LDN Video Interviews and Presentations

Gary - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Gary from the United States shares his Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Gary was at work in late 2011 when he first noticed his Multiple Sclerosis (MS) symptoms when the ends of his fingers began to feel very numb and tingly. The next day it was his hand, and he went to his GP who turned him away for no signs of a stroke. Within a week it was his whole arm, yet his local practice refused to diagnose him with MS.

Many years later after suffering minor seizures and increasing fatigue, Gary began to research his own MS treatment which is when he came across Low Dose Naltrexone (LDN). Gary praises the effect LDN has had on his life and how it had significantly reduced his reliance on his girlfriend.

This is a summary of Gary’s interview. Please listen to the rest of Gary’s story by clicking on the video above.

Garri - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Garri was diagnosed with MS aged 40. She is now 60.

In 2008 a shoulder X ray showed demyenolating disease but she was wrongly diagnosed as having Merniere's Disease. As an athlete she used a chiropractor. When nerve pain in shoulders, neck and back began and she had numbness and tingling in her extremities she assumed that playing too much tennis was to blame. After experiencing eye twitching an MRI scan revealed brain lesions - symptomatic of MS. She didn't want to take strong, conventional drugs, risking severe side-effects, but chose Low Dose Naltrexone after doing some research.

Following an episode of unrelenting trigeminal neuralgia pain when she asked her GP for LDN but was refused, she changed to a sympathetic doctor  who prescribed it. After only one week the pain had diminished and a month later it had completely gone. The eye twitching also stopped.

She has always had a good diet and exercised regularly. She firmly believes that for LDN to be effective it's imperative to follow a healthy regime. The emphasis should be on strengthening the systems that  keep us well whereas modern medicine focusses on their suppression. 

This is a summary. To listen to the whole Garri's Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) interview please click the video link.

Gabi - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Gabi from the United States shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) Story

Gabi's symptoms began in 1994 during a trip to Italy when she suffered a severe episode of vertigo and was taken to hospital where the diagnosis was inconclusive. It was assumed to be caused by a virus. Two days later it had passed.

Two years later she experienced numbness in her fingers but after two weeks it had gone. Then, in 2000 after her son was diagnosed with cancer she collapsed, sustaining a head injury which required stitches. An MRI scan revealed plaques in the brain. The neurologist advised annual MRI scans.

In 2004 she suffered optic neuritis and although a spinal tap proved negative she was given a Multiple Sclerosis diagnosis. She didn't want to take the strong drugs prescribed so spent 18 months researching and discovered Low Dose Naltrexone (LDN).

In 2005 following an episode of leg weakness she saw a neurologist who refused to prescribe LDN, but she found a GP wbo prescribed it. She started on 3.5mg increasing to 4.5mg in 2006. Her symptoms gradually improved almost imperceptibly and after 3-4 months she had no symptoms. 

Two years ago, when the whole family had a cold she took Nytol containing alcohol and the feelings of numbness returned. The alcohol was rendering the LDN ineffective. 

Since then she takes part in many activities including skiing, cycling and scuba diving. No one realises she has multiple sclerosis. She has publicised it on various MS websites to help other sufferers. 

This is a summary. To listen to the whole LDN and MS interview please click the video link.

Fiona - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Fiona shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Fiona began to feel symptoms of Multiple Sclerosis (MS) in 1979 when she noticed she had pins and needles in her feet much of the time. She went to a doctor who managed to remove the pins and needles and Fiona thought nothing of it for another 20 years.

However, on the way back from work in 1997 she began to feel extraordinarily tired which eventually led to another trip to the GP and her diagnosis. 

Luckily Fiona found Low Dose Naltrexone (LDN) and says that her life has changed for the better, saying that she has regained almost all of her mobility and is functioning almost at 100%.

This is a summary of Fiona’s interview. Please listen to the rest of Fiona’s story by clicking on the video above.

Eveline - Belgium: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I'd like to introduce Eveline who lives in Belgium but is actually a Dutch lady. Thank you for joining me. Evelyn, could you tell us when you first noticed that there's something wrong with you?

Eveline: Uh, yeah, that's worth about, uh, eight years ago. Um, That's when I got hit by a car. And, uh, that's when all the, all my symptoms start, um, my heart doctor was thinking of whiplash because yeah, there are also many fake symptoms.

Um, Tingling all around my body. Uh, I was, uh, I was very, uh, very confused. Uh, I had migraines since, since he thought it was a whiplash. He wouldn't send me to a neurologist, um, about. A half-year later, I got problems with my vision also. Um, I went to a, to an, a, to an eye doctor who said it was, um, uh, he, he could see there was something with my, with my nerves.

It was already, uh, uh, on his resume. Um, but I, yeah, I thought it was, it was very fake. So I, I insisted to, to see a neurologist, um, uh,  yeah, a year later,  I attended one and then the diagnosis was, uh, was, uh, said to them very quickly.

Linda Elsegood: So if at that time, when you were diagnosed, If you had to rate your quality of life on a score of one to 10, 10 being the best, what would you have said your quality of life was,

Eveline: uh, between a three and a four

Linda Elsegood: really,

Eveline: really, really poor.

Eveline: The impact for my life was, was huge because, um, in about a half year, I couldn't work at all because I was a lawyer and, uh, I couldn't sit behind the, behind the computer and because my vision was so, uh, it was so blurry.

Linda Elsegood: And how did you hear about LDN?

Eveline: Uh, that was about, um, eight years later.

I must say there is a whole other trajectory in between because I, um, I, uh, I heard from dr. Masse, uh, that's a Dutch, uh, Dutch doctor who said that, uh, MS. Situ to, uh, multiple foods, uh, influences MS. And, uh, I found out for myself that I wasn't Solomon for, uh, for, uh, for many foods. And I, uh, I eliminated foods from my diet.

And this went very well for about, I think, five, six years then my, uh, my, uh, my intolerance is starting to, uh, to spread, uh, every week. There are there, there were, uh, another three foods for something that I couldn't tolerate. And when I said my, my MS got worse and worse, um, so this was a very troubling, uh, periods and, um, I, I wouldn't, um, I don't want to, uh, to take regular, uh, in this medication because all of the side effects, uh, so I went to, I went Googling, and I heard yeah.

Something about LDN buts, but, uh, yeah, not so much. And, uh, yeah. Then I got very interested in, I, I, I did a lot of research, and I think in a couple of. One or two months. Yeah. I made the decision to, uh, to try it kind of was April, uh, 2014. Yeah.

Linda Elsegood: what would you say your experience was?

Do you have any introductory side effects when you first started?

Eveline: Um, now I have to say, uh, and I don't know if you're familiar with that. Um, I know at first I, uh, didn't have, uh, so-called um, uh, XR, fume, free diet um, now, now he's not in, um, in the, in the, in Belgium, there's a very, uh, uh, on elderly end-users he's, uh, he's my famous, um, he's called Lucas Lamont from extendo, but you know, if we are able with him, Yeah. Okay. Yeah. And he says, um, um, Uh, to have, uh, has the, uh, the most effective as possible from LDN, you will have to, uh, to, uh, uh, follow an extra, extra few free diets.

So that's no gluten, no caffeine, no Soriano spinach, uh, because they were going to same receptors as LDN does. Um, and at the beginning, I, uh, didn't follow such as the diet. Um, so I went, um, slowly, uh, I began with, uh, with acquired the milligram and then, uh, um, I noticed that very quickly when, when my dose is too high.

So when, when my dose is too high, then I have side effects otherwise, no, and the side effects are according to Lucas, Lamar, uh, due to a so-called cough down-regulation, um, this, a particular group of, uh, receptors and receptors that doesn't work properly for me.

Linda Elsegood: What did you notice? What were the side effects?

Eveline: Uh, the side effects were drowsiness, uh, deterioration of my, uh, my MS. Symptoms, uh, such as, uh, cooking, Tucson, clarity, brain fog, um, headaches, um, difficulty to wake up the morning. Um, yeah, that's the side effects. Yeah.

Linda Elsegood: And now you've been on LDN for this length of time. What is your MS like now?

Eveline: Um, my MS.

It's, it's still a combination of, uh, avoiding certain foods and taking all the end buts, but, uh, I'm very less agitated. I am less tired. Um, I've got plenty of energy. , I feel better it's, it's, uh, Uh, overall. So I'm, I'm, I'm less depressed. Uh, I sleep better. Um, and when I do have MS symptoms, um, they pass away more quickly, and they are less severe.

Linda Elsegood: That's good. And what would you say your quality of life is like now on that score of one to 10?

Eveline: Uh, between seven and eight,

Linda Elsegood: but that's quite remarkable.

Eveline: Isn't it? Yeah. Yeah. That's right. Yeah.

Linda Elsegood: Would you say you can still carry on leading at a normal life?

Eveline: Yeah. Yeah. Most of the time, I am. Yeah. Most of the time.

Yeah. But I still say it's a combination of LDN in the, in the diets and then I can, I can lead a quite normalized. Yes.

Linda Elsegood: Yeah. And what would you say to other people that are thinking of trying LDN?

Eveline: Yeah, give it a shot because, uh, but let's start slowly with the dosage and, and, and listen very carefully to your body because your body tells you, uh, what the dosage is is, is quite good for you.

Although there, there are many people that can tolerate, uh, three or even more milligrams. Um, I see in a, in it's a Dutch, uh, LDN for one, there are also many people, uh, who have side effects and who quit, um, too quickly in my opinion. And that's because, uh, so many doctors are, um, giving a description for, uh, like my doctor to start at it's a three and a half milligrams.

But it's yeah. That's why, in my opinion, to start

Linda Elsegood: most people these days start on just, um, 1.5 milligrams

Eveline:   I noticed that 

Thank you very much for your good work and, uh, it's wonderful what you're doing and, let's hope, that LDN becomes more known Thank you. pleased to be able to help you.

Linda Elsegood: thank you for sharing your experience.

 

Any questions or comments you may have, please Contact Us.  I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Eoghan - Ireland: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I'd like to introduce Eoghan from Ireland, who takes LDN for multiple sclerosis. Thank you for joining me, Eoghan. 

Eoghan: Good to be here. 

Linda Elsegood: Could you tell me when you first started to notice your MS symptoms? 

Eoghan: the first symptom was fatigue. I got really bad fatigue the year after I was diagnosed. The first symptom was optic neuritis, fatigue was probably the worst thing I had to deal with because it meant that I had to take a nap in the afternoon. Never needed that before. Having to take a nap was really inconvenient because I'm 26 at this stage trying to get everything else done. And fatigue is no longer a problem. 

Linda Elsegood: Okay. Let's just establish, before you found LDN, apart from the fatigue, what was your life like? 

Eoghan: Oh, uh, pretty, pretty bad I just couldn’t actually wake up in the morning. I used to sleep 16 hours a day. And you know you need rests after everything and now they have six hours to do stuff, which is not much time, especially when you're in college. 

Linda Elsegood: Okay. So what was your condition like just before you started out at the end? 

Eoghan: Well, it was fine. I was pretty good. Actually. My first MRI shows two lesions on the optic nerve on my right side, I think the MRI flipped over, so they weren't too sure which was left. I can't tell anyway. And yeah, I think I couldn't function. It was weird. Like how do you explain fatigue? People, you don't have it. 

Linda Elsegood: That's difficult when isn't it? Yeah. People say, Oh, well I get tired, but tired and fatigue 

Eoghan:  Not the same thing 

Linda Elsegood: So how did you hear about LDN?

Eoghan: research? I'm it guy, so Google is my friend. I eventually figured it out. Okay. So they want to put me on Avonex, which I did for about three months, and I basically developed psychotic symptoms from stabbing myself in the leg with the giant needle every week. It's a stress-related condition and after the Avonex made me go there and nutty and I said I needed something easier to take. Thinking there's gotta be a tablet for this at the time, and they didn't have LDN back then. Oh, eventually, Google helped me find out at the end. Thank God. Did. 

Linda Elsegood: Did your own GP prescribed it for you or did you have to obtain a private prescription 

Eoghan: first? That wasn't too bad. I went into Talla hospital, which is about two, three miles down the road from here, and saw the senior neurologist, and there were others name, I think it was Dr Smith. She and nice lady prescribed me at the end.

I got LDN prescriptions from a neurologist, but I had to talk them into it? So I have to do a lot of research beforehand. Prove efficacy and safety, and tolerability are the big three I had to for them. And bingo, I got my prescription that very day. 

Linda Elsegood: And when you first started, did you notice any introductory side effects?

Eoghan: the wacky dreams are pretty good. Um. Other than that, it's really. It's kind of hard to fall asleep so I take rescue remedy. And that's supposed to be knocked me out at night. 

Linda Elsegood: Okay. So what are your symptoms now? How many hours a day are you sleeping? 

Eoghan: Um, Oh, nine ten, I'm still in college. 

Linda Elsegood: Right. What about your optic neuritis? 

Eoghan: I could see just as well without glasses as I can with glasses apart I need glasses to see more than four feet in front of me. 

I went to see an optometrist nice man, by the name Tony McLaren, he said, well, you'll need prisms in these glasses.

So I went down to vision express, got myself the student discount, the health board discount, the special Easter discount as well as the time. Uh, basically got the most expensive in the shop with the most expensive lenses for half price! It's just really about the same as a regular pair of glasses, 

Linda Elsegood: What would you say to other people who are contemplating trying LDN? 

Eoghan: it's risk-free This medication will not hurt you. It cannot hurt you. The doctor's say First, do no harm. It's just great because all the other ms medications will leave you feeling totally crap and with LDN you feeling a little crap, but only if the first six months. 

Linda Elsegood: Thank you for sharing your experience with us.

Any questions or comments you may have, please Contact Us.  I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Elizabeth (2) - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I'd like to introduce Elizabeth from England, who has multiple sclerosis; welcome Elizabeth.

Elizabeth: Hello

Linda Elsegood: Could you tell us when you first started to notice MS. Symptoms?

Elizabeth: Well, I didn't that they were there, but I didn't really take any enough to support them. I think, um, they started after I had glandular fever in my when I was a teenager, but so I'm not particularly aware, so

I didn't think it was strange that I would fall over and, um, I had very bad headaches.

So I never thought it was strange. So it was my husband that took me to the doctors. He thought there was something wrong with me, and the doctor thought it was oxygen deprivation at birth.

That's why I was a bit wobbly, but I never thought I had any. Well, I certainly do recognize, and there was something wrong with me. And neither did my family. And so it was a complete surprise when I was diagnosed with MS, after a brain scan

Linda Elsegood: And what age were you at the time you had?

Elizabeth: 32. I'm 44 now 32.

Linda Elsegood: So how does that affect your mind being told you have MS.

Elizabeth: Well, It just made me, well, it had this effect on me of just going into complete denial and going back to work and working very hard and just kind of pretending.

I'm just going to carry on with my career because I had a very successful career. And I was a bit upset. I was just to do a job in Singapore, and when I was diagnosed, well, they wouldn't let me fly. So we struck into the hospital. So I was upset that I couldn't do this high profile job in Singapore.

Um, um, the people that I work with, um, after the diagnosis, they, they didn't really understand what it was. My boss gave me a very high powered project, which looking back probably wasn't the best thing today. And, and, and my father was very poorly at a time as well.

I'm an only child. So my family didn't really take much notice of the diagnosis because my father was a very serious man.

Linda Elsegood: what were your symptoms at the time you found LDN?

Elizabeth: Well, pain in the night, like, um, pain in my head as well.

Linda Elsegood: Um, when did you find out the end?

Linda Elsegood: Um, did you manage to get your own doctor to prescribe LDN?

Elizabeth: No. No, because my doctor, I talked to her about when she said that she wasn't able to do that.

Linda Elsegood: So once you started, did you have any introductory side effects? and how long did it take for you to notice that LDN was doing anything for you? 

Elizabeth: let's say that's the primary thing, but I notice quite quickly, um, I'd say within. Within three, weeks of taking it.

Linda Elsegood: What about your other symptoms has LDN helped relieve any of those?

Elizabeth: So in terms of walking then still got problems in there. Like when I don't walk for a while, Um, had I seen a dramatic improvement.

So I don't have headaches. Like I used to have.

Linda Elsegood: Did you have any problems with your bladder?

Elizabeth: Yes. And yes. Optionally.

Linda Elsegood: fatigue,

Elizabeth: fatigue, um, goes in waves.

Linda Elsegood: So how would you feel, how would you say LDN has helped your quality of life?

Elizabeth: I wouldn't like to stop taking it, it's very good for me, LDN and really, I suppose the only true measure that I would be able to find this if I stopped taking it.

Linda Elsegood: Well, what would you say to other people who are contemplating trial at the end? That might be a little bit scared

Elizabeth. Well, I'd say you've got to try and to do the research and to look at all the testimonials. And then to make an informed choice. And I mean, I think politically the reason is nothing to do with the effectiveness of the drug, um, there's no money in it.

Linda Elsegood: Well, thank you very much for sharing your story with us, Elizabeth, and I hope you get all your problems sorted out soon.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Elizabeth - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Elizabeth began experiencing symptoms in 1990 but wasn't diagnosed with MS until 2004.

She had a late diagnosis and wasn't actually diagnosed until 2004. She would have numbness in her legs lasting for a week or two, recurring every couple of years and gradually deteriorating until in 2004 she lost coordination and was unable to walk. After the diagnosis, she quickly advanced to the secondary progressive stage.

The diagnosis came as a relief as she thought she'd suffered a stroke.

Since taking Low Dose Naltrexone her life has improved considerably and she wishes she had commenced treatment earlier as her left leg is quite severely affected. Her quality of life has gone from 9 to 1 in terms of wellbeing and to 3 physically because of impairment. She now feels more relaxed, her walking is less jerky and, most importantly, within three days she recovered control of her bladder.

She heard about LDN from a fellow MS sufferer and decided to try it but was unable to get a prescription as it's off-license. 

She obtained it through Prescribe For Me.

She had no adverse side effects from LDN apart from disturbed sleep patterns and vivid dreams. She felt much better and more relaxed and knew the LDN was working within three days.

Her partner has even begun taking it as he is envious of her resistance to infections!

This is only a summary of the interview. To hear it in full click on the link.

Eileen - Ireland: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Eileen from Ireland, was diagnosed with Multiple Sclerosis(MS) at the age of 27. She experienced poor vision all of a sudden during a hockey match, so saw her GP. After a lumbar puncture she was diagnosed. Eileen also experienced fatigue and loss in ability to walk. She heard about LDN through a friend who forwarded her articles, which got Barbara looking further into it. She was prescribed Low Dose Naltrexone (LDN), and started taking the medication in November. Barbara says that it has lifted her fatigue and halted the progression of MS.

When asked what she would say to those contemplating taking LDN, Barbara replied with “go for it. Absolutely. No hesitation at all.” 

This is a summary to listen to the entire interview click the video link. 

Dr Tom O’Bryan, LDN Radio Show 27 Sept 2017 (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Dr Tom O'Bryan shares his Low Dose Naltrexone (LDN) experience on the LDN Radio Show with Linda Elsegood.

Dr Tom O’Bryan discusses his book, The Autoimmune Fix. Expect continual OMGs.The prevalance of autoimmune disease is the #3 cause of getting sick and dying in the world. Autoimmune diseases progress over years, till enough tissue is damaged that enough symptoms appear to get a diagnosis. For example, a very early sign of Parkinson's is loss of sense of smell, and can be predictive of death within 5 years.

Measuring our antibodies can predict illness in its early stages. Antibodies cause cellular damage, then tissue damage, then inflammation, and eventually organ damage. 

Getting this in control early is important. Most of us are bombarded with toxins every day, so learning how to avoid them is crucial to a good healthy life. LDN is helpful in bolstering and regulating our immune system so that it can naturally fight off these elevated antibodies.

This interview includes some valuable knowledge for all listeners concerned with how to combat autoimmune diseases, cancers etc.

This is a summary of Dr Tom O’Bryan’s interview. Please listen to the rest of Dr O’Bryan’s story by clicking on the video above.