Sally - Scotland: Crohn’s Disease, Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.
Sally from Scotland takes Low Dose Naltrexone (LDN) for Crohn's disease.
"I started having very mild symptoms that slowly got worse and I was told it was IBS. I was offered anti-spasmodic drugs. Gradually the symptoms got worse until eventually I was vomiting quite regularly, in constant pain and only eating small amounts of food.
I had a colonoscopy and I was told I had Crohn's disease. They put me straight on to ESI immune suppressant and that was awful.
One day I Googled Crohn's disease and found as much as I could. And I happened to come across Low Dose Naltrexone (LDN).
I did more Googling on Dickson's chemist and they were absolutely brilliant to get prescriptions from.
I started it in July last year, 2012. And the first week I felt a little bit worse and then by the end of the second week, all my symptoms had gone.
I didn't have to have any surgery. I came off other medications although my GP didn't want me to. I said I was feeling great .Two weeks later, I had no symptoms.
Now my doctor is really quite excited about it. I was just back to see him a few weeks ago and he said they've got a big meeting coming up soon, and he's going to be talking about Low Dose Naltrexone (LDN).
I said to him that the problem in my mind is that they tended to use it as a last resort when they've got nothing else to try because it's not licensed over here. It seemed to work so well with me that it's a shame that they can't use it.
After about a week of starting the LDN, I had a bit of trouble sleeping, but after about 7 to 10 days it has passed. I'm absolutely fine.
My life is just normal. I know that LDN is taking away the symptoms that I've got, and I knew if I stopped taking it, it would likely come back. It's actually seems too good to be true. I don't have any bloating or anything. I just feel normal. That is amazing.
I would say to others that it can't do any harm. I was taking drugs that made me feel rotten, and they're not good for me. I know the side effects and long term effects of severe immune suppressants.
Surgery isn't a cure and also it can have major side effects.
My daughter has got Fibromyalgia, and I started head on it as well, and it took a bit longer, but her life completely changed as well.
She was taking a medicine that didn't really help with the pain. I found that for Fibromyalgia can take a few months to build up and it did. It took about three months to start kicking in, and now she's well.
I always say to them: "Just go and do some research, read about."
Summary of Sally's interview. Please listen to the video for the full story.