LDN Video Interviews and Presentations

Mary - United Kingdom: Sjögren’s Syndrome, Lymphoma, Lupus, Mixed Connective Tissue Disease (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

I am Mary from the United Kingdom and I take low dose naltrexone (LDN) for a variety of autoimmune conditions and cancer.

Two and a half years ago I was taking over the counter antacids when the GP referred for a gastroscopy who showed a gastric lymphoma as a result of a stomach ulcer and Helicobacter pylori infection that lead  into a non-Hodgkin's lymphoma stage four.

I started chemotherapy in July 2017.

The followup appointment with my haematologist cancer specialist diagnosed me with Lupus after having a rash in my chest, shoulders and back and having a biopsy.

I also have Sjogren's syndrome and mixed connective tissue disease.

That's why I started LDN. I came across it while searching in Multiple Sclerosis websites. I found Dickson Chemist because most medical practitioners haven't heard of LDN.

I clicked in the website and downloaded the referral form. About three days later, I had a telephone consultation and about a week later, the prescription turned up.

She said I was a good candidate fo rLDN with all of that going on.

I started at 1.5 milligrams every night, and increased it slowly. I think it was a fortnight before I did the first increase, and they said that I could increase it weekly after that.

So it takes a few weeks to get up to the 4.5 milligrams. But nowadays I find my sweet spot is 3.5 milligrams.

In the beginning I had pleasant dreams and a feeling of euphoria just waking up.

Between week three and week five, I noticed that my joints, all the muscle and joint pain had very much diminished and I noticed a wonderful increase in energy levels. My hand grip was stronger. I was feeling happier and more optimistic.

I chose LDN because it's supposed to optimize the immune system.

I feel like a normal person. That is very important for a cancer person when they're recovering.

Before Christmas, the pet scan showed there were no signs of cancer anywhere. I'm now recovering from chemotherapy and LDN has been by far and away from the most important item in my arsenal for recovery from chemotherapy. Definitely, I'm so grateful to all of you that have got LDN out there and made it accessible in the UK. It's just amazing!

Watch the video for the full story.

Mary - US: Lyme Disease (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Mary shares her story of using low dose naltrexone (LDN) to treat Lyme disease. She became ill approximately four years ago, at age 42. She was in great shape, exercising four times per week, but she had a heart attack and was hospitalized for it, although tests did not show evidence of coronary artery disease. After that, she started having a lot of pain, reduced tolerance for exercise, and her doctor thought she had fibromyalgia. The doctor prescribed Cymbalta for the nerve and muscle pain. 

Mary didn’t think that she had fibromyalgia, so she researched things herself. Two years after the heart attack, her symptoms worsened greatly. She started developing palpitations, transient tachycardia, and neurological symptoms including burning pain in her feet and tingling in her fingers and toes. The fatigue was to the point that after coming home from work, she slept hard for two hours. She went to many doctors, who ran quite a few tests, but the only tests coming back abnormal were her inflammatory markers. She went to a holistic doctor that she knew, who prescribed LDN for her. 

Within a week or two of starting LDN, her fatigue was diminished, and her joint and muscle pain was a lot better. She also modified her diet to remove gluten and dairy, and reduce sugar. She also started eating more organic, cleaner food.

Since beginning the LDN and improved diet, she is happy to be able to keep working. She’d been having terrible pain, fatigue, trouble walking, and brain fog, and as a nurse, she was having trouble doing her job. But all that improved tremendously with Low Dose Naltrexone (LDN).

Mary has found that her best dosage is 3 mg. She takes her LDN at night and it works well for her. She was also recently diagnosed with chronic Lyme disease, and is hoping that the LDN will help with that as well. While drugs like Cymbalta had side effects that were as bad as her symptoms the doctor was trying to treat, LDN has improved her life very much. 

This has been a summary of Mary’s interview. For the full story, please go to the recording at the link above.

Mary - Scotland: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Mary from Scotland shares their ultiple sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Mary was diagnosed with MS in 2009 but actually started on Low Dose Naltrexone (LDN) prior to her diagnosis. Having noticed recurring symptoms of fatigue, numbness and a lack of energy for a number of years, Mary decided to take her treatment into her own hands and decided to research alternative treatments.

While researching Mary came across LDN, which proved to have miraculous effects for her. Within a matter of weeks Mary began to feel better already, mentioning that she felt like “she had her own life back”. 

After gradually working up to her optimal dose, Mary has continued on LDN for many years and sings its praises to anyone she comes across with MS who isn’t already on LDN.

This is a summary of Mary’s interview. Please listen to the rest of Mary’s story by clicking on the video above.

Martin - Wales: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Martin from Wales shares their Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Martin was diagnosed with MS in 2002 in his mid fifties but had been suffering from symptoms prior to his diagnosis. These included weakness in his right leg which restricted his movement and his eyesight was also affected.

He first discovered LDN in his local newspaper, having read a glowing review by another with MS who had experienced a miraculous recovery on LDN. In 2005 Martin was able to obtain a prescription and hasn’t looked back since.

His overall mood has improved, his mobility has increased and his vision is almost back to normal. Martin “definitely recommend LDN to anyone who’s interested”.

This is a summary of Martin’s interview. Please listen to the rest of Martin’s story by clicking on the video above.

Martha - US: Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Martha is from Hawaii in the United States, and takes low dose naltrexone (LDN) for fibromyalgia. Her first symptoms were a series of mysterious illnesses, stomach problems, fatigue, multiple chemical sensitivities, that in  2010 was diagnosed as fibromyalgia.

She was pretty much bedridden, felt feverish without a fever, fatigued, and in pain. Her quality of life was a 4, or 5 on a good day.

She heard about LDN in 2006 from a friend who was working with Dr Jackie McCandless, who was from the little community where she lived on the Big Island. She recently passed away but she had used it autism and then started the study in Africa using it for children with HIV.

She started LDN two years ago, and in three weeks her pain was decreased, she slept better, her depression lifted, and now she rates the quality of her life at a 10.

This is a summary of Martha’s interview. Please listen to the rest of Martha’s story by clicking on the video above.

Mark - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Mark from England shares their multiple sclerosis (MS) and low dose naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Mark was diagnosed with MS in 2006 at the age of 25. His symptoms prior to his diagnosis began with pins and needles in his legs, but this soon was in combination with fatigue and numbness.

Mark heard about LDN through a friend who took it. Within a month of starting on LDN, Mark’s fatigue had less control over his life and he had begun to regain feeling in the numb areas. Mark describes LDN as “allowing him to control his own future.”

This is a summary of Mark’s interview. Please listen to the rest of Mark’s story by clicking on the video above.

Marjorie - Scotland: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Marjorie from Scotland shares their multiple sclerosis (MS) and low dose naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Marjorie began to notice symptoms of MS)in the mid-nineties but was not officially diagnosed with MS until 1999. At the time she was experiencing severe numbness on one side of her body, stretching from her shoulder to her foot, as well as low energy levels and cognitive processes.

It wasn’t until April 2010 that she was able to get a prescription for LDN. Nevertheless, within a few months of starting on LDN she knew she was improving: she began to regain more feeling in her arm and leg as well as her fatigue becoming less prominent.

This is a summary of Marjorie’s interview. Please listen to the rest of Marjorie’s story by clicking on the video above.

Marijke - Australia: Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Marijke from Australia shares her Fibromyalgia and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Marijke was diagnosed with fibromyalgia in 2007 but had began to feel very ill 12 months prior to her diagnosis when she picked up a virus. She remembers being at university and could not move from one chair to another because she was simply so exhausted. Additionally, as well as constant pain in her muscles, Marijke had trouble sleeping following the birth of her first child.

Thankfully Marike discovered Low Dose Naltrexone (LDN), which completely changed her life for the better.

“Although gradually, my symptoms began to disappear. I could sleep better and could concentrate more, which is very important to me as a university lecturer. I used to stand in front of hundreds of students and feel like an idiot when my mind would go blank, but that doesn’t happen anymore.

If you’re thinking about trying LDN and you’ve got fibromyalgia, you’ve just got to try it. Give it three months at least. Even if you ease into it like I did, you’ll begin to notice incredible benefits for your health.”

This is a summary of Marijke’s interview. Please listen to the rest of Marijke’s story by clicking on the video above.

Marie - Sweden: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Marie from Sweden shares their multiple sclerosis (MS) and low dose naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Marie was diagnosed with MS in 2005 and was 45 years old at the time. Her first sign of MS was when she began to struggle with seeing out of her left eye. Her symptoms progressed to the point where could no longer speak, only being able to mutter the words yes or no.

Within weeks of starting LDN, Marie was able to see clearly again and communicate freely. She thoroughly recommends LDN, saying that it “LDN is the best thing I have ever done”.

This is a summary of Marie’s interview. Please listen to the rest of Marie’s story by clicking on the video above.

Marie - England: Ankylosing Spondylitis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Marie, who's originally from Germany and now from England, takes LDN for Ankylosing Spondylitis. 

I think it was when I was about 17 years old when I started experiencing symptoms. I'm now 30 years old. I had an accident. I fell on the bench on my lower back. I was too proud actually to get it looked at.  I was hurting. And from then on, I kept having problems in that area. And, because I knew that I could have Ankylosing Spondylitis anyway because my dad has got it too, I was tested when I was about 11 for the genetic defect and yes, I do have it. 

 It would take me all day to get going and straighten up in some form. And people used to look at me because I'm still teaching fitness classes and thought you shouldn't be here.
And so I could keep going. And then when it was so bad, and I had my diagnosis, I just had another inspiration. I wanted to just finally see if I can find some natural way of healing. I found it but didn't make that much difference and I came across low dose naltrexone (LDN) because I kept digging deeper.

I tried and found something natural, but doesn't have side effects because I don't do well on any medication. I was so excited when I saw LDN. I just like the idea of no side effects. 

I get my pain mainly in my lower back around L4 and L5 I'm very stiff there.

I was so excited about LDN. After having taught three classes, which usually makes me very bad for Friday, I teach four classes, and I woke up in the morning and I felt ok.  I was never ill, it was amazing!

And then on Saturday continued and ever since then after being well, I just, every day I'm thinking, "Oh my God, I should have known this before."

I had a telephone consultation with my doctor and told him I found LDN, and he said, no. Primary care trust does not support this. Then I found another prescriber.
I don't want to go on anti-TNF. I don't agree with the side effects. I don't want to give it a try. It's not even proven to work. I've done my research. I'm a very informed patient and it's my body. And I need to do what's best for my body.

And I'm sorry, I just researched everything very thoroughly. And weighed out the pros and cons and tried to find reasons for why something should be working. And that's how I came to try LDN. 

My quality of life before LDN was a 2 out of 10. I couldn't concentrate anymore. I couldn't get any work done. I'm a freelance fitness instructor, a freelance designer, and I run a webshop so I can work around my problems, but I still couldn't get a lot done. And I was severely ill.

Now I'm bouncing and looked like an average person. You can't tell that I've got something wrong unless I have to demonstrate my spine flexion. Now my quality of life is a 9. I still know there's a problem there because then when I exercise too much, it goes a little bit. 

I would say to others to try it, go for it because you've got nothing to lose. It doesn't have any side effects. Many people report excellent results.  And if it doesn't work at least, you give it a try. I've persuaded my father too, to give it a try. Two weeks last night on LDN for him. It's not worked as well for him instantly as it did for me, which was quite sad. But I think that is because he doesn't incorporate a clean diet, which was very relevant to Ankylosing Spondylitis since the guts are very involved in this as well. 

Please watch the video for the full story.