LDN Video Interviews and Presentations

Tina - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I’d like to welcome Tina's from England who has multiple sclerosis. Welcome, Tina.

Tina:  Hello.

Linda Elsegood: Could you tell me when you first started to notice MS.

Tina:  Symptoms? Um, I didn't know. I had the MS symptoms. It was the fact that I had to fall while I was at work. I couldn't put my sex in that joint town. I had that fused, uh, that was in 2005 and 2006 legend, 2005.

And into 2006, I found that I couldn't walk. Uh, they went back to the specialist, and they asked me to go to James Cook hospital in Middlesbrough. So I went there. I was in there a  week, and everybody kept saying, no, you haven't, you know, you're okay. Cause it was written on the bump on multiple sclerosis.

And I said, no, you haven't got that. But anyway, at the end of the week, um, Mr Wolf, my consultant just hung onto me and said, yes, you have got multiple sclerosis. So it's a bit of a shock, uh, doc really.

Linda Elsegood: and what impact did it have on you and your family being diagnosed?

Tina: Oh, I think my husband lacked, uh, the tilt and didn't help. Yeah. My oldest daughter was moving away then decided that she was staying around where I live. I told her that she didn't have to, but she helped them. Um, what are the things I used to be a high impact aerobics teacher?

Um, the impact of that is just terrible, really? Cause now I'm doing nothing and I've just been to 12, lost my knife. . I wasn't very fit lady yet. I was diagnosed with.

Linda Elsegood:  So, how did you find LDN?

Tina: Um, I went to the private doctor in Durham, dr. Pam to take him and, uh, through a friend of mine who went to her and I went to him, she put me when I asked her, have you got anything for him?

And she put me on naltrexone, and that was, uh, 2010. January 2010, I start taking it, taking it. I've lost a stone in weight. I feel absolutely great at the moment, but I do have, um, numbness of the legs and tingling in my fingers have started happening just this last month. And I'm glad to see dr. Ted next Wednesday.

See what, if there's anything problem? I thought my brother Walter infection, but I've had that check, and I haven't. So back to the drawing board again, if I'm taking, you know, once I see you on the ground, right.

Well, what would you say to other people who are contemplating triumph? Trying it, you just never know. I mean, I've tried to since, well, when I was diagnosed, gave me all different things like Caplin and pregabalin, and I felt I was in a lot of pain with them because enough objects are not going to talk and get around a lot more.

Even though my legs do go about the problem I've got is not lower my legs, especially my left leg and both in that, I feel fine. I feel great that I was paying the number. I became one from the top. Yes.

Linda Elsegood: So if you had to score your quality of life before you tried LDN, what would you have given it from one to 10?

Tina: And what would you say is now I'd say around about five, five to six. Now all I want to get salted out is the like problems. Cause my legs just keep going. I don't want to go into a wheelchair and yet yes, it is up to your right to use a wheelchair. What I have to think about how I want to keep it, but when I have to, I need you to use it.

Linda Elsegood: Is there anything else you'd like to add?

Tina: Really? I just like to know what other people, um, the dosage of the, that are on now.

Linda Elsegood: Thank you for sharing your story with us. Tina.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Tim - US: Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Tim from the United States takes Low Dose Naltrexone (LDN) for Fibromyalgia and is going to share his story.

"Fibromyalgia was the default diagnosis after everything else was ruled out. Some doctors say they don't know what I have. And then some say Fibromyalgia because they don't know what else to say.

I got sick in summer of 2007, and I spent about four months going to all manner of doctors from infectious disease specialists to Rheumatologists and I got diagnosed by the end of 2007.

At the time I was 50. I'm 54 now.

I work a brutal schedule. I work in live television news. I work overnight for long days, rotating shifts, and plus I take care of all my own stuff.  I'm a real do it yourself or home repairs, home maintenance.

When I got sick I was in a twilight zone of misery. I was on Tramadol, and watching the clock waiting till I can take more pain medication. I had all the functioning of a 90-year-old man. Basically, I lost all my energy, my stamina. I was in constant pain. It just felt like I had the flu for over two years.

I started endless searching on the internet and I found out about Dr. Bihari.

Because Low Dose Naltrexone (LDN) is an off label use, I had to go on my own on the internet, through a Canadian pharmacy, do get Low Dose Naltrexone and basically tested on myself. That was the summer of 2009. I started at 1 mg, and I noticed an improvement in about two days. The pain levels dropped.  I've stayed at 2 mg of LDN ever since then. And it's been almost two years.

When I started LDN I had some vivid dreaming, which for me has always stayed.

I would say to anyone that they really need to try it if they haven't found relief because the orthodox treatments are really few and far between.  Lyrica did nothing for me. I took Lyrica for a year on faith, and it did absolutely nothing and a very expensive medication with side effects.

I took antivirals, antibiotics. I took all the home remedies, massive vitamins. I tried all these things, and none of them produced any discernible results. LDN is the only thing that really you could see cause and effect. It made a difference.

My life now is closer to normal. I'm working crazy hours again and I'm working a lot.

I was filing papers for government disability at the time before I started taking it. Pain, fatigue, insomnia were just taken over my life. It made a huge difference. And there's no real downside that I'm aware of except that it's a little funny to explain to people because it's very relatively unknown. Even doctors don't seem to know much about it.

My GP has been very interested in monitoring my progress and has been gone so far as to put it in my official record, which was a step for him.

The immunologist basically ignores me. I have not been back to see him, but I've sent him progress reports and articles".

Tim - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Tim from the US takes Low Dose Naltrexone (LDN) for Multiple Sclerosis (MS) and is going to share his journey.

"I'm 49 and I was being misdiagnosed for too long. The unusual is I had stopped smoking marijuana and then my MS came on really big, and I find that the marijuana helps me with the symptoms drastically.

I'm really lucky. Really, the only problem I have is a little bit of problem walking and  balance.

Also I get fatigued pretty quick.

One day I just read Dr. Bahari's statements and I figured that it was something worth trying.

I asked my Neurologist to prescribe me LDN. She had other MS patients that were using it.

I live in Birmingham, Alabama and I got LDN through a place in Lakewood, Colorado.

I have been taking LDN for three years. It's helped me with my overall function. It's seems to help me with my balance and just seems to make me a more workable human.

I just felt vivid dreams that they come and go, but it's one of the things that vivid dreams I consider a bonus. And since I've been taking Low Dose Naltrexone (LDN) I've had no flare-ups.

I would like to say to people at least try it because unless vivid dreaming somehow is traumatizing, LDN seems to be doing what the Avonex should've been doing.

I'd like to encourage anyone to at least try it.

If you try and it doesn't work for you, stop doing it.  But I believe they'll be pleased".

Summary of Tim's interview. Please listen to the video for the full story.

Terry - US: Lupus, Chronic Fatigue, Irritable Bowel, Anti-Aging (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Unable to accept her diagnosis of Lupus, while also suffering from chronic fatigue, irritable bowel, digestive issues, brain fog, muscle issues, body temperature issues, Terry did her research and became interested in nutrition, anti-aging, and healthy living in general.  After talking to many people, including scientists, she was interested in all modalities of healing and wellness opportunities. 

Terry was introduced to Low Dose Naltexone (LDN) and immediately felt a difference in the function of her brain. Terry is 65 and feels she is now able to do a lot of things that others her age can’t do. She says that when she took the LDN, it gave her a definite boost to her brain.  Terry now exercises and has the energy to do things that she otherwise would not be able to do.  Terry says that Low dose naltrexone definitely contributes to her feelings of wellness and energy.

For more interviews with people whose lives have benefited from LDN please visit https://ldnresearchtrust.org/ldn-videos

Tami - US: Fibromyalgia, Hashimoto's Thyroiditis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Tami from the United States shares her Hashimoto’s and Low Dose Naltrexone (LDN) Story on the LDN Radio Show with Linda Elsegood.

Tami had been experiencing extreme fatigue since high school but wasn’t officially diagnosed with Hashimoto’s until 2007. Extreme fatigue and muscle pain were among the main symptoms that would cause the most issues.

It wasn’t until four years after her diagnosis that she found Low Dose Naltrexone (LDN), which proved to have a very positive impact on her overall health. As Tami gradually increased her dosage, she began to notice that her sleep and muscle pain were disappearing. 

She said “I haven’t experienced any side effects at all, my experience has been 100% positive. All of my pain is under control. My quality of life is certainly no less than 9/10 since I’ve started on LDN.

I recommend that everyone checks this out. LDN does great things like boosting your immune system and aiding the production of your own natural pain killers. You really have nothing to lose and only great things to gain.”

This is a summary of Tami’s interview. Please listen to the rest of Tami’s Hashimoto’s story by clicking on the video abov

Tamar - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Tamar was diagnosed with Multiple Sclerosis (MS) in February 2006, where she just turned 30 during the time. When Tamar was 17 she encountered Glandular Fever, and then MS came about when she was around 30 which was rather common. 

In the month of September, 2005 she started feeling extremely tired, she had trouble with her perception and depth, for example, reaching the door handle, or skipping a step on the stairs. This is when Tamar went to bed for a few days and felt progressively fine about a week later! After some time, Tamar started to feel exhausted, freezing cold and difficulties with her speech, where she resulted in the rest of the month in bed, not knowing what was wrong. 

That following December, Tamar’s hands and feet began to feel numb, the next day she had pins and needles down one side of her body; which then resulted in a quick diagnosis of now having Multiple Sclerosis (MS). 

Tamar found out about LDN through MS Society Chat Rooms when she was first diagnosed. At this time Tamar felt like she didn’t need disease-modifying drugs, because she was not ill enough for those. This is where she found the LDN website asking for advice, and in March 2009 she began taking them, 2 years after her diagnosis of MS. The NHS does not license LDN medication so Tamar had to access these privately. 

Tamar realised that she had some improvement after a few months of the LDN medication, but 3-4 months before a real change. LDN has helped with Tamar’s spasms and pain, and now feels normal again, where she has expressed that it has really improved her life, and how she would recommend it to anyone. 

Summary of Tamar’s interview, please listen to the video for the full story.

Any questions or comments you may have, please Contact Us.  W look forward to hearing from you

Keywords, LDN, MS, Multiple Sclerosis, Low Dose Naltrexone, numb, speech, cold, temperature, exhausted, perception and depth, tired, Glandular Fever

Sylvia - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Sylvia from England takes Low Dose Naltrexone (LDN) for Multiple Sclerosis (MS). After being diagnosed in 1997. Before this time she had other health problems, but professionals did not know if this was related to MS. Sylvia then starting dragging her leg, which is then she directly saw a consultant which diagnosed her. During this time her quality of life rating was a 6/10 before finding the LDN medication. It took Sylvia a couple of years to know about the LDN medication, where she found it through a magazine article. Her symptoms she experienced were dragging of her left leg, pain in her thigh and leg, as well as mobility. 

Her Doctor advised her to retire from her job as a librarian, as she was on her feet all day which lead to destress. Sylvia had no problems with sight, most symptoms were mobility and balance. 

Her Doctor would not prescribe her the Low Dose Naltrexone (LDN) medication, this is then when she relied on her consultant, where to then took her 18 months before they finally agreed to it. 

With the medication not being accessible in the UK during the time; Sylvia had it shipped from California, with it being a 12 month prescription. Now, Sylvia has been on the LDN medication for five to six years. Receiving no side effects, she was a lot more positive, less fatigue. Even though her mobility is no better, she is certainly no worse. Her quality of life has increased from a 6 to an 8/9 out of 10, she now takes part in yoga and various other groups! 

At first, Sylvia denied having a wheelchair, but after realising that she could not enjoy quality time with her husband or daughter she then decided to switch it around and invest in a mobility scooter. Sylvia recommends LDN medication to everyone, saying it is a complete NetSuite, with it being worthwhile and makes such a difference!

Summary of Sylvia’s interview, please listen to the video for the full story.

Any questions or comments you may have, please Contact Us.  I look forward to hearing from you

Keywords: LDN, Low Dose Naltrexone, MS, Multiple Sclerosis, Mobility, Balance, medication, less fatigue, positive

Susie - Wales: Breast Cancer, Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

With hindsight, Susie realises that she started to get symptoms after a bout of Glandular Fever and a Hepatitis B injection. She didn’t really think she needed to address her symptoms until after her daughter was born in 1998. Susie battled on until the symptoms got worse and worse. Her symptoms were weakness in her legs, strange sensations, vertigo, nerves in her face, head and neck, no taste or smell, optic neuritis, painful spasms and cramps in her feet, legs and hands, incontinence and slurred speech.  Her doctor sent her for an MRI which came back clear but things continued to get worse. After a year she went back and eventually was offered treatment that she was wary of taking. 

After a house move, Susie heard about low dose naltrexone from an MS resource centre and she heard about Dr Bob Lawrence through that. He did many tests and recommended Low Dose Naltrexone (LDN) and a better diet. 

It wasn’t very long before Susie’s symptoms started to improve with LDN and she started to get her life back. Then Susie was diagnosed with breast cancer and she explains the treatment there and how that includes low dose naltrexone to reduce the horrible side effects of chemotherapy.

Susan - Canada: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Susan from Canada was diagnosed with Multiple Sclerosis in 1987 when she was 21. Her neurologist prescribed her Capoxone which she took for two years, that didn’t help. The next two years she took Betaseron which was also ineffective. Then she was prescribed a new chemotherapy drug which the neurologist said they’d had good results with - that caused terrible side effects and Susan had to come off it after another two years of unsuccessful treatment. All the while her MS was progressing and she was feeling lost as her neurologist basically told her that she was now on her own. 

This is when Susan started to do her own research and she found out about Low Dose Naltrexone.  Her neurologist refused to give her a prescription but her regular GP did so she started LDN 9 years ago.  

Susan feels that Low Dose Naltrexone has slowed the progression of the disease and she sleeps a lot better but she hasn’t had the success that others have stated but she’s still grateful that she found a drug that would help somewhat without causing side effects that she couldn’t cope with.

Sue - US: Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Sue from the United States was diagnosed with fibromyalgia five/six years ago. She first started symptoms years before the official diagnosis. She experienced persistent pains in her shoulders, spine and buttocks; she was insistent it was not muscle pain. Other symptoms included brain fog, and low energy.

Sue has been taking LDN for almost two years now and experienced no initial side effects. However, she did feel instant benefits from the medication, saying she felt relief by the next day. Sue’s pain has considerably lessened since starting on LDN. She still feels pains, but only when she overworks and claims it is not related to Fibromyalgia. 

Sue says that LDN is certainly worth a try when asked what she would say to those contemplating it.

For the entire interview, watch the video.

Any questions or comments you may have, please contact us.