LDN Video Interviews and Presentations

Huw - Wales: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Huw from Wales started noticing symptoms for Multiple Sclerosis around the year 2000. She felt both muscle and mental fatigue, and had problems walking and sleeping. 

Huw had heard of LDN through a friend, and obtained the medication through a private prescription around three years ago. Initially, after upping the dosage to 4mg per day, she began to have “strange dreams.” Huw has noticed improvements mentally, as she's now able to help her son with his business, including accounting.

When asked what she would say to those contemplating LDN, she urged they try it so long as they follow the advice, and gradually introduce the dosage.

This is a summary to listen to the whole interview please click the video link.

Any questions or comments you may have, please contact us.

Hillary - Wales: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Hillary from Waales takes Low Dose Naltrexone (LDN) for Multiple Sclerosis (MS). She was first diagnosed in 1990 at the young age of 31. 

Before her diagnosis, she was an active person, she had an 18 month old baby and happily married. 

Symptoms included, tingling in fingers which then became numbness and spread to her hands, for a two year period. 

She found LDN through a friend who was already taking the medication. Hillary’s GP was incredibly supportive and completed research into what LDN was, they thankfully prescribed it to her. Hillary had no initial side effects, and noticed positive experiences with LDN after 6 months. 

Hillary recommends people to try Low Dose Naltrexone (LDN), there is nothing to lose and more to gain she quotes.

This is a summary to listen to the entire interview by click the video link.

Helen - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Helen from England shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Helen began to lose her balance around 15 years ago, leading to multiple falls and bruises. She went to see her GP who couldn’t recognise the problem yet, but one of her falls led to a replacement shoulder.

Thankfully Helen heard about Low Dose Naltrexone (LDN) through one of her colleagues, who noted that it’s very successful at treating patients with Multiple Sclerosis (MS). Following trying LDN, Helene has never looked back and says it has revolutionised her life for the better.

This is a summary of Helen’s interview. Please listen to the rest of Helen’s story by clicking on the video above.

Heidi from England who has multiple sclerosis shares her LDN story.

She started experiencing symptoms about 3 years ago when she was 45. She started showing weakness of muscles as symptoms, she couldn’t walk or stand upright. She went to a neurologist and it took her 2 years to get diagnosed. She started LDN about 2 months after she were diagnosed so about 9 months now. She had headaches as a mild side effect but went away quick. It was a slow start for LDN to work but she started getting feeling and movement back in her limbs. It was easier to move muscles. Before LDN life quality was a 4/10 now it is a 9/10.

To listen to Heidi's story click the video link

Any questions or comments you may have, please contact us. I look forward to hearing from you. 

Haley - Germany: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Haley from Germany shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Haley first started to notice Multiple Sclerosis (MS) symptoms when she was 22 years old in 1978. Her right foot became numb and consequently she couldn’t walk properly.

Thankfully, Haley was diagnosed swiftly thus was able to start looking for solutions but no treatment had great success until she came across Low Dose Naltrexone (LDN).

She said “I’ll definitely continue taking LDN. It’s certainly helped me in so many ways. If you’re thinking about trying LDN, then just go for it. It’s so good.”

This is a summary of Hayley’s interview. Please listen to the rest of Hayley’s story by clicking on the video above.

Gwen - England: Primary Progressive MS, Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Gwen from England shares her LDN for primary progressive MS and fibromyalgia story.

She was about 49 years old when she first noticed she was completely exhausted all the time. She had an awful time walking that progressed over time.

Her quality of life before taking LDN was at a 4. She found out about LDN 5 years ago after being diagnosed. The side effects she had were terrible nightmares for 2 weeks but went away. She started seeing improvements instantly and her muscles started relaxing a lot more. She was able to get right out of bed whereas before LDN it would take hour ½. Her quality of life improved from a 4/10 to a 9/10.

To hear the full story please watch the video.

Any questions or comments you may have, please contact us. I look forward to hearing from you. 

Gretchen - US: Tumefactive Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Today. I'd like to welcome. Gretchen's from the United States. You take LDN for Tumefactive Multiple Sclerosis Thank you for joining me,

Gretchen. Thank you.

Linda Elsegood: Could you tell us when you first experienced symptoms?

Gretchen: It came on quite suddenly back in spring of 2013. So about three years ago,

Linda Elsegood: what did you notice?

Gretchen: I initially noticed balance issue is I lost my balance on two different occasions, which was very odd.

That was where I first see them.

Linda Elsegood: And how old were you?

I was 52.

Linda Elsegood: Okay. And you've not had anything in the past that came and went  So what happened next after the initial problems?

Gretchen: Well, after I had the balance issues, I went to my primary care physician, and she scheduled an MRI for me after I failed neuro neurological tests with her, like walking and, you know, trying to point my finger to my nose and different things.

And I had an MRI done, and I was told that I had a brain tumour. So they sent me to a neurosurgeon who. Decided that he thought I had ms. Because I was, uh, I got worse with heat, and he thought that was

classic ms. Symptom.

Gretchen: So he referred me to a neurologist who,  um, did a bunch of testing on me. Everything came back negative, except the MRI showed one big lesion.

So they, I ended up having to have a brain biopsy too, too, uh, distinguish it as MS.

Linda Elsegood: Wow. That sounds rather scary. Doesn't it?  being told that you've got a brain tumour must have been really frightening. So what happens then? How did they point to Tumefactive Multiple Sclerosis?

Gretchen: Because the lesion presents as a tumour. They, they call it two months active and plus one lesion did so much damage from the, I actually am disabled from that one lesion. They treated me initially treated me with steroids, which just, I kept just getting worse and worse and worse on the steroids.

And instead of just balance issues that I lost my entire left side was paralyzed, which is my dominant side. So I couldn't even get up off a chair. I couldn't go to the bathroom. I couldn't do you know, showers or anything by myself. I needed help with pretty much everything initially because I kept getting worse. That's when they decided they were going to do the brain biopsy because they kept vacillating between MS and brain tumour.

So they still: weren't. Sure. So they made me do the biopsy to determine which it was. And that definitively and it's to prove that it was MS. Lesion.

Linda Elsegood: And did they give you any of the treatments other than the steroids?

Gretchen: I had initially switched me over to another neurologist who put me on Rituxan treatments, which is like a chemo drug.

That wasn't until October of that year. So I went for months just with steroids, which made me worse. And then I didn't have any other treatments until that fall when I had Rituxan, which I really wasn't thrilled about because I did not want to, I did not want to kill my immune system. I just didn't think that was a good course of treatment, but she told me I had aggressive.

MS Needed aggressive, aggressive treatment.

Linda Elsegood: And how did you hear about LDN?

Gretchen: I actually heard about it from Kathy, from the UK, because she's on my two minutes active Facebook group, Facebook group. So I heard about it from her and I was very intrigued by it because it was something that wasn't a chemo drug and I, and it was on an oral med.

Linda Elsegood: And how did you manage to get a prescription?

Gretchen: I actually, I went to my neurologist, and I asked her for it, and she said, well, I had one person on it, but they didn't have any, any change at all, but I was insistent. And so I said, well, I want to try it. And I was surprised she actually did prescribe it for me.

Linda Elsegood: Okay. And when you first started, did you experience any initial side effects?

Gretchen: Nothing. No side effects. How long have I had a couple of dreams that I actually remembered in the morning, but they weren't like vivid nightmare dreams. It was just a dream that I actually would remember.

Linda Elsegood: And how long did it take before you noticed improvements?

Gretchen: noticed within days. And at that time I have very bad spasticity, and I had extreme, terrible, terrible pain in my left arm. My left bicep. I couldn't even straighten my arm out without just excruciating pain. And I had been prescribed back within, which is a muscle relapsing, which barely touched it. I mean, it was so my worst symptom at the time. And soon I realized my pain was gone with the LDN and I was thrilled.

Linda Elsegood: Yes. If you can keep paying us the control, you feel so much better with everything else. Don't you use it, be able to cope better? Oh, absolutely. So apart from the pain, what would you say that LDN has done for you?

Gretchen: The other thing it has done is totally taken away my heat intolerance.

Normally, if I got heated, I would get like, almost like a noodle. Like I didn't have, you know, my symptoms, we get way worse and stuff. If I took a warm shower or like a heated in any way, I got worse and I have no effects from here at all anymore, which allows me to do my exercising twice a week.

I have no symptoms of from heat at all.

Linda Elsegood: That's fantastic. How long have you can take?

Gretchen: I started it in April of 2014. So about a couple of years.

Linda Elsegood: So how would you describe your life since being on LDN.

Gretchen: Oh, so much better. I love it. And I tried to promote it to everybody that I know I've read your book by the way, which is awesome.

And I had it on my Kindle, and then I said, no, I need to get a hard copy of this because I want to be able to bring it around and give it to people.

So, I bought some other ones.

Linda Elsegood: Oh, that's wonderful. And if you had to rate your quality of life on a score of one to 10, 10 being the best, what would it have been pre-LDN?

I would say more like a three.

And what would you say it is now?

Gretchen: Eight, I think it's a miracle drug and you know, I know people have

some type of here sometime taking it. I totally didn't have fear. I was so anxious to get on there cause I'd heard such great things about it and it's proven true for me.

I have a very bad tolerance for drugs.

So things make me a little nervous, but for some reason, LDN did not, and I've had such good results with it. I've been really, really happy.

Linda Elsegood: So if anybody's listening to this, who's got Tumefactive Multiple Sclerosis.  What is your Facebook group?

Gretchen: Tumefactive Multiple Sclerosis MS. Facebook group. Yes, I would definitely say try it.

There are a few of us on it, so, which is great.

Linda Elsegood: And it's always nice to have help and support from other people who have the same condition as yourself. So I'm sure people would find that of benefit to join that group.

Yes. Thank you very much. You're sharing a story with us.

Gretchen: Thank you. I appreciate everything that you do, and it's just been a wonderful, wonderful treatment.

Linda Elsegood: Thank you.

 

Any questions or comments you may have, please Contact Us.  I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Grainne - Ireland: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Grainne from Ireland shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) Story on the LDN Radio Show with Linda Elsegood

Grainne was diagnosed with Multiple Sclerosis (MS) at the age of 45. She first noticed her symptoms when she was running a marathon and noticed a tingling sensation in her legs and was then unable to run properly.

She was limited to completing only 2,000 steps a day, leaving Grainne housebound for the following months.

“It was really terrible, I missed running and I missed outside. But, once I found Low Dose Naltrexone (LDN), everything changed for the better.

It was around the Christmas period following me starting on LDN that I came downstairs and surprised my daughter. She couldn’t believe that I got out of bed and managed to get down the stairs myself.

LDN is a fantastic drug that has helped me in so many ways and I would wholly recommend it to anyone with MS who’s looking for a viable solution.”

This is a summary of Grainne’s interview. Please listen to the rest of Grainne’s story by clicking on the video above.

Gill - Wales: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Gill from Wales was diagnosed with Multiple Sclerosis(MS) in 2000 after experiencing numb feet, pins and needles sensations and bladder issues.

She heard of Low Dose Naltrexone (LDN) through articles about a lady with MS trying Low Dose Naltrexone (LDN) , so tried to get her GP to prescribe her it.

She was eventually given LDN through a private prescription. Upon initially taking the medication, Gill experienced “terrible dreams.” She has also stated that symptoms had gone; although she still cannot walk properly, her mental health has drastically improved.

George - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

George from England shares his Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) Story on the LDN Radio Show with Linda Elsegood

George was diagnosed with Multiple Sclerosis (MS) when he was fifty years old. The fatigue limited George’s ability to complete simple tasks and was offered no medication when he was diagnosed.

“There was little hope at the beginning that I would improve. My GP didn’t offer me any medication and insisted that we see how it goes. Though, as soon as I started Low Dose Naltrexone (LDN), things changed.

LDN has solved my bladder issue, helped me with my sleep and I can now go on longer walks than I used to. I feel like I’ve got my life back.

I would like to recommend LDN to anyone who’s thinking about trying it, because it’s very low risk and it could yield great results for anyone who tries it”.

This is a summary of George’s interview. Please listen to the rest of George’s story by clicking on the video above.