LDN Video Interviews and Presentations

Radio Show interviews, and Presentations from the LDN 2013, 2014, 2016, 2017, 2018 and 2019 Conferences

They are also on our    Vimeo Channel    and    YouTube Channel

Maria - Canada: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Maria from Canada was diagnosed with idiopathic uveitis in 2006, and the following year suffered a vertigo attack. She had many falls due to dizziness, sometimes hitting her head and also experienced extreme fatigue, headaches, piercing ear ache, hand numbness and insomnia. 

In 2008, Marias GP told her she had multiple sclerosis (MS). The following year she was prescribed Copaxone as a daily injection, however after two and a half years of using the injections, she ran out of places to inject due to hard lumps all over. After returning back to the GP, she was given Avonex, which resulted in flu-like symptoms for six months.

After asking about low dose naltrexone (LDN), she was told there was not enough research behind it so she was not given a prescription. 

Maria sourced a GP in Canada  who was open to LDN, and has been taking it for almost a year. She started to feel a new burning sensation down the middle of her left leg, however this went away after a few months. Maria was able to sleep without pills, and cut out all other medication besides LDN and one other. She is able to walk straight without the use of her cane and experiences fewer leg spasms. Her quality of life has drastically improved and she “would like a lot of people to know about  Low Dose Naltrexone (LDN)”

To view the whole interview, watch the video.

Any questions or comments you may have, please contact us.

Maria - US: Lupus, Fibromyalgia, Sjogren's (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Maria is from Argentina and now lives in the United states, in California, and is using low dose naltrexone (LDN) for lupus, fibromyalgia and Sjogren's syndrome

"I started getting sick when I was 21.I was experiencing pain in my joints, extreme fatigue and starting having pneumonia but then it happened two years later, and  again three years later.

Later when I was correctly diagnosed, Lupus was attacking tissue in my lung.

Before the diagnose of Lupus I was treated with antibiotics, non-steroid anti-inflammatories and later steroids.

About 5 years ago I was diagnosed with Fibromyalgia and Sjogren's syndrome.

I would have times that I'd be fine for a year or a couple of years, and then I get a flare-up. My quality of life at that point was a 4 out of 10. I couldn't get up and go to work. I had pain all over my body.

I heard about low dose naltrexone (LDN) from some of my friends. I work in biotechnology world in Northern California with an organization that is a nonprofit and developing new biotechnologists for regenerative medicine, mainly focused on curing the diseases of ageing; and I found out that a few of my friends were taking LDN.

One of them suggest me to try and to go on the LDN Research Trust website. I read about it.  I talked to my friends who were taking it, and I realized that it didn't have any negative effects.

I contacted the LDN Research Trust. They gave me a list of doctors and in that list, I got an appointment, and he was in pain management. He prescribed it.

In the beginning I did experienced a lot of dreaming.

I have been taking LDN for a year now. My life got back to normal since I started LDN. I haven't had any flare-ups. A year ago I was taking Prednisone and I could stop taking it. I am taking Hydrochloroquine, 200 milligrams twice a day. I'm going to visit my Rheumatologist very soon, and hopefully, they're going to lower it.

So my quality of life right now is a ten. I haven't had anymore symptoms for the last year.

My eyes are still bothering me. I take Restasis, and I started taking more fish oil, and I think that's helping me.

I encourage everybody who's listening to try it. I don't think there's anything to lose. It's really amazing"!

Summary of Maria's interview, please listen to the video for the full story.

Margaret - US: Cushing's, Hashimoto's, PCOS, Arthritis, Depression (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I'd like to introduce Margaret from the United States who takes LDN. Thank you for joining me, Margaret.

Margaret: Hi,

Linda Elsegood: thank you. Could you tell us when you first started to get sick, how old were you?

Margaret: Well, after the birth of my first child when I was 20, um, I started to have a lot of hormonal problems and symptoms.

And after several years and several doctors, um, my first diagnosis was with the polycystic ovarian syndrome. And, um, I suffered through, uh, many years of trying to find someone to treat me in a way that didn't have a lot of side effects. And I eventually went on Metformin, and that was very helpful. And I kind of had a period of good health for several years, and then when I was about 35 I started to have a lot of new symptoms that were similar but different and more intense.

And after probably four years of that, I finally was diagnosed with having Cushing's disease and having an ACTH secreting pituitary tumour. And I had pituitary surgery, two years ago, in May of 2013. And they found the tumour, they got it out, and I went into remission. And the recovery from that is quite brutal.

You have to slowly wean off of steroids. You have to take them as replacement because your pituitary doesn't work right for a while. And the withdrawal from steroids has been like into heroin withdrawal. So it's very intense. It's very painful. You have a lot of joint pain, muscle pain, um, a lot of psychological symptoms, depression, um, anxiety because not having enough cortisol is almost as anxious.

It is provoking as not as having too much. And so it's, you know, a good year of weaning. And then what happens is because you had high cortisol for so long, a lot of autoimmune things pop up that were being suppressed by the cortisol. And that's kind of where I'm at at this point, where now I have really high Hashimoto's titers and.

You know, I'd have to replace a lot of hormones and I'm still in the recovery process from Cushing's. But, you know, in the meantime, ten other autoimmune things get you.

Linda Elsegood: So, before you, um, started on LDN, could you describe what a typical day for you felt like?

Margaret: Well, I started on LDN when I was about sixteen months postop from pituitary surgery. So I would say that I had very little quality of life. I was still in the place where I was in a lot of pain. I didn't work full time. I was only working part-time and only from home at that point. I could barely do the grocery store by myself and come back home. I still have people taking my kids to school for me and all. It was basically helping me just to survive.

So I would say probably on a scale of one to 10, it was about a three.

Linda Elsegood: Oh, wow. That's not good. Not a good life.

Margaret: I mean, it was better than when I had Cushing's where my life was a zero. Yeah. Before they took the tumour out, I was home-bound and could not work. Didn't think straight. Had severe panic disorder. And anxiety all the time. And how did slept in probably two years by the time I had surgery. Yeah. So it's a really intense disease.

Linda Elsegood: It certainly sounds like it. So how did you hear about LDN?

Margaret: My endocrinologist, who, he is a Cushing specialist. That's what he specializes in. He actually recommends it to a lot of his postop patients because most of us have these underlying autoimmune problems and he gives it out quite frequently, especially if you kind of linger in your recovery.

I mean, some people just snap right back. That wasn't me. Maybe cause I was older, not sure, but he recommended it. And my primary care doctor prescribed it for me. I ended up making my own with a 50 millilitre, uh, 50 millilitres and 50-milligram pills because my insurance doesn't cover compounding.

And that was the most economical way for me to do it. And so my primary care doctors, he's in on it too, and he actually prescribed it for me. And, um, you know, does all the followup for it for me.

Linda Elsegood: When you started, did you notice any side effects at all?

Margaret: Well, I started at 0.5.mg, cause I was doing liquid, it was really easy to change my dose based on whatever I was noticing.

So the very first thing that I noticed was that I started dreaming, like a lot, and they weren't bad dreams. They were actually amazing, wonderful dreams. But when you have Cushing's and you don't sleep for a long time, you don't dream anymore cause you never get to REM sleep. And I'd had several sleep studies. You know when I was sick but didn't know what was wrong with me.

And I never got up. I never had any REM at all. So I will say that the very first thing that happened was it gave me background sleep and I started dreaming on a regular basis. And each increase in dose I would have several days of. Just fantastical dreams, which is a good thing for me. So it's a side effect, but a good one to me.

IThey were never bad dreams or nightmares or anything like that.  I did notice that on each dose increase that I would have a little bit of bowel motility, very short-lived. And when you have hormone issues. That's not unusual. You know, there's a lot of stuff going on in my body, so I don't know if I can particularly attribute it to LDN, but I think so. and it just was, you know, getting used to it. So at this point, I'm, my endo wants me to work up to four, but I'm very slowly working my way up. Right now, I'm on four, and that has been a process of about a year of getting up that high. And I stayed at three for a long time. But my Hashi titers were still very high, and so he wanted me to go up a little higher and see if we could get it to work.

Linda Elsegood: So, what is a typical day like for you now?

Margaret: Well, I attribute some of it to LDN. Some of it is just simply time. And my pituitary is recovering, but I now work full time. I am completely in control of my own life. I still have some chronic pain. It's much better. I do think that the LDN helped with the pain a lot.

It is now where I can take two Motrin a day and be pretty okay. I also use acupuncture extensively, which is, you know, it's not about LDN, but that is a huge part of my recovery as well. And I would say, you know, my life is an eight, and I work full time, probably 60 hours a week. I take my own kids to school.

I have a child in college now. And I take him to school and I grocery shop, clothing shop. I do everything now. And so it's a huge improvement from before I had surgery for my pituitary tumour. And I think LDN is probably half that. I, I won't be stopping it anytime soon.

Linda Elsegood: What would you say to other people who are thinking of trying LDN?

Margaret: You know, I think it's such, it's such a longstanding drug that's been around for so long and they know what the side effects are and it's really easy. So low risk, why not try it? And I think that's how I presented it to my primary care. I said, you know, cause he had other people on it.

And so he had heard of it. He was aware of the drug, and it's such a low dose. He just had no problem letting me try it, even if he didn't really believe in it necessarily. So I would approach it in that way. But I mean, the risks are very low and if it doesn't help, then just quit if it does and amazing.

Yeah. That's what I would say. Try it,

Linda Elsegood: You have such an amazing story and so inspirational for other people. Thank you very much. You're sharing it with us.

Margaret: Oh, you're welcome.

Any questions or comments you may have, please Contact Us.  I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Margaret - Spain: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Margaret, previously  from England but now from Spain, was diagnosed with multiple sclerosis (MS) in 2008. She has had MS ever since she was near 20 years old, and is now 60. 

Margaret broke her back in a horse riding accident when problems started happening. When she was about 40 her leg started going numb, and once investigated, they found a crushed fracture in her back.

At this time, after countless operations on her back, Margaret started using a walking stick as she kept losing her balance. Her neurologist then diagnosed her with MS. 

Her MS symptoms included eyesight problems, she could no longer play sport, as well as being constantly tired. Then she started having swallowing difficulty. This is when she started noticing numbness in her legs.

Margaret could not manage to get a prescription for LDN in Spain, it was not an accepted protocol. So therefore she had to find her own chemist to prescribe it to her.

After the first week, she noticed she could taste and smell better, her urge to go to the toilet was slowing down, and even though she was still sleeping during the day, this was no longer as much, and she would feel fantastic after. Now Margaret has been on LDN for ten months, and recommends people to try it.

Please watch the video to view the whole interview. Thank you

Any questions or comments you may have, please contact us.

Manda - Holland: Hashimoto's Thyroiditis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Manda from Holland has Hashimoto's thyroid condition. She first started noticing symptoms at the early age of 17; she is now 41. During her studies, she had extreme difficulties with her sleep, and at the age of 35 she quit her career because symptoms were worsening. Always tired, dizzy, and her whole back and pelvis started to become unstable, where she then had problems sitting for more than 15 minutes; which therefore made social activities difficult. 

Manda rated her quality of life a 4/10 before low dose naltrexone (LDN), and ever since her quality of life has improved drastically.

After finding information about LDN, Manda asked her doctor to prescribe it for her, but the response was unfortunately a no. Then after looking online she found a six month waiting list prescription from France. 

Initial side effects included, trouble sleeping and migraines. Now after six months, Manda is still amazed by the medication, and would recommend people to give it a try.

Thank you for reading, please watch the video to listen to the whole interview.

Any questions or comments you may have, please contact us. 

 

Malcolm from the United States, takes Low Dose Naltrexone (LDN) for multiple sclerosis (MS). He was diagnosed around 1991, in his early thirties. Now 53. 

Before his diagnosis, Malcolm was involved in sports. He worked for a large corporation in sales and marketing, as well as having a child.  

At first his optic neuritis, which was treated with steroids, did not affect his life too much but stopped him with the sports. Malcolm did not know about LDN until around 2003, 2004,where he learnt about it over the internet. 

His doctor recommended Low Dose Naltrexone (LDN) to Malcolm, after finding out that his old medication - Tysabri - was extremely dangerous, causing sometimes death and brain diseases. 

Malcolm has been taking LDN for nearly three years now, he has noticed that his MS is not progressing, where he seems not to have gotten any worse. Now, Malcolm no longer naps like he used to, when he used to be exhausted all the time. He has no more fatigue and his balance is much better. He even quotes that he ‘will continue taking LDN for as long as he lives.’ So he values it greatly, and recommends to all who are struggling with symptoms such as Multiple Sclerosis. 

Please watch the video to hear the full interview. Thank you

Any questions or comments you may have, please contact us.

Maija - US: Chronic Fatigue Syndrome (CFS/ME) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Maija from Finland shares her Chronic Fatigue Syndrome (CFS/ME) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Maija’s Chronic Fatigue Syndrome (CFS/ME) symptoms began over a very prolonged period of time. The first symptoms appeared in 2000, when she was only 15 at the time. Over the next few years she developed many other neurological symptoms.

In 2007 she came across Low Dose Naltrexone (LDN) in a medical magazine. Having read such glowing reviews of the drug, she was determined to obtain a prescription. Within 24 hours of starting on LDN, Maija already felt better. 

This is a summary of Maija’s interview. Please listen to the rest of Maija’s story by clicking on the video above.

Lynn - US: Hashimoto's, High Antibodies, Benign Tumors (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Lynn from the United States takes LDN for high antibodies, Hashimotos. Her body was attacking my thyroid and other organs. But was also in agony constantly. She had undiagnosed Hashimotos for 10 years, her thyroids were destroyed, with only a small amount left.

13 different specialists always said they would not prescribe such a drug as Low Dose Naltrexone (LDN). Synthetic thyroid medications were not working, it was causing a huge amount of pain and brain fog, the inability to think straight, and was also in chronic pain. 

After taking LDN for a few days, she started to notice a huge difference in her pain. She built up strength in her muscles, and her brain fog was disappearing. 

Even her husband, who had Parkinson's disease is now also taking LDN, after 7 months he has also noticed a huge relief, and less pain. 

LDN has given Lynn a new lease of life, she feels as though she can now take care of herself and exercise.

Please watch the video to hear the full interview. Thank you

Any questions or comments you may have, please contact us.

Lynn - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Lynn from England shares their Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Lynn was diagnosed with multiple sclerosis (MS) in 1995, at the age of 49. Her diagnosis seriously impacted upon her health and overall activity, meaning she could no longer run as frequently as she previously would have liked.

Her dropped foot meant she could not walk properly, yet she came across Low Dose Naltrexone (LDN) which completely revolutionised her health.

In this interview she explains how LDN has changed her life, restored her balance and ability to walk properly and is now able to get back to doing the things she enjoys.

This is a summary of Lynn’s interview. Please listen to the rest of Lynn’s story by clicking on the video above.

Lynn - Australia: Graves Disease, Nephropathy (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Lynn from Australia shares her Graves Disease and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Lynn began to feel unwell around the age of 50 when she began to lose weight and was unable to control her bladder. On top of a loss of energy, Lynn had to cancel many social activities and holidays, leaving her with a bleak life.

Despite the initial struggles, Lynn was able to obtain a prescription for Low Dose Naltrexone (LDN) and began to work her way up to her optimal dose. She is now able to eat properly again and socialise with her friends and family.

“My life has improved so dramatically, I felt the pain before almost constantly and my overall quality of life was 3/10. Now I’m operating at 90% capacity, minimum. Everything’s rosy.”

This is a summary of Lyn’s interview. Please listen to the rest of Lynn’s story by clicking on the video above.