LDN Video Interviews and Presentations

Tamar - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Tamar was diagnosed with Multiple Sclerosis (MS) in February 2006, where she just turned 30 during the time. When Tamar was 17 she encountered Glandular Fever, and then MS came about when she was around 30 which was rather common. 

In the month of September, 2005 she started feeling extremely tired, she had trouble with her perception and depth, for example, reaching the door handle, or skipping a step on the stairs. This is when Tamar went to bed for a few days and felt progressively fine about a week later! After some time, Tamar started to feel exhausted, freezing cold and difficulties with her speech, where she resulted in the rest of the month in bed, not knowing what was wrong. 

That following December, Tamar’s hands and feet began to feel numb, the next day she had pins and needles down one side of her body; which then resulted in a quick diagnosis of now having Multiple Sclerosis (MS). 

Tamar found out about LDN through MS Society Chat Rooms when she was first diagnosed. At this time Tamar felt like she didn’t need disease-modifying drugs, because she was not ill enough for those. This is where she found the LDN website asking for advice, and in March 2009 she began taking them, 2 years after her diagnosis of MS. The NHS does not license LDN medication so Tamar had to access these privately. 

Tamar realised that she had some improvement after a few months of the LDN medication, but 3-4 months before a real change. LDN has helped with Tamar’s spasms and pain, and now feels normal again, where she has expressed that it has really improved her life, and how she would recommend it to anyone. 

Summary of Tamar’s interview, please listen to the video for the full story.

Any questions or comments you may have, please Contact Us.  W look forward to hearing from you

Keywords, LDN, MS, Multiple Sclerosis, Low Dose Naltrexone, numb, speech, cold, temperature, exhausted, perception and depth, tired, Glandular Fever

Sue - US: Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Sue from the United States was diagnosed with fibromyalgia five/six years ago. She first started symptoms years before the official diagnosis. She experienced persistent pains in her shoulders, spine and buttocks; she was insistent it was not muscle pain. Other symptoms included brain fog, and low energy.

Sue has been taking LDN for almost two years now and experienced no initial side effects. However, she did feel instant benefits from the medication, saying she felt relief by the next day. Sue’s pain has considerably lessened since starting on LDN. She still feels pains, but only when she overworks and claims it is not related to Fibromyalgia. 

Sue says that LDN is certainly worth a try when asked what she would say to those contemplating it.

For the entire interview, watch the video.

Any questions or comments you may have, please contact us.

Sheila - US: Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Sheila is a nurse. Her symptoms began in 2010 and included generalized pain, crying, and fatigue/no energy. When her neurologist diagnosed her fibromyalgia, she rated her quality of life as 3 on a 10-point scale. She also takes amitriptyline for migraine. She was seeing a doctor who balances hormones who finally suggested Sheila try low dose naltrexone (LDN). At first it interfered with her sleep so she continued taking melatonin, Benadryl, or Xanax to help fall asleep; but she quickly noticed improved mood. After 2 months at 1.5 mg fatigue returned, so her doctor increased her to 3 mg for a month without improvement, then to 4.5 mg. Vivid dreams were a problem, but she takes LDN in the morning and is doing well. She rates her quality of life now as 9 on a 10-point scale. Her sister also has fibromyalgia and is starting LDN. Her sister’s husband has an autoimmune disease - inclusion body myositis – and started LDN and his mood is improved and he’s energetic. Her niece has lupus and will start LDN soon. Sheila recommends LDN to anyone with fibromyalgia, MS, or any autoimmune disease.

Keywords: pain, crying, fatigue, fibromyalgia, autoimmune, inclusion body myositis, lupus, MS, LDN, low dose naltrexone

Summary of Sheila’s interview, please listen to the video for the full story. Any questions or comments you may have, please Contact Us. I look forward to hearing from you.

Sarah - England: Multiple Sclerosis (MS)(LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Sarah from England was diagnosed with Multiple Sclerosis (MS) in 1995 after an MRI scan due to optic neuritis in her right eye and a tingling sensation in her right cheek.

Sarah’s brain doesn't use her right eye on a day to day basis, and describes it as “looking through fog when vision kicks in.” 

In 2002 after more testing, she was told she didn't actually have MS by a neurologist. However, in May 2010, Sarah felt a strange sensation and numbness in her fingers and feet, and pain in her neck that was so bad she could barely move it. She was re-diagnosed with MS in June of the same year after various tests such as an MRI. 

After speaking to her GP about Low Dose Naltrexone (LDN), she was refused prescribal, so sourced an online doctor which gave her the prescription. Sarah noticed her fatigue had eased after around two weeks on the medication. She had an operation in August whilst still on LDN, and shortly after, practically all symptoms had gone. She still experiences light numbness occasionally, but overall her quality of life is much better.

For the entire Low Dose Naltrexone (LDN) interview, watch the video.

Any questions or comments you may have, please contact us.

Sarah's Daughter - England: Autism, Auditory Hallucination, Chronic Fatigue Syndrome (CFS/ME) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

On behalf of Jasmine who takes LDN, Low Dose Naltrexone medication for Autism we are talking to her Mother, Sarah both from the UK. Jasmine has been diagnosed with chronic fatigue, chronic pain, which she's had for about three years. Jasmine first started experiencing signs of autism at the very young age of 18 months old. But only got diagnosed at ten years old.

Due to her autism, Jasmine was very lonely, couldn't make any friends and didn't really understand what was happening around her. Pain started happening when she hit puberty at 11 years old, where she was experiencing  pain in her hip which spread to her leg, elbows; and started having nodules on her fingers and rashes on her legs. Quoting that her whole body was painful. She was also experiencing fatigue problems, and even auditory hallucination, making her anxious and lethargic. 

After researching on the internet, Sarah came across the Low Dose Naltrexone (LDN) .Jasmine visited her doctor to measure her nutrition and blood, where they came to the conclusion that LDN may be useful to her.

Jasmine’s appetite was appalling, she came out of school due to not being able to cope. She could not walk or exercise very much at all. 

Jasmine’s introductory side effects included lots of night terrors, seeing things and hearing voices, but when she first started LDN these were the first things to disappear. Energy levels increased, and she could start to walk for a longer amount of time and not feel tired. Now, Jasmine is back in school and can even take part in cross country, the family life has also improved for all.

Please watch the video to view the whole interview. Thank you 

Any questions or comments you may have, please contact us.

Sandra - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Sandra from the United States takes Low Dose Naltrexone (LDN) for Multiple Sclerosis (MS).  

Sandra was diagnosed in June of 2004 at the age of 42. Symptoms included extreme fatigue, blurred vision and vertigo, severe muscle cramps, spasms in legs and feet, and numbness in hands. These symptoms impacted Sandra’s life a lot, she was unable to drive to grad school and relied a lot on her partner. Also, in 2010, she even had to stop working due to lack of rest and severe bladder symptoms.

After doing research on Low Dose Naltrexone (LDN), Sandra found research groups on Facebook and spoke to her primary care physician where they decided to prescribe it for her.

Sandra experienced no initial side effects with the LDN medication, and after her first night of taking it, she slept through the entire night. After increasing her dosage, she also noticed a reduction in her fatigue levels. Overall, her quality of life is a lot better because of LDN, she feels as though she is not a prisoner in her own home, and she can now go places and not have to worry.

Sandra definitely recommends people to try the LDN, she quotes how there is nothing to lose, and quite a lot to gain.

This is a summary to listen to the entire interview by click the video link.

Renee - US: Fibromyalgia, IBS, Chronic Fatigue Syndrome (CFS/ME) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Renee from the United States suffers from Fibromyalgia and Chronic Fatigue Syndrome. At the age of 50, her body started giving out, resulting in her not even being able to go shopping. She could barely walk and was experiencing a lot of pain.

Renee found out about LDN last year and began researching, realizing she wanted to try it out. However, her GP prevented that from happening, so she decided to order her own online. Renee finally started taking it in April of this year. By the second day on the medication, she had already noticed she felt less fatigued. And by the fifth day, she could walk without limping. She also realized her depression had gone, leaving her with a better outlook on life. Renee had gained her appetite back as well.

Reene noticed that within the first week she had started getting diarrhoea and stomach cramps that lasted around five minutes, however this could be something to do with her IBS as well.

When asked what she would say to people thinking about taking LDN, she recommended they went for it, and also insists that they do research into it beforehand, to feel more confident with it.

For the full interview, watch the video.

Any questions or comments you may have, please contact us.

Ray - England: Multiple Sclerosis (MS), Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: Hi I would like to introduce Ray from England who takes LDN for Multiple Sclerosis and Fibromyalgia. Thank you for joining me Ray.

Ray: Thanks very much.

Linda Elsegood: Could you tell me when you first started to notice symptoms, which led to your diagnosis?

Ray: I collapsed in 2009 but about three years while I was working before I got diagnosed with MS, I noticed always feeling very tired after work and would sleep in the evenings.

And my MS Smith said there are probably developed MS and Fibromyalgia while I was working, but when I collapsed in 2009 that was a definite diagnosis, and that's when my illness eventually kicked in.

Linda Elsegood: What old were you then?

Ray: 41

Linda Elsegood: And how that does impact on your life?

Ray:  Well, I'm lucky that I worked for Honda and I've got a very good pension, and I've got health insurance on my pension, so financially I am ok. I claim some benefits.

It's been just over two years now for me, and I haven't really noticed a great deal apart from the fact that I would try to do things when I'm feeling good and then it would, the fatigue and chronic pain would hit me a day or two days later, and I can deal for a couple of days a week, two weeks. It's just a very unpredictable disease MS and the fibromyalgia with fatigue and chronic pain as well, so it impacts on my life quite a lot at the moment. And I went to the MS centre today because the lord mayor was there and I had to go on an exercise bike, and have my picture taken and I couldn't even lift my leg into the stirrup when I was sat down.

And that was a real eye-opener for me today that I was sat in a chair, and you got these pedals in front of you. It's like an adopted bike and I couldn't lift my legs while sitting down. I mean, I consider myself to be generally,  a lot more able-bodied than most of the people in there because I can walk around and I thought I could bend my legs really well in a seated position trying to get my legs into the bike today.

Linda Elsegood: Well before you heard about LDN, what were your symptoms like at that time?

Ray: I was really ill. I felt like I had really bad flu symptoms feeling generally yucky every day. I was definitely feeling really unwell.

Linda Elsegood: What about pain? What was your pain like at that time?

Ray: That was really bad as well. I've tried several types of medication from my Ms nurse and then eventually got on to Pregabalin which helps neurological pain, and that helped me a lot, but I still had the yucky illness feeling most of the time.

Linda Elsegood: So if you went to score your quality of life on a scale of one to 10,  10 being the best before you started LDN, what would it mean?

Ray: Before I started LDN I would say it was a 4. Now I would say it's about 8 or 9.

Linda Elsegood: That's fantastic! That's really good. So how did you hear about LDN?

Ray: My brother's mother-in-law has got fibromyalgia really bad. She got it for 20 years, and she said to me: " Why don't you try LDN?" I said: " Well, what is that?"

And she gave me the website address, and my doctor was willing to give me a prescription every month and to get my medications and Dickinson's pharmacy in Scotland. The last year, it's being paid for on NHS. So I didn't pay for anything.

Linda Elsegood: That's really good. So when you first started, did you notice any side effects?

Ray: No, I didn't. Not at all.

Linda Elsegood: All right. And how long do you think it took before LDN started to work for you?

Ray: Probably about six months.

Linda Elsegood:  And what did you notice?

Ray: I mean with fibromyalgia, every morning you wake up, you still feel very fatigued.

But that's also the same in MS Still the case now, but I know that after about two hours, I'm okay and I haven't got this yucky flu-like symptom. I haven't got any of that anymore.

Linda Elsegood: What would you say to other people in your situation who were thinking of trying LDN?

Ray: I would say: " Do it!"  because we did notes on LDN.  It stimulates the body's endorphins naturally to make you feel a little bit better. It just makes endorphins in your body and I would say to people: "Try it because it's really good. "

Linda Elsegood: Well, thank you very much. Is there anything else you'd like to add before we go?

Ray: Not really. That's all I can say is anybody out there to speak to their doctor, go to the website, print off all the information, show to the doctor and try and get a prescription from your doctor. And then get the LDN, basically.

Linda Elsegood: Thank you for your input.

Any questions or comments you may have, please Contact Us.  I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Rachel - Japan: Ankylosing Spondylitis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Rachel from Japan takes Low Dose Naltrexone (LDN) for ankylosing spondylitis. Rachel was only fourteen years old when she became ill.  Her symptoms were fatigue, spinal pain and many other debilitating things - she was misdiagnosed and treated with drugs that caused further issues. Eventually, after researching for herself, she found Low Dose Naltrexone (LDN) and had significant improvement from day one and things got better as she increased her dose slowly to 3 mg.  Eventually she increased to 4.5 mg and now has mental clarity and energy.  Rachel still has pain on some days due the length of time and the other treatments conventional medicine treated her with.  Her daughter also has the same complaints so Rachel recommended Low Dose Naltrexone to her daughter so that she could take it early on in the disease process so that she doesn’t suffer the same fate as her mother. 

For more information about Low Dose Naltrexone please visit https://ldnresearchtrust.org/

Rachel - England: Chronic Fatigue Syndrome (CFS/ME) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Rachel from England takes Low Dose Naltrexone (LDN) for Chronic Fatigue Syndrome (CFS/ME). She first noticed symptoms in 1990 when she started dropping things and her memory was failing her, this progressed to fatigue and then, in 2003, she lost the use of her left side. For three years she had difficulty getting any diagnosis and then eventually found a doctor who could help.  

The new doctor started Rachel on Low Dose Naltrexone (LDN). Within a month her symptoms went away and she felt that it had completely transformed her life. There was a period when she couldn’t get LDN and her symptoms came back so she searched again and got more prescribed and again she improved quickly. With Low Dose Naltrexone Rachel feels that she can get on with her life, doing all the things she wanted to do which would not have been possible before. Before LDN she said she had no quality of life, and now it is a strong 7 out of 10.

For more information about Low Dose Naltrexone please visit https://ldnresearchtrust.org/