LDN Video Interviews and Presentations

Radio Show interviews, and Presentations from the LDN 2013, 2014, 2016, 2017, 2018 and 2019 Conferences

They are also on our    Vimeo Channel    and    YouTube Channel

Deidre - US: Small Intestinal Bacteria Overgrowth (SIBO) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Deirdre shares her SIBO and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Deirdre first noticed an issue with her digestive system upon returning from Mexico. At the time, she was only 20 years old and the issues weren’t attributed to anything serious. However, this progressed to the point where her diet became very restricted and she was only capable of eating certain foods without triggering a reaction.

Her symptoms developed to the point where her joints began to ache and she sought out a solution to her problem, which is when she found that Low Dose Naltrexone (LDN) can be effective in treating patients with Small Irritable Bowel Syndrome (SIBO).

The LDN has enabled Deidre to expand her diet and return to regular exercise, removing the joint pain. In this interview she emphasises that she is hugely relieved and owes her recovery to LDN.

This is a summary of Deirdre’s interview. Please listen to the rest of Deirdre’s story by clicking on the video above.

Annie (2)  - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I'd like to introduce Annie from England who has multiple sclerosis? 

Good morning, Annie. Could you tell us when you were diagnosed with MS?  

Annie: I was diagnosed when, 30 years ago, so that would have been, golly, I can't even say what year I was the very late twenties, 29.

Um, but I had problems with my light eye from my teens, as it transpires it was probably the MS, but I've had it for quite a long time. 

Linda Elsegood: And how did it impact on you at that time being diagnosed? 

Annie: Um, well, they told me at the time actually, that I had a viral infection, and so I tested. Took it, but that was it. But they had actually written down on my notes that it was MS. And it wasn't until ten years later when I had quite a serious relapse, uh, that they sent me for an MRI scan. Then they said, they didn't tell me because it would have affected the quality of my life, but I'm glad they didn't actually because I would have been stressed out as it happens.

I had ten great years. Uh, I was not worrying about anything health-wise. 

Linda Elsegood: It's always a blessing, 

Annie: isn't it? Absolutely. 

Linda Elsegood: And were you offered any medication when you had this relapse?

Annie: Um, yes, I, I think I was taking steroids at the time, some kind of steroids. Um, I can't remember what it was called.

Linda Elsegood: And how bad was your MS? 

Annie: Um, well, compared to others, not that bad, but, um, I had no feeling from my waist downwards on the left-hand side. And so when I sat there, and I couldn't feel that I was sitting down, I amused my friend one day. I went to her house, I sat down on the chair as I thought, and I actually ended up on the floor, and she couldn't stop laughing because I couldn't feel the chair.

Um, but that kind of passed after some months, I think I just have the left side is a lot weaker than my right side. 

Linda Elsegood: So have you had any other symptoms, other those that you've just told us about? 

Annie: Right. Well, after I spoke to you a couple of weeks ago, I went into another relapse. I don't know if that's a word to use really.

So we haven't been great. Um, I told the doctor and he wanted me to take a ten-day course of steroids, which I did. Um. And I'm feeling much, much better now, but he did say to stop taking the LDN, so I did  and I started that up next week, I think the consequence of that relapse is that my left-hand motor skills are quite poor now.

I could still use it, but it's poorer than it was. But I'm still walking. 

Linda Elsegood: That's a big deal. So how did you hear about LDN? 

Annie: Um. I went to my doctor about something and I said, Oh, I am fed up. He said, why are you using that stick? Because I use a stick sometimes cause I'm a bit wobbly from time to time.

I said, well, I've got MS. He said, don't give me that. He said Google LDN and then come back and if you want to use it. And so I Googled it and I was quite impressed by what I read, so I thought I'll take this stuff. And so I've been taking it ever since.

So, um, I suppose it must be between six and nine months, at least. Maybe a year. I've been taking it for.

Linda Elsegood: Oh, you've got a very good GP. 

Annie: Yes, he is. He's great. 

Linda Elsegood: Also these days though, you can actually take LDN and steroids at the same time. So you need to be afraid of restarting, 

Annie: right? Yeah. Oh, that's interesting because it does say you shouldn't stop taking it, and I was a bit concerned that I would be doing damage anyway.

I seem to be okay, but as I say, I'm going to stop. 

Linda Elsegood: Your motor skills come back and lots of people have told me how it has helped relapses whilst taking LDN. They find that the relapses are not as severe, they don't last as long and they recover more or less fully from the attack.

So that would be interesting to see if that is the case with you.

Annie: Yeah.

Linda Elsegood: What would you say to other people who are contemplating 

trying LDN?

Annie: My view is you've got absolutely nothing to you, nothing to lose and I don't know if it's doing me any good. Psychologically, it's helped me tremendously. There must be something good in it for sure because I push myself to the limits and it is allowing me to push myself to the limits, you know?

So I would encourage anybody to try it, just try it and see if it doesn't suit them, that's fine. But I haven't had any adverse effects, you know, I'm just very happy to take it.

Linda Elsegood: Did you have any introductory side effects when you first started?

Annie: yes. I had a tremendous headache. Um, I'm prone to migraine anyway, and I think apparently that's part of the ms thing. I had a bad headache for several, several days, nearly a week actually and then it went, and I've been okay ever since. I still get the monthly migraine, but yes. Yeah. Um, I, I spoke to consultants about it, and they said it's something to do with the MS. People with MS can get migraines. We could also get rather depressed but I'm never depressed. Thank God.

Linda Elsegood: Is there anything else you'd like to add?

Annie: Mmm, I do think so. It's just that I don't know if the LDL is doing anything, but I think it must be because I've had this now for a very long time—this condition. And you know, as I said, I'm 62, and I'm doing really, really well. I had to do a bit of walking this morning, which I wasn't expecting. I had to put my car into the garage, and it had to stay there. So I had to go and get a bus to come home and walk from the bus stop. And I was able to do it with one stick, but I don't think I would have done that a year ago. So I'm thinking the LDN is helping somehow. 

Linda Elsegood: Very good. Well, thank you very much for sharing your story with us.

Any questions or comments you may have, please Contact Us.  I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Anne-Maree - Australia: Hailey-Hailey Disease (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Anne-Marie from Australia who is 47 at the moment has suffered from Hailey-Hailey disease since her twenties. It was always misdiagnosed as eczema until about three and a half years ago after a biopsy revealed the true cause. It began with outbreaks under the armpit which would then develop a bacterial infection. The severity of these outbreaks has increased with age.

The recurrent infections were always treated with antibiotics. Her GP began investigations and a biopsy was taken and a correct diagnosis made. 

Following a hospital admission a year ago when her condition had worsened and she was being treated intravenously Anne-Marie did some research and discovered LDN and a Facebook worldwide support group of Hailey-Hailey disease sufferers.

Within two days of taking low dose Naltrexone prescribed by her forward-thinking GP, she noticed a distinct improvement with no introductory side effects. She began with only 0.5ml and gradually increased the dosage. The outbreaks dried up quite rapidly which was significant as the main problem with this disease is the risk of secondary infections. As a result of prolonged use of steroid creams causing thinning of the skin, she is susceptible to these. A mere scratch can trigger a Hailey-Hailey outbreak.

Instead of antibiotics, she is now able to treat the infections naturally with tea-tree, lavender and vinegar. 

Living on the coast she is now, thanks to LDN, able to go to the beach, take her children swimming and do volunteer surf lifesaver work.

She recommends it to all fellow sufferers.

This is just a summary. To hear the full interview click on the link.

Zora - Trinidad: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Zora from Trinidad shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Zora first noticed her Multiple Sclerosis (MS) symptoms after the birth of her last daughter in 1980. The symptoms included excruciating back pains, fatigue and muscle pain. After her doctor said the problems were not gynaecological, Zora did some research and was diagnosed after four months.

She said “After I began taking Low Dose Naltrexone (LDN), my health began to soar. LDN has resolved my back pain and fatigue, I can exercise and interact socially again which is life changing.

To anyone considering LDN, you must try it. You’ve nothing to lose, the side effects are very minimal, if you have any at all.”

This is a summary of Zora’s interview. Please listen to the rest of Zora’s Multiple Sclerosis (MS) story by clicking on the video above.

Linda Elsegood: Welcome to the LDN radio show brought to you by the LDN Research Trust I'm your host, Linda Elsegood. I have an exciting lineup of guest speakers who are LDN experts in their field. We will be discussing low-dose naltrexone and its many uses in autoimmune diseases, cancers, etc. Thank you for joining us.

Zoe - England: Chronic Fatigue Syndrome (CFS/ME) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I'd like to introduce Zoe from England who has multiple sclerosis. Welcome, Zoe.

Zoe: Hello.

Linda Elsegood: Could you tell me when you first started to notice symptoms, and how old were you then?

Zoe: In 1993 I started getting numbness in my toes, but I wasn't diagnosed until 2001. I was 51 at that time, I was a very active person. When I first started getting symptoms, I used to compete successfully in orienteering triathlons. My children were still at secondary school and I was working part-time. 

Linda Elsegood: At the time you were diagnosed, what were your symptoms 

Zoe: I had optic neuritis and, or a long time I'd had problems with foot drop, then I was getting problems in my leg. I hadn't connected the two, but of course, when I saw a new neurologist, he realized and so I got the diagnosis. 

Linda Elsegood: And how's the impact on your life being diagnosed with MS?

Zoe: Well, obviously I had to stop running my sporting activities. It just went downhill. I couldn't read a map, and I couldn't run, so orienteering wasn't possible, and it was really devastating to be told you have an incurable disease, which is only going to get progressively worse. You tend to go into deep despair, but I did have a very supportive family, and they just gave me enough space to come to terms with it. Which I suppose I did in my own way. I could still run a bit then, but it just became gradually worse over the years. I didn't have any very serious symptoms. The optic neuritis was just gradually getting worse. 

Linda Elsegood: And how did you hear about LDN? 

Zoe: Well, I read that in youth pathways, and I also joined the MS group and some people in that group were taking it. I think that was around about 2004 when I first heard about it. 

Linda Elsegood: When did you first start taking it again? 

Zoe: I didn't start taking it until 2010. I had tried before then; I had no luck getting LDN when I first wanted it, which was 2005. I got a load of information from new pathways. I sent it to my neurologist and to my GP. And when I discussed it with him, he just dismissed it. He said, Oh, that's just a placebo. You might just as well take all paper paste. So I said to him, well, what do you recommend? What can you do for me? He said, there's nothing I can do for you. He didn't have any alternative. I've never seen him since, so I asked my GP if she would prescribe it, but she said, Oh no, I can't go against what the neurologist said. So that was it really. I believe I could have gotten a prescription from the States or something, but I don't know. I just didn't go down that road. I tried lots of other remedies, with diets and various things. I tried antibiotics. They all helped to some extent, and I think that was the placebo effect.

Eventually my MS nurse said, what don't you see this neurologist, another man. And he said there was no harm in trying the LDN though he didn't encourage it. And by luck, my GP was having a baby and her replacement said you can try this, good idea. So I eventually started it in December last year. 

Linda Elsegood:  Did you notice any initial side effects? 

Zoe: Yes, I did. I got a headache which lasted about a week. I felt very dizzy at first. The first day I felt dizzy and I didn't dare drive a car. The headache lasted about a week and then went off, but I also felt very sleepy. When I increased the dose, I could get the unpleasant dreams, which is sort of usual side effects, I believe. 

Linda Elsegood: And how long did it take before you found that LDN was a benefit?

Zoe: It started being beneficial more or less about the first three weeks, I suppose. 

Linda Elsegood:  What benefits have you noticed being on LDN? 

Zoe: My energy increased. I was up to do more. I don't get so tired, and what I really noticed after a couple of months, was that my concentration had really improved. I could think about things without getting muddled like I used to. I did a tax calculation, which I'd been putting off for months, and I found I could go out in the evenings and do things like that. I kept doing things I hadn't done before, not all at once. I mean, you know, and another day I washed the car, and I kept thinking, I haven't done that for a long time.

Linda Elsegood:  If you were to score your quality of life on a rating of one to 10, 10 being the highest before you started LDN, what would it have been? 

Zoe: Oh, four. I should think. 

Linda Elsegood: What would you say to other people who are contemplating trying LDN

Zoe: I think they should go for it. Start as soon as you can, if you can get. If you can get it you might need to persevere to get through the initial discomfort. I would say the starting dose seems to be quite critical. I got it in a liquid form, and it was easy to adjust. So although I started at three milligrams, I reduced it quite soon to two milligrams and I found that I could cope with that better. So that's probably why some of those headaches and tiredness went. It's quite an easy thing to do, and you just need to persevere. 

Linda Elsegood: Well, thank you very much for sharing the story with us. 

Any questions or comments you may have, please Contact Us.  I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.
Linda Elsegood: Any questions or comments you may have please email me at Contact@ldnresearchtrust.org I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well. 
 

Yvonne - US: Fibromyalgia, Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Yvonne from the United States takes low dose naltrexone (LDN) for multiple sclerosis and fibromyalgia. She had lifelong tremors, later developed dizziness/vertigo and frequent bladder infections, and finally eye problems.  All before age 20. She rated her quality of life as 3 to 4.

A friend of MySpace told her about LDN, and started taking it in October 2010, and feels her quality of life has gone up to 7 to 8. She no longer needs pain pills often.

She definitely recommends LDN for how it has improved her quality of life.

Listen to the video for the full story.

Any questions or comments you may have, please contact us at contact@ldnresearchtrust.org. I look forward to hearing from you. Thank you for joining us today. 

Wilma - Netherlands: Hashimoto's Thyroiditis, Hypothyroidism (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Wilma from the Netherlands shares her Hashimoto’s and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Wilma first noticed problems with her thyroid in 2011 and was swiftly diagnosed within a year with Hashimoto’s, which had a big impact on her life. Wilma could no longer walk, and things worsened when her appendix broke.

Around 2014, Wilma discovered Low Dose Naltrexone (LDN) and has not looked back at any treatment since. 

She said “It’s completely changed my life. I was probably operating about 30% beforehand. I felt better within six weeks of starting LDN. My life’s gone from 3/10 to 9/10.

Don’t be afraid to try LDN, especially if your own GP won't prescribe it to you. Be persistent and try somewhere else, because the benefits are there to be seen.”

This is a summary of Wilma’s interview. Please listen to the rest of Wilma’s Hashimoto’s story by clicking on the video above.

Wendy - Wales: Psoriasis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Wendy from Wales takes Low Dose Naltrexone (LDN) for Psoriasis. She first started noticing symptoms twelve years ago. She found lots of dry patches on her elbows and knees so was prescribed a steroid cream. However she felt it was not working, as after she stopped using the cream it was worse and had spread to other parts of the body. Wendy states that around two and a half years ago is when the Psoriasis peaked, as it had spread all over her whole body.

Wendy has been taking Low Dose Naltrexone (LDN) for approximately two years now. She felt no introductory side effects, and after months of taking the medication she has noticed improvements in her skin such as a more natural colour and texture, less itchiness, cracking and the skin has regenerated. 

This is a summary, to hear the whole interview click the video link.

Wendy - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Wendy was diagnosed with Multiple Sclerosis in 2000 at the age of 60. She first heard about Low Dose Naltrexone on an online forum and her doctor refused to prescribe it so she got a prescription privately. 

On starting LDN Wendy had a little sleep disturbance to begin with and that settled down within 3 weeks, other than that no other side effects but she did start to feel better within a month. Although LDN hasn’t fixed everything for her her quality of life has improved and she says she would happily recommend Low Dose Naltrexone to other MS sufferers. Her friends with MS are sadly afraid to try LDN which is a great shame. 

For more video interviews with patients and medical professionals please visit https://ldnresearchtrust.org/ldn-videos

Wendy - US: Hashimoto's Thyroiditis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Wendy from the United States shares her Hashimoto’s and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Wendy began to feel ill a few months after she had returned to the United States from ground zero at Chernobyl in May of 1986. Her symptoms included intense brain fog, fatigue, muscle pain and diarrhoea to name a few.

By 1988, many doctors thought it was cancer; it wasn’t until 1990 that Wendy was diagnosed with Hashimoto’s. Wendy’s body was not responsive to any of the treatments until she found Low Dose Naltrexone (LDN).

She said “Within six to eight weeks (of starting on LDN) my dizziness was gone, my brain fog had begun to clear and I was able to exercise again. I can work full time and I feel like I’ve got my life back in a way I never thought I could have. It’s better than it was before.”

This is a summary of Wendy’s interview. Please listen to the rest of Wendy’s Hashimoto’sstory by clicking on the video above.