth: I noticed that he, it could stand outright and could walk. So, so to stick, it could speak besides letting his words and the main, he was just almost back to normal.

Linda Elsegood: Wow. That's amazing. He was telling me that he helps look after his grandson.

Elizabeth: Yes. He looks after his grandson two days a week for about five or six hours.

Linda Elsegood: Well, that's amazing. Isn't it? Could you explain what Justin was like before he started out at the end,

Elizabeth: before he started LDN and had no sense of balance,  it was bumping into roles, and his legs were terrible.

Could hardly hold a pen. He couldn't write his name. Um, my husband and I were looking to get him off a wheelchair. It couldn't go out. So they had a staff, they took with them everywhere, and they had to walk near places like with railings or roles to hold onto and crossing the road was a nightmare for him because he couldn't keep his balance to Tommy's head.

Both ways to check. It was just, and not Justin. And since LDN, we've got Justin back,

Linda Elsegood: that's amazing. And it's very difficult for a parent to watch your child, regardless of what age you are, um, to actually be helpless, isn't it, you know, and I can understand from my parent's point of view when they saw me.

Uh, in a similar position to Justin, it's not easy. Is it from a parent's point of view?

Elizabeth: Devastating, especially since he, he fell and work one morning and buying cheese heads and put them in the brain and we thought we were going to lose him and luckily we didn't.

Linda Elsegood: yes. So, how would you like to sum up your views of LDM

Elizabeth: Amazing.

Linda Elsegood: Well, thank you very much for sharing that with us. It is with this. I really do appreciate it.

Any questions or comments you may have, please Contact Us.  I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.
 

Julie - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Julie from England shares her LDN story she takes for multiple sclerosis, she started showing symptoms around 2002, she was feeling fatigues and having balance problems and couldn’t see very well either. She was around 57 when this first started. She had side effects from LDN that included bladder problems and constipation. She said with a healthy diet it settled down and it ended up going away. Her life improved after being on LDN and she recommends it to anyone who needs it.

Click the video link to hear the whole story.

Any questions or comments you may have, please contact us. I look forward to hearing from you. 

Judith - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Judith from England shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Judith first noticed her Multiple Sclerosis (MS) symptoms when she began to develop intense migraines frequently. These developed to the point where conventional medication was unable to be effective, thus she began her search for an alternative approach.

Fortunately Judith came across Low Dose Naltrexone (LDN) and two years later, she no longer suffers from any headaches. A second issue with her bowels was also resolved, meaning she is more free and able to do the things she wants to do without concern.

This is a summary of Judith’s interview. Please listen to the rest of Judith’s story by clicking on the video above.

Joy - US: Hashimoto's Thyroiditis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Joy is from the United States and takes LDN for Hashimoto’s thyroiditis, to boost her endorphin levels and to control her antibodies. In 2008 she had a big crash, probably from her thyroid. It would bet getter, then get worse. By 2011 she hit rock bottom – “all the fuel went out of my tank” – her thyroid was not producing enough T-3 to have any sense of wellbeing. She believes her endorphin issues started in her teenage years. In her early 20s he was treated with full-dose naltrexone for an opiate addiction, and it made her feel terrible. So, when she heard about LDN for thyroid she was concerned, but interested. She researched LDN and found it was very effective at lowering the antibodies affecting how her thyroid was working.

When she started LDN her quality of life was maybe up to 6 out of 10, because she had just started taking a natural thyroid product; before the thyroid product she was perhaps at level 2. She found naltrexone to order from India and had it shipped to her, then she mixed it with distilled water and dosed herself. When she started LDN she had “three-dimensional dreams” that were extremely vivid, but faded after about a week.  She noticed improvements in about a week as well, and had to lower her thyroid medication by about 20%. Her antibodies decreased by about 50%, but were still a bit over the acceptable range on LDN 1.5 mg. She has been on LDN 3.0 mg for a while but hasn’t been retested.

At the time of the interview Joy had been on LDN for almost 4 months, and her quality of life bounced up to an 8. If it helped her peri-menopausal hormone issues it would be a 10, but LDN doesn’t seem to be helping with that. Linda Elsegood commented that talking with Dr. Phil Boyle she learned that LDN does help with a lot of women’s problems like endometriosis, though not necessarily menopausal problems; and that LDN helped her endometriosis improve over about 18 months.

If others are unable to find a doctor to prescribe LDN. Joy recommends they do research; and gives the warning to know the signs of overmedicating with thyroid medication, as once on LDN they’ll need to lower their thyroid dose pretty quickly. Linda Elsegood advised that importing LDN from India isn’t actually legal, but realizes it may be the only way some people can get it.

Joy would love to share her information so others can talk to their doctors about LDN. Her personal physician has some autoimmune issues, and is quite excited about LDN. Linda Elsegood pointed out that the LDN Research Trust’s doctor’s information packs have been quite successful. People print it and take it to their doctors, and the success rate is very high once the doctors read the information. Word is spreading, more neurologists are using LDN for multiple sclerosis, rheumatologists are now using it as well

Summary of Joy's interview, please listen to the video for the full story.

Keywords: LDN, low dose naltrexone, Hashimoto’s, thyroiditis, thyroid, endorphins, menopause, endometriosis, multiple sclerosis

Any questions or comments you may have, please contact us.

John (2) - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

John from England takes Low Dose Naltrexone (LDN) for Multiple Sclerosis (MS), he was diagnosed in 1987 at the age of 38.

He was healthy and working at the time as a police officer and played squash and went swimming with his children and did other activities with them. He suffered from Optic Neuritis and wasn’t unti 1998 that he started having spasms on his right side.

When the neurologist told him he had MS it was like, he took a sledgehammer to his head, he first thought was, “Oh my kids. Oh my God” MS affects the whole family 

He managed to obtain a private prescription about 2 years ago and improvements have been in the bladder and his advice to other people with MS is LDN is a Life-changer give it a go. 

Please play the video to watch the whole story.

Any questions or comments you may have, please contact us.

John - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

John from England shares his Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

John began to notice symptoms in 2004 when he began to stumble regularly while walking. Over the following months this progressed until he had multiple seizures, leading to his diagnosis of Multiple Sclerosis (MS).

He didn’t find any solution for six years, meaning he could no longer run nor take part in golf anymore due to his lack of energy and increased fatigue. John’s discovery of Low Dose Naltrexone (LDN) changed his life, as he is now able to walk properly again and get back to playing golf and doing the things he enjoys.

This is a summary of John’s interview. Please listen to the rest of John’s story by clicking on the video above.

John - Australia: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

John from Australia shares their Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

John started to notice issues with his health when he began stumbling while walking due to a developing pain in his left leg, eventually leaving him in a wheelchair.

While his wife worked as a waitress at the local restaurant, John began to research his own treatments which was when he came across Low Dose Naltrexone (LDN), learning about how successful it can be in combating Multiple Sclerosis (MS) patients.

He says he can now control his bladder and his overall energy levels have improved. John recommends LDN to anyone who’s interested, saying “there are only benefits to be had”.

This is a summary of John’s interview. Please listen to the rest of John’s story by clicking on the video above

Joan - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Joan from the United States shares her LDN  story for multiple sclerosis. She first got symptoms back in 1985 when she was 30. She got double vision and originally the doctor thought she had a brain tumour, but it turned out to be MS. She also experienced bladder issues. She first heard about LDN through Facebook and Yahoo. The only side effect she experienced was sleeplessness for only a couple of weeks. She didn’t get the effects that everyone else got on LDN but she still recommends people take it. She just didn't have time to constantly take it.

To hear the full story please click the video.

Any questions or comments you may have, please contact us. I look forward to hearing from you. 

Jim - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Jim from England takes Low Dose Naltrexone (LDN) for Multiple Sclerosis (MS), where he was diagnosed in 1978 at 33 years old. 

Symptoms at first included confusion with body temperature and feeling cold. And even did not experience any initial side effects when he first started Low Dose Naltrexone (LDN). James does in fact recommend people to try LDN, quoting that it has not done any harm and to try and continue with it.

This is a summary to listen to the entire interview by clicking the video link.