LDN Video Interviews and Presentations

Dawn - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Dawn from England shares their Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story with Linda Elsegood.

Dawn began to suffer from Multiple Sclerosis (MS) symptoms around 8 years ago when she experienced numbness in her muscles. However, it wasn't until she experienced a severe attack 2 years later which prompted her to search for solutions.

Her vision also began to deteriorate yet she thankfully found Low Dose Naltrexone (LDN) swiftly meaning her symptoms didn’t progress too much further.

“My mobility is back to 100%. There’s nothing I can’t do now and my energy levels are so much better.”

This is a summary of Dawn’s interview. Please listen to the rest of Dawn’s story by clicking on the video above.

David - US: Trigeminal Neuralgia, Ganglionopathy (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

David shares his Trigeminal Neuralgia and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

David’s pain caused by Trigeminal Neuralgia gradually developed from the top of his neck throughout his whole back. Trigeminal neuralgia is a chronic pain condition that affects the trigeminal nerve, which carries sensation from your face to your brain. 

David noticed that even a mild stimulation of his face, such as from brushing his teeth triggered excruciating pain. Desperate for finding a solution, David came across Low Dose Naltrexone (LDN) which has helped him “get his life back”, hailing it as the “greatest drug of the 20th century”.

This is a summary of David’s interview. Please listen to the rest of David’s story by clicking on the video above.

David (3) - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

David from the United States shares his Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story with Linda Elsegood.

David was hospitalised when he was only 19 years old having experienced serious Multiple Sclerosis Symptoms (MS), including an inability to walk properly due to a severe loss of balance.

This prompted David to conduct his own research while his condition deteriorated to the point of him being dissabled. Fortunately David came across Low Dose Naltrexone (LDN) online and the rest is history.

“I can now feel 75% of my body again. It feels weird to walk but LDN’s given me that back and that’s amazing.”

This is a summary of David’s interview. Please listen to the rest of David’s story by clicking on the video above.

David - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

David from the United States shares their Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story with Linda Elsegood.

David first noticed something wrong with him around 30 years ago when a carton of orange juice fell out of his hand in the supermarket. Despite being only 34, his symptoms progressively became worse, developing a limp in his right leg and losing almost total control of his hands.

David received multiple treatments that had little effect on improving his Multiple Sclerosis (MS) until he found Low Dose Naltrexone (LDN) online. Ever since he has had great success: less muscle spasms, regain of muscle control and better sleep.

David is a strong advocate for LDN and recommends it to all who have been diagnosed with MS and those who are yet to try it.

This is a summary of David’s interview. Please listen the rest of David’s story by clicking on the video above.

David - US: Chronic Fatigue Syndrome (CFS/ME) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

David from the United States shares his Chronic Fatigue Syndrome (CFS/ME) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

David first noticed symptoms of his Chronic Fatigue Syndrome (CFS/ME) in the spring of 2000 upon returning from a trip to the West Coast. For the next 6 months David suffered from a drop in his overall energy levels and was unable to exercise regularly anymore.

David thankfully had prior knowledge of Low Dose Naltrexone (LDN) and sought it out from his local pharmacy. Within three weeks of starting on LDN he was already beginning to feel much better and was able to return to regular running.

David strongly recommends that people research LDN and learn about its benefits so that if you know someone, or even if you yourself, is diagnosed with an autoimmune disease you can tackle the issue swiftly.

This is a summary of David’s interview. Please listen to the rest of David’s story by clicking on the video above.

David - Spain: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

David from Spain shares his LDN story for multiple sclerosis.

It was 11 years ago when he started having symptoms. He was losing feeling in his legs so he looked up different therapies and medicines and he found out about LDN.

LDN helped him get his quality of life back. He can swim, walk and run now. He can also do daily task much easier.

To listen to the full interview play the video.

Any questions or comments you may have, please contact us. I look forward to hearing from you. 

David - England: Lyme Disease (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

David from England takes Low Dose Naltrexone (LDN) for Lyme disease. He first noted symptoms when he was around 21 or 22, when his health started to fall apart quite quickly. He was practically housebound. He was exhausted, suffered from brain fog, upset stomach, and a lot of muscle aches and pains. He suffered from confusion, inability to concentrate, headaches, and IBS. He had to rely on state benefits and could only work part-time. Once his specialist diagnosed the Lyme disease and prescribed LDN, his symptoms improved dramatically, and he was able to work full-time.

At one point, he went off of the LDN for a two month period, but found that his health deteriorated again and his symptoms returned. However, once he resumed the LDN, he again saw benefits as before. 

David also notes that for him, LDN side effects were mainly vivid dreams, but other than that, no negative side effects.

This is a summary of David’s interview. Please listen to the interview for the full story. 

p>

 

David - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

David from England shares his Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

David first noticed issues with his health a year following his marriage in 1998. It was in fact his brother who pointed out that David may be unwell during a game of football as he kept giving the ball away, something David says he didn’t usually do.

At the time David was 30 years old and as his energy levels decreased, so did his bladder control. As his eye sight also deteriorated, David became motivated to find a solution to the problem which is when he came across Low Dose Naltrexone (LDN).

After finding his optimal dose, David began to reap the benefits of LDN and was able to return to football and travelling with his wife. His life quality before LDN was a 3; now it is a 8/10.

This is a summary of David’s interview. Please listen to the rest of David’s story by clicking on the video above.

Darren McDuffy interviews Linda Elsegood about LDN (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) Story on Phat Man Radio with Darren McDuffy.

In 1969 at the age of 13, Linda had glandular fever (Epstein-Barr virus). She was seriously ill and away from school for six months. 

Late 1999 Linda’s mother had a serious heart attack and the trauma affected her badly. She was working full time, travelling two and a half hours every day and running the home. This excessive workload and stress began to take its toll on her health, and by May 2000 she had lost her balance, lost feeling in the left side of her face and her head, tongue and nose were numb with pins and needles.

In early December 2003 Linda started Low Dose Naltrexone (LDN), and the results were incredibly positive. By Christmas Linda was functioning again, and her liver tests were back to normal. She felt like herself again.

Linda founded the LDN Research Trust in May 2004. In this interview she says that it is the most exciting thing she has ever done. She is able to give many hours a week to the Trust, helping people to get LDN and trying to get it into clinical trials.

This is a summary of Linda Elsegood’s interview. Please listen to the rest of Linda’s story by clicking on the video above.

 

Linda Elsegood: I'd like to introduce Darlene from the United States who takes LDN. Thank you for joining me, Darlene.

Darlene: I had lupus for many years and started back when I was raising my young children, and I felt fatigued and feel all the time. So I found the LDN.

Linda Elsegood: Before we start Darlene, what are the conditions do you have?

What autoimmune conditions that you use LDN for?

Darlene: Well, I use it for Myasthenia Gravis also, another autoimmune disease.

Linda Elsegood: And do you said about Raynaud's syndrome?

Darlene: I couldn't take it for that. I haven't really seen any results from that.

Linda Elsegood: And do you have IBS as well. Is that right?

Darlene: Yes. They said I would need a lower dose for that, but I've tried the lower dose, and it helps the IBS. I don't get the benefit for Lupus.

Linda Elsegood: Ok. So how old were you when you had the Lupus?

Darlene: It started when I was about 29 years old.

Linda Elsegood: And what symptoms did you have at that time?

Darlene: Just feeling ill and weak like you had the flu or fever but didn't run a fever.

Linda Elsegood: That must've been very difficult with young children.

Darlene: Oh, it was terrible.

And I would go to the doctor, and he couldn't find anything wrong with me. "Oh, you're just feeling bad." Everybody would try to blame it on nerves, depression and it took ten years for them to find a diagnosis.

Linda Elsegood: And what were you offered once you had your diagnosis?

Darlene: They said it was Lupus, Systemic Lupus and put me on the Prednisone and all different drugs,

which didn't really help or do any good for me.

Linda Elsegood: And how long were you before you had these other autoimmune conditions?

Darlene: So my opinion? It was about 20 years then I had Lupus.

So I really didn't respond to anything else.

Linda Elsegood: And how many years was it from first being ill to having heard about LDN? How many years in between?

Darlene: Oh, I didn't hear about LDN until 2009, and I started with Lupus in 1989 when I was diagnosed. So that would be 20 years.

Linda Elsegood: So in those 20 years, what was your health like just before you found LDN?

Darlene: If I planned anything, I would get sick, and my family thought I was just sick all the time, but I would feel well some days, and then other days I'd feel sick.

So every time we'd plan something, we'd have to cancel because I'd get a flare of the Lupus. And I didn't feel well. So we had to cancel our plan. I went around like that, just raising my kids and living that way for 20 years.

Linda Elsegood: And what would you say your quality of life was like at that point with ten being the best?

 Darlene: Probably two or three. And then when I got the Myasthenia Gravis, it got even worse. The weakness was worse. I had some days where I couldn't get out of bed. I couldn't walk. I had to use a wheelchair. Couldn't walk distances at all. And some days I would crawl to the bathroom from the bed would be so weak I couldn't lift up a fork to eat.

And that was also in Myasthenia Gravis when that came. So then I had two diseases. I did get the thymus removed for the Myasthenia Gravis because I ended up getting a fibroid cancer to make a long story short. They said they would remove the thymus then along with the fibroid because I had wanted to find this out because they say you improve and it helped them somewhat, but not a whole lot.

Then after that, I still had flares of Lupus and the MG, whatever it was because they just called it the lupus syndrome because I didn't know which one it was bothering me. I tried to treat Lupus with all the lupus medicines and none of them worked for me. None of them helped. Then one day I got an email about the LDN and so I thought: "Wow, check it out."

So I started looking on the web and saw that people were really getting well with MS. And there were a couple of Lupus patients on there. So I said, "Well, why not? I haven't got anything to lose. Try it."

Linda Elsegood: How easy was it to get the prescription?

Darlene: Well, it wasn't too bad. I talked to Crystal on the internet to find a doctor in my area.

And of course, my Rheumatologists didn't know anything about it, but I went to the doctor in my area. He was a regular internist, and he gave me the prescription right away.

Linda Elsegood: And when you first started, did you notice any introductory side effects?

Darlene: I noticed no side effects at all for me, but I did notice a great difference in my energy.

I was helping to move my mother. She was moving, and I had lifted boxes and all that. And everyone thought I'd be fit because, with Lupus, you can't do that. And you'll pay the next day, I guess, just like MS. And the next day I wasn't sick. I kept feeling good and kept helping her pack and lift boxes the whole week.

I never got sick. I just felt more energy. It was great, like a miracle overnight for me.

Linda Elsegood: Wow. So how long has he been taking LDN now?

Darlene: I've been taking since 2009. So about five years.

Linda Elsegood: Amazing! So how long did LDN continue to improve your condition?

Darlene: Well, it just kept working, and I haven't had any flares for the six years.

I even went through a lot of stress with my son because he had leukaemia and was hospitalized since his treatments. It was very stressful, but he came through it, and I came through it without any medicine taking it.

Linda Elsegood: And what would you say your quality of life is like now on that score scale of one to 10, 10 being the highest?

Darlene: Mines at 10. I'm like the difference between night and day. My whole family tells me that. I am a different person because I've been doing things I've never done before. I'm able to do the things a normal person does and I am so thankful for that.

Linda Elsegood: Well, amazing testimony, isn't it?

Darlene: And that's just one email sent to me really changed my whole life to get that drug.

Linda Elsegood: So, what would you say to other people who are thinking about trying LDN, but maybe are a bit sceptical?

Darlene: Well, I can't guarantee it works for everyone. I have heard some people say it didn't work for them, but I don't know the situation or if they tried it long enough or any of the particulars. If I can say it's worth a try because it has little side effects and it doesn't hurt to try it. If you're as sick as I was, you have to try something. I couldn't go on like that.

Linda Elsegood: Well, that's one amazing story! Thank you very much for sharing with us Darlene!

Any questions or comments you may please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well!