LDN Video Interviews and Presentations

Garri - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Garri was diagnosed with MS aged 40. She is now 60.

In 2008 a shoulder X ray showed demyenolating disease but she was wrongly diagnosed as having Merniere's Disease. As an athlete she used a chiropractor. When nerve pain in shoulders, neck and back began and she had numbness and tingling in her extremities she assumed that playing too much tennis was to blame. After experiencing eye twitching an MRI scan revealed brain lesions - symptomatic of MS. She didn't want to take strong, conventional drugs, risking severe side-effects, but chose Low Dose Naltrexone after doing some research.

Following an episode of unrelenting trigeminal neuralgia pain when she asked her GP for LDN but was refused, she changed to a sympathetic doctor  who prescribed it. After only one week the pain had diminished and a month later it had completely gone. The eye twitching also stopped.

She has always had a good diet and exercised regularly. She firmly believes that for LDN to be effective it's imperative to follow a healthy regime. The emphasis should be on strengthening the systems that  keep us well whereas modern medicine focusses on their suppression. 

This is a summary. To listen to the whole Garri's Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) interview please click the video link.

Gabi - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Gabi from the United States shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) Story

Gabi's symptoms began in 1994 during a trip to Italy when she suffered a severe episode of vertigo and was taken to hospital where the diagnosis was inconclusive. It was assumed to be caused by a virus. Two days later it had passed.

Two years later she experienced numbness in her fingers but after two weeks it had gone. Then, in 2000 after her son was diagnosed with cancer she collapsed, sustaining a head injury which required stitches. An MRI scan revealed plaques in the brain. The neurologist advised annual MRI scans.

In 2004 she suffered optic neuritis and although a spinal tap proved negative she was given a Multiple Sclerosis diagnosis. She didn't want to take the strong drugs prescribed so spent 18 months researching and discovered Low Dose Naltrexone (LDN).

In 2005 following an episode of leg weakness she saw a neurologist who refused to prescribe LDN, but she found a GP wbo prescribed it. She started on 3.5mg increasing to 4.5mg in 2006. Her symptoms gradually improved almost imperceptibly and after 3-4 months she had no symptoms. 

Two years ago, when the whole family had a cold she took Nytol containing alcohol and the feelings of numbness returned. The alcohol was rendering the LDN ineffective. 

Since then she takes part in many activities including skiing, cycling and scuba diving. No one realises she has multiple sclerosis. She has publicised it on various MS websites to help other sufferers. 

This is a summary. To listen to the whole LDN and MS interview please click the video link.

Flora - Scotland: Myasthenia Gravis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Flora from Scotland takes Low Dose Naltrexone  (LDN) for Myasthenia Gravis (MG). 

At the end of last year, Flora was put on medication for bad fatigue and weakness in muscles. She managed to have a prescription for Low Dose Naltrexone  (LDN)  from her GP. 

Flora had no introductory side effects and even noticed improvements within the first month. Flora loves LDN, she recommends all to try it for Myasthenia Gravis (MG), saying that you have nothing to lose.

Please watch the video for the full interview. Thank you

Any questions or comments you may have, please contact us.

Fiona - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Fiona shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Fiona began to feel symptoms of Multiple Sclerosis (MS) in 1979 when she noticed she had pins and needles in her feet much of the time. She went to a doctor who managed to remove the pins and needles and Fiona thought nothing of it for another 20 years.

However, on the way back from work in 1997 she began to feel extraordinarily tired which eventually led to another trip to the GP and her diagnosis. 

Luckily Fiona found Low Dose Naltrexone (LDN) and says that her life has changed for the better, saying that she has regained almost all of her mobility and is functioning almost at 100%.

This is a summary of Fiona’s interview. Please listen to the rest of Fiona’s story by clicking on the video above.

Fiona - England: Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Fiona from England takes Low Dose Naltrexone (LDN) for Fibromyalgia. She first started noticing symptoms four years ago after back surgery, being 47 years old. 

Symptoms included, joint pain, and described it as having the flu everywhere. Sleepless nights and fatigue were also a major problem. Fiona rated her quality of life a 1 out of 10 during this time. During this time, she left her job and Fiona went to physiotherapy after having problems walking. 

Luckily, Fiona managed to be prescribed the Low Dose Naltrexone (LDN) by her doctor. After testing the waters with the LDN medication, she did not notice introductory side effects, she also explains how it has made such a difference to her life. Now, Fiona is sleeping better, she has had no sprained ankles due to no pain.

Now she has been on the LDN medication for five months, and has improved her quality of life to now a 8 out of 10. 

Please watch the video to view the full interview. Thank you.

Any questions or comments you may have, please contact us. 

Fiona - England: ME/CFS (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Fiona from England shares their Chronic Fatigue Syndrome (CFS/ME) and Low Dose Naltrexone (LDN) Story on the LDN Radio Show with Linda Elsegood.

Fiona first experienced symptoms of Chronic Fatigue Syndrome (CFS/ME) in late 2002, yet was not diagnosed until around 2007. She was restricted to her bed for the majority of her day, limited to completing two minute tasks before an overwhelming feeling of fatigue. On top of that, Fiona also struggled with muscle pain and spasms, further limiting her daily activities.

“It wasn’t too long after I started taking Low Dose Naltrexone (LDN) that I started to notice improvements in my health. The muscles in my legs have certainly improved, I’m now much more mobile.

I’d definitely recommend it to other people. While you may have to be persistent with some GPs in order to get the prescription, it’s one-hundred percent worth it for the final results.”

This is a summary of Fiona’s interview. Please listen to the rest of Fiona’s story by clicking on the video above.

Eveline - Belgium: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I'd like to introduce Eveline who lives in Belgium but is actually a Dutch lady. Thank you for joining me. Evelyn, could you tell us when you first noticed that there's something wrong with you?

Eveline: Uh, yeah, that's worth about, uh, eight years ago. Um, That's when I got hit by a car. And, uh, that's when all the, all my symptoms start, um, my heart doctor was thinking of whiplash because yeah, there are also many fake symptoms.

Um, Tingling all around my body. Uh, I was, uh, I was very, uh, very confused. Uh, I had migraines since, since he thought it was a whiplash. He wouldn't send me to a neurologist, um, about. A half-year later, I got problems with my vision also. Um, I went to a, to an, a, to an eye doctor who said it was, um, uh, he, he could see there was something with my, with my nerves.

It was already, uh, uh, on his resume. Um, but I, yeah, I thought it was, it was very fake. So I, I insisted to, to see a neurologist, um, uh,  yeah, a year later,  I attended one and then the diagnosis was, uh, was, uh, said to them very quickly.

Linda Elsegood: So if at that time, when you were diagnosed, If you had to rate your quality of life on a score of one to 10, 10 being the best, what would you have said your quality of life was,

Eveline: uh, between a three and a four

Linda Elsegood: really,

Eveline: really, really poor.

Eveline: The impact for my life was, was huge because, um, in about a half year, I couldn't work at all because I was a lawyer and, uh, I couldn't sit behind the, behind the computer and because my vision was so, uh, it was so blurry.

Linda Elsegood: And how did you hear about LDN?

Eveline: Uh, that was about, um, eight years later.

I must say there is a whole other trajectory in between because I, um, I, uh, I heard from dr. Masse, uh, that's a Dutch, uh, Dutch doctor who said that, uh, MS. Situ to, uh, multiple foods, uh, influences MS. And, uh, I found out for myself that I wasn't Solomon for, uh, for, uh, for many foods. And I, uh, I eliminated foods from my diet.

And this went very well for about, I think, five, six years then my, uh, my, uh, my intolerance is starting to, uh, to spread, uh, every week. There are there, there were, uh, another three foods for something that I couldn't tolerate. And when I said my, my MS got worse and worse, um, so this was a very troubling, uh, periods and, um, I, I wouldn't, um, I don't want to, uh, to take regular, uh, in this medication because all of the side effects, uh, so I went to, I went Googling, and I heard yeah.

Something about LDN buts, but, uh, yeah, not so much. And, uh, yeah. Then I got very interested in, I, I, I did a lot of research, and I think in a couple of. One or two months. Yeah. I made the decision to, uh, to try it kind of was April, uh, 2014. Yeah.

Linda Elsegood: what would you say your experience was?

Do you have any introductory side effects when you first started?

Eveline: Um, now I have to say, uh, and I don't know if you're familiar with that. Um, I know at first I, uh, didn't have, uh, so-called um, uh, XR, fume, free diet um, now, now he's not in, um, in the, in the, in Belgium, there's a very, uh, uh, on elderly end-users he's, uh, he's my famous, um, he's called Lucas Lamont from extendo, but you know, if we are able with him, Yeah. Okay. Yeah. And he says, um, um, Uh, to have, uh, has the, uh, the most effective as possible from LDN, you will have to, uh, to, uh, uh, follow an extra, extra few free diets.

So that's no gluten, no caffeine, no Soriano spinach, uh, because they were going to same receptors as LDN does. Um, and at the beginning, I, uh, didn't follow such as the diet. Um, so I went, um, slowly, uh, I began with, uh, with acquired the milligram and then, uh, um, I noticed that very quickly when, when my dose is too high.

So when, when my dose is too high, then I have side effects otherwise, no, and the side effects are according to Lucas, Lamar, uh, due to a so-called cough down-regulation, um, this, a particular group of, uh, receptors and receptors that doesn't work properly for me.

Linda Elsegood: What did you notice? What were the side effects?

Eveline: Uh, the side effects were drowsiness, uh, deterioration of my, uh, my MS. Symptoms, uh, such as, uh, cooking, Tucson, clarity, brain fog, um, headaches, um, difficulty to wake up the morning. Um, yeah, that's the side effects. Yeah.

Linda Elsegood: And now you've been on LDN for this length of time. What is your MS like now?

Eveline: Um, my MS.

It's, it's still a combination of, uh, avoiding certain foods and taking all the end buts, but, uh, I'm very less agitated. I am less tired. Um, I've got plenty of energy. , I feel better it's, it's, uh, Uh, overall. So I'm, I'm, I'm less depressed. Uh, I sleep better. Um, and when I do have MS symptoms, um, they pass away more quickly, and they are less severe.

Linda Elsegood: That's good. And what would you say your quality of life is like now on that score of one to 10?

Eveline: Uh, between seven and eight,

Linda Elsegood: but that's quite remarkable.

Eveline: Isn't it? Yeah. Yeah. That's right. Yeah.

Linda Elsegood: Would you say you can still carry on leading at a normal life?

Eveline: Yeah. Yeah. Most of the time, I am. Yeah. Most of the time.

Yeah. But I still say it's a combination of LDN in the, in the diets and then I can, I can lead a quite normalized. Yes.

Linda Elsegood: Yeah. And what would you say to other people that are thinking of trying LDN?

Eveline: Yeah, give it a shot because, uh, but let's start slowly with the dosage and, and, and listen very carefully to your body because your body tells you, uh, what the dosage is is, is quite good for you.

Although there, there are many people that can tolerate, uh, three or even more milligrams. Um, I see in a, in it's a Dutch, uh, LDN for one, there are also many people, uh, who have side effects and who quit, um, too quickly in my opinion. And that's because, uh, so many doctors are, um, giving a description for, uh, like my doctor to start at it's a three and a half milligrams.

But it's yeah. That's why, in my opinion, to start

Linda Elsegood: most people these days start on just, um, 1.5 milligrams

Eveline:   I noticed that 

Thank you very much for your good work and, uh, it's wonderful what you're doing and, let's hope, that LDN becomes more known Thank you. pleased to be able to help you.

Linda Elsegood: thank you for sharing your experience.

 

Any questions or comments you may have, please Contact Us.  I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Eva - England: Fibromyalgia, CFS/ME, Lyme, Pain LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Eva from England takes Low Dose Naltrexone (LDN) for Fibromyalgia, ME/ CFS and Lyme disease. She primarily takes it for pain. 

I was about the age of 17 when I started experiencing pain, mainly back and neck pain. I'm 43 now. 

Later I was told I had some knowledge fibroids as well so I ended up with operation. I took a lot of painkillers for those first few years, and I do think they did a lot of damage.  
At the age of 30 the fatigue came in because I was just driving my body a little bit too hard with being too busy working and I didn't realize what I was doing at the time.
So the Chronic Fatigue syndrome came in much later. 

Before I started taking Low Dose Naltrexone (LDN), most days I was pretty inbound.  I tried to push and stay mentally active as much as I could, but I was very limited with regards to the activity. Everything takes planning, sort of social interactions and everything. My quality of life was like a three or four out of ten. So very limited. 

I used to do and still  do a lot of research online to try and see what I can do to help my situation. When day I found the LDN Research Trust and contacted Linda. She kindly helped me. That was a year ago.  I started very low dose of Low Dose Naltrexone because I had read that people can have problems starting at higher doses. It did take me a good few months to take up. The body did react.

Now I'm on 4.5. mg. I'm feeling really happy that LDN helped me. I'm not saying that the pain is gone  and it has absolutely helped with sleep as well, which was the benefits. I didn't sort of expect that. Very pleased. Unfortunately, it hasn't resolved everything. I wasn't expecting it to be the magic bullet.
And I know from blood panels I've had this year as well, although there are some quite high viral titers going on, the immune system is coping ok.

I know you're doing an amazing work and I think more people need to have access to it for sure.

Summary of Eva's interview, please listen to the video for the full story.

Erin - US: Hashimoto's, Lupus, Depression (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I’d to introduce Erin from the United States who takes LDN for hypopituitary or as it's sometimes called secondary adrenal insufficiency. Hashimoto's thyroiditis, lupus and depression. Thanks for joining me, Erin.

Erin: You're welcome. Thanks for having me.

Linda Elsegood: Could you tell us when you first started to become sick?

How old were you?

Erin: Um, well, I would say I noticed, um, I was, it was after the birth of my third daughter. Uh, and that would be approximately 13 years ago that, uh, I was. Becoming increasingly fatigued and, um, just not handling stress well at all. Um, and we discovered at that point that I had a, that my thyroid was underactive and I started taking, um, some people medication, which, you know, it kind of sorta helped, but I, I never really, um, So back, quite back to normal and over the years following that birth, but especially after the birth of my next son, which was, um, I mean, my son, which was let's see, ten years ago, almost 11.

Um, then I fell into a deeper state of ill health where Lucas. Uh, come out, and we discovered that my hypothyroidism was actually, um, Hashimoto's thyroiditis. So it was the autoimmune, uh, form of the condition. And I was very, um, I was depressed. I was exhausted. I was in pain, um, and we were able to get my autoimmune conditions, um, under relative control.

Uh, within a couple of years, uh, doing some anti-inflammatories and things like that. But since then, I have always had lingering symptoms. So since the birth of my son, my periods never came back. So I, I never, um, had natural cycles again. Um, I've always suffered from depression, uh, nearly chronic, um, just.

Very easily brought low. I've always suffered from extreme irritability. Uh, just very low tolerance, distress, uh, any sort of loud noises. And I just, you know, lash out. I just, it would make me come unglued and, um, I was also, uh, having extreme constipation and just a lot of lingering what I would call high coats.

Fibroid symptoms, um, or, you know, low adrenal symptoms, but no one ever checked my adrenals at that point. So about a year ago, I started doing some investigating on my own, and I discovered that I was showing symptoms of a low adrenal function. And I started contacting through the help of my doctor and through the help of some forums on the internet.

Uh, I. Was able to piece together some tests that I might benefit from and come to find out last October, we came up with the diagnosis of a hypopituitary. So I have the reason that I wasn't cycling. And, um, the reason that I had such low-stress tolerance was that the pituitary couldn't communicate with my other endocrine glands, the need for the hormones that my body needs.

For, uh, my, you know, oblation and my cycles, he couldn't communicate it for the adequate amounts of cortisol to deal with stress. And, um, I was on that at that time on one of the LDN forums, because someone had suggested that it was a great forum to be on. And I hadn't really, um, heard of LDN, but I. They said it helps library problems.

So I joined the forum. I started learning about it. Um, I was in the process of optimizing my thyroid meds, getting switched over from T four to T three, which is a more potent, uh, thyroid medication. Um, and I, at the point at which I thought I'd find it. Fairly optimized. My thyroid things were going a lot better.

I was working on my iron levels, which were low. And, my symptoms of low thyroid were beginning to resolve on the different, on the different stuff. I would medication that, the symptoms that weren't resolving, where my depression, um, and I had also heard that LDN on the form that it can support the, uh, hypothalamus.

Adrenal pituitary. Um, adrenal axis, the HPA axis, which is typically the problem in hypo pituitary. I heard it could support that.

So I decided that once I optimize my thyroid meds, as much as I could, I was going to try all the, that came about, uh, just before the turn of the new year. So I think it was December 27, 2013.

I decided to go ahead and start the LDN. Uh, starting December 28, 2013. I have not been depressed one day since it had resolved all of my depression from day one. That was, it is unbelievable. It brings me to tears to think about, because I have suffered under such chronic depression and I think it was due to just, you know, low serotonin levels is all I can, um, Really think, cause I know that they'll be in supporting those serotonin levels and no one ever figured it out, but the LDN resolved it, and I have not been depressed day one.

Um, so that was resolved. And then within a week of taking the LDN, I was able to drop one-third of my thyroid medication. Um, I track my vital. Are you religious late? So I am constantly aware of my blood pressure, my heart rate and my body temperature. And uh, based on those. Vitals. I could tell that I just didn't need another dose, uh, that I normally take.

So I dropped one of my doses during the day, and I did fine. My vital States, they stayed great. So then, um, as I was following the protocol of moving up on the LDN a month later, so in February, when I went from 1.5 milligrams of LDN to three milligrams of LDN, A week after I made that change, I was able to reduce my thyroid medication again by one third.I was able within just under two months able to reduce my thyroid medication by two thirds and resolved all of my depression. And I'm still looking forward to seeing if it fixes any of my other hormones, albums. I just went in today actually for some retesting of my sex hormones.

And I'm looking to see if maybe, you know, over time it might improve those levels naturally. I'm not sure what other magic it's going to do to my system, but I am utterly grateful for LDN. And I'm so pleased with the results that I've had now. I did have some sleep issues with it, but those are gone, and I'm just.

Just very, very happy with it. And as I was telling a fellow, uh, a friend who was asking me about it for their own health, I said, you couldn't pry it from my cold dead hands.

Linda Elsegood:  Amazing story

Erin:it is, I am just, um, I'm so grateful. I honestly, I, I suffered from depression for so long, just, you know, four out of seven days a week probably. And I just. I feel like a new person.

Linda Elsegood: I'm so pleased for you.

Well, keep me posted, let me know how you get on in say a year's time. That's very interesting. Yes,

Erin: I will definitely do that.

Linda Elsegood: Thank you very much for sharing your story with us, Erin.

 

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Eric - US: Allergies (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Eric discovered LDN about two years ago from a physician who is a friend who practises functional integrative medicine.  His allergies at that time were debilitating; generalised immune responses to everything from food to environment, to chemicals, to pollens to detergents in the grocery store and so on. 

He had chronic sinusitis, hives, itchy, watery eyes, and difficulty breathing. And the drugs to treat all of that all have their share of dangers and interactions with other medicines and effects that he did not want.

Within three days of starting the LDN, the symptoms dissolved, and that was shocking because he had tried everything on the market. He'd seen multiple specialists and was told nothing else could be done for him.

When he began Low Dose Naltrexone he had no noticeable side effects.  He got all the effects he wanted and none that he did not want. He was able to buy the LDN compounded for him - a year's worth at a time. And it's inexpensive and not a problem at all.

 It replaces in some situations drugs like Humira, which in the States costs$3,000 a month and he pays only $200  for a year's worth of LDN. So, the pharmaceutical industry won't embrace it anytime soon. 

It took only three days for the LDN to take effect. 

He was also very gluten sensitive but he can now go out and have a pizza with anybody now and without adverse effects. 

 When he had a minor hospitalization the frustrating part was that because nobody was aware of what the stuff was they thought he was using Naltrexone for addiction 

But conquering. Ignorance is probably the greatest challenge. One needs to find afunctional integrative medicine practitioner.

This is only a summary. To see the complete video please click on the link.