LDN Video Interviews and Presentations

Louise - US: Rheumatoid Arthritis (RA) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Louise from the United States uses Low Dose Naltrexone (LDN) for Rheumatoid Arthritis. She had numerous issues for many decades, but was never tested for rheumatoid arthritis, and nobody thought to do that. 30 years ago, Louise had carpal tunnel syndrome in both hands and. Today, her rheumatologist tells her that if she had been tested for it, she thinks that she would have shown positive for rheumatoid arthritis. Two years ago, Louise had a flare, five joints were in pain, feeling really bad, and the pain kept increasing.

Louise was tested for the antibody, which was four times the normal high, and also for rheumatoid factor. 

A naturopath prescribed her with Low Dose Naltrexone (LDN) after seeing wonders with other diseases. Now her flares have disappeared. 

Fortunately for Louise, LDN is inexpensive in the United States. Although Louise recommends people research into LDN, she has noticed far fewer side effects. But also recommends people to try one thing at a time, opposed to herself.

Please watch the video to view the full interview. 

Any questions or comments you may have, please contact us.

Louise - England: Psoriasis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

We’re speaking with Louise from England. She takes LDN for psoriasis. Thank you for joining me, Louise. 

Louise: Thank you. 

Linda Elsegood: Could you tell us when you first noticed there was something wrong with your skin?

Louise: It was approximately 20 years ago, just after my dad died. I had it on my elbows, and the doctor diagnosed it as psoriasis. It's in my family, but it didn't really bother me too much at the time because it stayed on my elbows for a good few years before it started to spread. And I tried all the different creams that the doctor gave us, but it didn't work. So I just sort of ignored it for a while until it started to spread.

Linda Elsegood: So how long do you think you had it before it started to spread? 

Louise: I can't really remember, but possibly as much as between five and ten years. I'm guessing, to be honest. I don't know exactly. 

Linda Elsegood: So when it spread, where did it spread?

Louise: Well, it's spread more around my arms, and I've got some patches on my knees and this stayed like that for quite a while before spreading again. And then it spread all up and down my arms and to my lower legs. And it got quite bad. My arms got infected, but I didn't know what was wrong with them at the time. So it was a while before I went to the doctors. And what happens is if psoriasis gets infected, it just spreads like wildfire, and there is not a word to describe the intense itching. It's really awful, and it really makes your life very miserable. 

Linda Elsegood: So how far did that spread at that point? 

Louise: All up and down my arms. 

Linda Elsegood: So it was contained just your arms and your legs?

Louise: At that point in time, it was. 

Linda Elsegood: Even at that point, the medications didn't do much. Is that right? 

Louise: That's right. I probably thought it knocked it back at a little bit, but they certainly didn't make it go away. It just continued to get worse.

Linda Elsegood: And I suppose the more you worried about it, probably made it worse.

Louise: Probably. Yeah. 

Linda Elsegood: So did it go any further than just your arms and legs? 

Louise: Well, five years ago I had light treatment on my arms and legs. And it worked really well. I thought, Ooh, it's gone after it. Nobody told us it was going to come back. I thought that was it. So 10 to 12 months later, it started creeping back, and it came back worse than before the light treatment. And it just continued to get worse, really bad. And then my legs got infected, but I knew what it was because I had infected arms. And last July I was badly infected and went to the doctor, and went on the waiting list for light treatment again. I spent from August last year to March this year having all three light treatments. So I had the yellow light first, cause that's the mildest form. After a few weeks, they knew it wasn't going to work, so they put us on to the pink light and then it became obvious after a few weeks that that wasn't going to work. I was desperate because I really thought that it worked five years previously.

And then they put us on the UV light with psoralen, and that started to work. But I was going through a divorce at the time which was not very nice, and it just stopped working halfway through it, and my psoriasis, because it was stress-induced, it really came back very badly.

And I was actually accidentally burned with the light on my body because I had some on my stomach by then. And I ended up actually with more than what I had and it would actually be easier to tell you where I didn't have it. The only places I haven't got it is on my scalp, palms of my hands, and the soles of my feet. It is everywhere else; quite prolific. And you just feel like a complete - I want to say the word, but you just feel like a freak and like, you've got to cover yourself up; I've even got it on my face from my neck right down to my feet, even in the summer, which is really awkward.

And it’s just cruel in that it just makes you feel so isolated. When it was infected really bad, I just looked like I had the bubonic plague. I just couldn't bear in the morning when I go in the bath in the winter, I get up early in the morning, it's still dark, and I don't put the light on because I can't bear to look at myself, which doesn't work in the summer. Cause obviously you get off so bad, I couldn't stand even looking at myself. And when I tell people how bad it was, they say I look all right, and I say that’s because I'm wearing clothes so you can't see it.

And I'm very good at covering up the redness on my face so it isn't obvious to other people when I'm in my day-to-day life, but I know it’s there. It's uncomfortable. It's itchy. It's unsightly. And I just felt like quite frankly, if I could shoot myself in the head, I probably would have done, to be honest before I got onto the LDN.

Linda Elsegood: Wow. Did you have any other symptoms, other than the skin?

Louise: Yeah, I've had uveitis two or three times, which is inflammation of the coloured part of the eye that's linked to it. And I've also had arthritis and muscle soreness, but that was about 12 years ago. And unfortunately, it hasn't fled since, and it just destroyed a joint in my toe, which is neither here nor there. It doesn't affect my life in any way, but it just shows you the damage it can do when it comes back. Both it hasn’t, touch wood, it hasn't come back and the only incidence I’ve had is arthritis. 

Linda Elsegood: Wow. The skin - I mean, that sounds horrendous! 

Louise: When it started on the face, I couldn't believe it. I was kind of stopped because you can’t cover the rest of your body. I thought I'll attack that with creams, you know, two and three times the strength you’re supposed to, but I couldn't let it spread because once it takes the hold, it doesn't let go.

Well, four months ago I started on LDN because the doctors at the hospital wanted to give us methotrexate and I didn't want to take it because I work and I don't want to lose my immunity in what I'm doing, I'm in the wrong job for that. But also my sister, who has psoriasis, she took it years ago, and she suffered severe nausea and hair loss. So I just didn't want to take it. 

So when I heard about LDN, I thought I would like to give that a try, cause it appears to have little or no side effects. So I contacted the doctor in Glasgow, Dr. Andrew McCall. He prescribed it for me. So I've been taking it for just over four months now. And I would say within the last week that I've noticed an improvement, but I have to say it did get worse before it got better. And I'd watched a YouTube video of it - Jenny, I think she was called, and she had said it got worse before it got better. So I wasn't too worried when it got worse, and she talked about how she was getting completely better. So I just kept persevering with it. And within the last week, I've noticed that there is a dramatic improvement. 

Linda Elsegood: Wow. That's amazing. 

Louise: And that for the first time, in many, many, many years, this last week I've got bare arms outside in the sun. Oh, I'm thrilled that I can actually show part of myself, and just be comfortable in the hot weather and have the sleeveless top on, because I couldn't do that for years. I couldn't possibly do it. 

Linda Elsegood: That is such a great story. Isn't it? It really isn't so inspirational for the people to listen to it. Like you listened to Jenny's story. It's very important to share. 

Louise: Absolutely, because I think people should definitely try it. 

Linda Elsegood: That's amazing. 

Louise: Cause I'm so glad that I actually heard about it on an American support site. And it was where you send your emails through with a list of different threads that I've gone on with different conversations. And I just thought, well, I don't even know what naltrexone is, I'll click on it. I think it was prescribed in America for quite a long time. And this man was taking it and said that he tried all the other treatments that are heard of, some of which have horrible side effects, and he'd been taken this and there were no side effects. And so that's why I investigated it, not just taking it off the internet. 

Linda Elsegood: I actually like to interview you next year and find out how you are getting on.

Louise: Yeah, that's fine.

Linda Elsegood: Okay, well, thank you very much for sharing your story with us, Louise.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Louise - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Louise from England shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Louise was first diagnosed with Multiple Sclerosis (MS) in January 1995 at the age of 26. Working in her local store, she began to notice a constant sensation of pins and needles in her left leg. Going to see her doctor, she was dismissed and told the problem would disappear eventually.

Her MS returned following the birth of her son, when for about a year afterwards her head would not stop spinning. Determined to find a solution, she began to research alternative treatment plans which is when she came across Low Dose Naltrexone (LDN).

Having obtained LDN from a local chemist as her doctors wouldn’t prescribe it for her, Louise is overjoyed with her progress and is able to spend more time with her son.

This is a summary of Louise’s interview. Please listen to the rest of Louise’s story by clicking on the video above.

Lorraine - Scotland: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Lorraine from Scotland has multiple sclerosis (MS), where she first started noticing symptoms in February 2000. She developed extreme headaches, and recalls her scalp was sore, as well as bad weakness on her left side and fatigue. A day after an MRI scan she had received her MS diagnosis.

After taking Low Dose Naltrexone (LDN), she now has that “Wow energy”. To Lorraine it was amazing, and it also kept her awake and more active.

Lorraine heard about LDN through a neighbour who knew someone who was suffering with MS, who advised her to try it. Lorraine did have problems trying to convince her GP to prescribe it to her. Within three days, she felt so much better, she even ended up moving back to work full time. Lorraine even experienced no first initial side effects. Her quality of life has improved 100%, now feeling more human. 

Lorraine recommends people to try Low Dose Naltrexone (LDN), quoting that it will not harm you, so there is no loss to give it a go. 

Please watch the video to view the full interview.

Any questions or comments you may have, please contact us. 

Lorraine - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Lorraine from England who takes Low Dose Naltrexone (LDN)  for multiple sclerosis, she was diagnosed at the age of 36, her legs started to behave rather awkwardly, and had some strange sensations in one leg and a strange sensation at the base of her spine. 

When she was diagnosed she was with her husband and was crying saying “tell me whether I've got multiple sclerosis (MS) or not” After the extensive tests she had to ask again. She found out a week later from her doctor who told her she has MS and was told they would  send some brochures. She felt pretty much on her  own. 

The first 10 years were not too bad and then small things started to happen. She was in a lot of pain. It was excruciating. She refused steroids. That was her first attack. For five to six years, nothing really happened. After about ten years,  she had her second relapse, which left her with some disability. She had numbness in her legs, arms and fingers. 

She started Low Dose Naltrexone (LDN)  about 2 years ago with good success and recommended it to everyone.

Play the video to listen to the whole story.

Any questions or comments you may have, please contact us. 

Lori - US: Hailey-Hailey Disease (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I'd like to introduce Lori from Northern California in the United States. Thank you for joining me, Lori. 

Lori: Oh, thank you for having me, Linda. 

Linda Elsegood: Could you tell me when you first started to notice there was something wrong?

Lori: Well, I was kind of on the lookout, if you will, because my father and my grandmother both had Hailey-Hailey disease, but it didn't manifest itself in my skin, I should say, until about 21 but that was over 30 years ago, and that was shortly after the death of my brother in law. That was very traumatic. And then my skin just went crazy sort of thing. 

Linda Elsegood: So when you say crazy, I'm guessing, you mean blisters and some weeping? 

Lori: Yes, I had it all. I had terrible blisters underneath my arm in the armpit area, under my breasts, in the groin. Not only that, very raw lesions that are kind of like little razor blade cuts, if you will, and I know a lot of my fellow sufferers suffer from the same thing.

The burning can be excruciating. It feels something like a really terrible sunburn or a second-degree burn. Then, of course, it weeps fluid and that fluid is rather sticky. And then you have the problem with it sticking to your clothing, and then you move and your skin tears, and it's just a terrible, terrible disease. We're finding more and more about the difference in symptoms.

Linda Elsegood: So when you were diagnosed with Hailey-Hailey disease, what medication were you offered? 

Lori: Well, there were so many it's hard to recall all of them, but of course the typical antibiotics like Keflex, penicillin, tetracycline. On a few occasions, there were steroid injections like Kenalog, and I was even put on Dapsone, which was developed for leprosy. And then there are topicals, and then about ten years ago I learned about silver sulfadiazine, I think it's called, and that actually helped with the burning. But there were so many different antibiotics, as I said, I can't even remember all of them.

Linda Elsegood: Could you ever manage to get your Hailey-Hailey disease under control? 

Lori: I could. There would be periods of remission. I would have a few months, and often in my twenties, I would have a year or two; and then in my thirties, it gradually progressed, and I was having fewer remissions. And then up into the forties, it was getting to the point where I would only have a few weeks of remission through the whole year. Sometimes it wouldn't be too bad, maybe under the arms, and that's it.

Then other times it was under the arms, and the breasts, and the groin, and on the back, and on the neck, all at the same time. And that would last for months, and nothing was really touching it. And I used a lot of alternative therapies as well, but I never fully got a handle on it up until I started researching LDN.

Linda Elsegood: So, before you started LDN, what would you say your quality of life was like on a score of one to 10 and 10 being the best?

Lori: Well, the quality of life lessons are hard, because here you are, you almost feel immobile cause it hurts so terribly to move. Move your arm, and you've broken out there, and it cracks, and it bleeds, and it burns. You’re self-conscious because you don't want to have any spots leaking if you will.  It’s very difficult to walk when it's in the groin area.

So you stay home a lot, and you try to keep yourself positive, but sometimes mentally it can really affect you. It can be very depressing, and very depressing I might add for your mate and your friends because there's nothing really they can do, and they feel very - I have such wonderful friends - and there's just nothing that they could do. And so this is what gave me such impetus to look for something. I knew there had to be something. And I know it's so important for us to eat right and stay as healthy as we can.

Linda Elsegood: I'm going to press you there. Lori, what would you say your quality of life was on that score of one to 10?

Lori: Oh, I would say about a four. And I'm a pretty positive person, but I'm sorry. Memory lane there for me.

Linda Elsegood: How did you hear about LDN? 

Lori: I actually was on the health site, mercola.com, and there was mention about LDN, and so I was looking at all the different symptoms that people were suffering and getting relief; and the diseases that people were getting relief from. So it just struck a note with me. And so I just studied and researched every piece of material, every website; went on the National Institutes of Health website. And then what really, really hit home was the fact that we have so many opioid receptors in the skin. I just couldn't believe it, and I thought this has got to work. This has got to work. 

So it was like two or three months of research, everything, any moment I had until I asked one of my physicians and my dermatologist if I could try it. And of course, “No.” She didn't want any red flags. And so I didn't give up. I went to another doctor who actually had the research, and he told me that he didn't feel that it can help, that anything I might've read was anecdotal.

So then on my third try, I looked on the internet, found doctors that were prescribing LDN. It just so happened that one was in the town that I lived in. So I asked him, I said, I'm not coming to you if you don't give me this LDN at the end to try. And I explained my disease, and he goes, you know what, that makes sense. No problem. So that was about 17 months ago, August of 2012 when I started.

Linda Elsegood: When you first started, did you notice any initial side effects? 

Lori: You know, all we can say is for the first three or four nights I did wake up during that endorphin peak that I've learned about, around 3:00 AM. But then after those first few days, I fell asleep when my head hit the pillow. I couldn't believe it. And I woke up feeling refreshed and fantastic. Actually, I had more mental clarity than I've had in years. The brain fog was gone. It was exciting. 

Linda Elsegood: And how long did it take before you started to notice improvements in your Hailey-Hailey disease? 

Lori: I would basically say about three weeks. I started noticing that my skin was clearing up, not weeping the fluid as much, and just healing. It was just amazing. Now when you've had this disease for decades, you get to know what works and what doesn’t. And I knew immediately that the LDN was working for me, and I just felt it would work for others well. 

Linda Elsegood: So I'm just trying to get a picture here. Has your Hailey-Hailey disease in these 17 months healed completely? Would you say you've had a period of being clear? 

Lori: I have had several months of being clear, but as in life, oftentimes there can be stressful situations. And so there were times when my skin did break out, but it never broke out to the degree that it had in the past. And it still hasn't. I get a few lesion here and there, and as I said, with stress comes all the stress hormones. It seems to trump everything else in our body, every other chemical in our body. So I can honestly say that even with everything that I've gone through in the last year, I would be just a mess if it wasn't for the LDN. I know that. 

Linda Elsegood: And would you say that the breakout heals quicker than they did prior to LDN, or about the same?

Lori: No, absolutely - heal quicker. Since the LDN I've never had any breakouts in certain areas of my body - under my arm, just different, different places that I'd normally have the breakouts. I don't have them.

Linda Elsegood: If you did an average now with being on LDN, what would you say your quality of life is, taking into account the breakouts with the periods of remission.

Lori: That it has been nice!

Linda Elsegood: That's amazing. That really is.

Linda Elsegood: So what would you say to other people with Hailey-Hailey disease that are contemplating trying LDN. 

Lori: I would say, don't give up. Keep trying to get a doctor to prescribe LDN. It may not be that you will have 100% clearness or continual remission, but it will so much improve the quality of life, of that I’m certain because there's so many of us now.

I started along, with a friend, a Facebook group with these new approaches, where we discuss different approaches - holistic and natural approaches - and we're finding so many are getting such fantastic results with low dose naltrexone. And some are not even changing too much about their protocols, their dietary protocols or whatever, but it seems like about 99% are getting Good to Fantastic results. What I’d say is just don't give up. It took me three doctors, but it'll happen if you just don't give up on that. 

Linda Elsegood: Thank you very much, Lori, for sharing your experience with us. 

Lori: Oh, thank you so much for having me. And you know, Linda, here is something else that a lot of folks don't realize when it comes to Hailey-Hailey disease:

it's not just the blisters, or the lesions, or the burning. But so many of us suffer from secondary diseases or health issues because of that calcium imbalance. I'm finding more and more of us have suffered from different types of cancer, MS, rheumatoid arthritis, Parkinson's or Alzheimer's. All of these go back, it seems, to that calcium imbalance as well. So that's another reason why I just really advocate LDN because so many folks with those particular health issues and diseases are getting fantastic results as well with low dose naltrexone.

Any questions or comments you may have, please Contact Us.  I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Lorene - Northern Ireland: Hailey-Hailey Disease (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Lorene from Northern Ireland shares her Hailey-Hailey Disease and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Lorene first noticed symptoms when she was around 24 years old. She would see her doctor and be treated for thrush very often. It took 9 years until Lorene was officially diagnosed with Hailey-Hailey Disease.

Within a couple months she noticed that her skin began to blister and boil. It got to the stage where Lorene had to be hospitalised for over 9 weeks. However, everything changed when she discovered the Low Dose Naltrexone (LDN) Facebook page.

“Inside six weeks of starting LDN my skin began to clear up. At one point I burst out crying because I just simply couldn’t believe the progress I was making. I could see my brother again and my life was being pieced back together. None of the nurses could believe my recovery.”

This is a summary of Lorene’s interview. Please listen to the rest of Lorene’s story by clicking on the video above.

Liz - England: Primary Biliary Cirrhosis, Sjögren's Syndrome (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Liz from England shares her Sjögren's Syndrome and Low Dose Naltrexone (LDN) Story on the LDN Radio Show with Linda Elsegood.

Liz first started to notice her symptoms of Sjögren's Syndrome around 12 years ago when she began to get pains in her stomach. Despite numerous tests, doctors dismissed her condition as IBS and wasn’t given any medication. 

While also having troubles with fatigue and sleep, Liz’s quality of life began to decline until she found Low Dose Naltrexone.

“I was going to bed at night and getting up the next morning with huge bags under my eyes. Within a few days of beginning LDN, I was able to sleep properly again which was a great help for my husband. 

To anyone thinking of trying LDN, it really doesn’t do any harm. Even if it only improves your life a bit, it’ll be worth it.”

This is a summary of Liz’s interview. Please listen to the rest of Liz’s story by clicking on the video above.

Lisa - Wales: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Lisa from Wales shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story.

Lisa was diagnosed with Multiple Sclerosis (MS) in 2006. However, she had been experiencing a serious numbness in her feet and legs for two or three years prior, which progressed to the point where she couldn’t even feel her legs when walking.

Other symptoms began to develop, including fatigue. She explains how she began to feel tired for no apparent reason, which affected her ability to do her job and spend time with her family. 

After committing to researching alternative treatments, Lisa came across Low Dose Naltrexone (LDN) on the internet. Once she managed to obtain a prescription, she was able to think clearly for the first time in years and spend more time with her children.

This is a summary of Lisa’s talk. Please listen to the rest of Lisa’s story by clicking on the video above.

Linda - England: Crohn's, Chronic Fatigue Syndrome (CFS/ME) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda from England shares her Low Dose Naltrexone (LDN) story which she takes for ME/CFS.

She first starts notcing symptoms around 1996, she could barley get out of bed and couldn’t hardly speak.

Once on LDN she did have side effect of very vivid dreams but they went away.

Before LDN her quality of life was 5/10. Now with major improvments in her life she is at a 8/10.

To listen to the full story click the video link.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today.