LDN Video Interviews and Presentations

Ciara - Scotland: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Ciara from Scotland shares her LDN story she has primary progressive.

Ciara started showing symptoms around 2005, she started getting numbness in her feet. At first, she thought it was because she was using patches to stop smoking. Then she mentions it to her doctor, and that's when he decided to run some more test. She found LDN through a childhood friend on Facebook. She got a prescription for LDN and had no side effects taking it. She's only been taking it since April, but she is very confident it will work well.

To hear her full story, please click on the link above.

Any questions or comments you may have, please contact us. I look forward to hearing from you. 

Christine - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: This evening. We're joined by Christine from the United States who takes LDN for multiple sclerosis. Thank you for joining us, Christine.

Christine: Thank you for having me.

Linda Elsegood: Could you tell us when you first experienced symptoms?

Christine: The first time I can remember experiencing the symptoms was in 2008, but at that time, I didn't realize what I was experiencing. I actually attributed it to some muscular issues I was having with my back at the time. But it was the feeling of what I've learned is MS especially look down, the action of putting my head down would create a tremor in my body that would go through my whole body and at the extremities, it would radiate. I started also having in one arm or the other, usually not at the same time, a fullness, a tingling, and in my hands, I had sensitivity at that time in 2008, it was actually more prominent in my seat, toes and in my hands.

So those were the first signs that I can attribute back now we're probably the signs of the MS. But at the time, I, I just thought there was something structural going on because I had some back issues.

Linda Elsegood: And how old were you at the time?

Christine: 30,

Linda Elsegood: So you had this issue, uh, did it come and go?

Was it like relapsing and remitting or did that stay with you and then you just developed other symptoms?

Christine: Um, those symptoms were present for a few months. And again, I wasn't sure what they were. So I had, uh, sought out a chiropractor and I will say that going to the chiropractor was very much a sort of holistic chiropractor.

He looked at health and things outside of just adjustments. Um, and I was going to him quite frequently. He wanted me there like three times a week initially, and then it went down to twice and then one time a week, um, the symptoms started to relax from the standpoint of the fullness in the arms and the tingling in the legs, but I still had the lemme syndrome where I would look down. I just noticed from time to time. It wasn't every single time. But if I was standing upright and was looking, someone said, look down at your toes, I would feel that tremor. So that tremor never really went away. Um, and maybe because there was some corresponding back issue, it helped some of the other issues dissipate.

A bit, but I'm never truly a hundred per cent, one away. And then fast forward to about 2012. So about four years later, I had a reoccurrence quite drastically, and now it was concentrated on my hands. So the top parts of each finger felt full. Um, and were very sensitive. I noticed touching things were more difficult.

Uh, didn't have as much issue with, with my toes that would come and go. And ever since 2012, I've had a constant level of pain and discomfort sensitivity in both hands. So that has been the most current, um, and constant. Symptom along with, there was a new symptom that came in about 2013, which I can only really expresses like restless leg syndrome, which was my legs felt like I had run a mile.

They were very, very, um, fatigue without having to do too much. Um, and at night it would wake me up. It made it difficult to sleep. I didn't feel so bad when I would walk or, uh, you know, I was not having any issue with my gait or anything. Like that, it was more noticeable just as a symptom on its own, but it didn't keep me, you know, thankfully from doing too much, I just had to deal, deal with that.

And that's the basis for my symptoms. Thankfully I haven't had, except for my hands. They cramp when I have to write, um, I use a computer, and I try not to do too much writing because as I write my hands, Hurt more and they begin to cramp. And the only other, uh, symptom I can really speak to is fatigue at times.

And it does, thankfully it doesn't come on too much, but I'm a very, um, active person on the weekends. Like this weekend, no relaxation house cleaning, running around errands, kids, things like that. It's very unusual to see me just lay in bed for a weekend and. Relax if every now and then, and it may happen.

Let's say once a quarter, once every four years, I get so tired that I am very fatigued and I'm not really doing too much slang around for the weekend. I have noticed that. And I guess on some level. I'm very thankful for this. It seems to come more on the weekends. I think it's a product of being so busy during the week working and things of that nature.

And then by the end of the week, I just feel like it all has caught up with me.

Linda Elsegood: Okay. And if you had to have said before you started LDN on the score of one to 10, what your quality of life was like, what would it have been.

Christine: Um, well, I mean, outside of the, I've been very lucky. I have, I have a relaxing remittance is the diagnosis I have.

Um, I was. My quality of life was really, um, quite good from a day to day perspective. But the pain level that I got used to is my hands and some of those other symptoms, it was quite, um, intrusive. So personally, um, it felt like. Um, it's ten is the best I've ever felt. You know, I was at least down to, you know, a five or so because of how uncomfortable it could be at times it would have increased my, my mood to also, uh, cause my hands are burning and hurting.

Um, I've, I've been to the point where I have literally come up with contraptions band-aids things like that to put on my hands because the pain is so unbearable. So, um, I wouldn't necessarily say I was at a zero. But I was at least halfway down, and I was looking for any help I could get now, thankfully, every single day wasn't like that, but there were many days, you know, in a month that were like that.

And afterwards, what I noticed is it did take a bit of time for the LDN to really make an impact I'm going on a full year, maybe a year and two months at this point, um, I started out with a dose, uh, that was. Not, not exactly high, but not exactly as low as some people were used to. And I was experiencing what I thought were some issues relative to the dose.

And once my doctor changed me, so I'm really identifying since I've been on the dose, I've been on, on, that's been working, that's been a year, but I had been on a prior dose for maybe two or three months before that.

Linda Elsegood: And we'll say easy to get hold of a prescription of LDN.

Christine: I wouldn't necessarily say that I was lucky that I have a homoeopathic medical doctor.

Who's also a personal friend and he was. I'm aware of LDN. He has a brother-in-law who has MS. And I believe he had introduced LDN to him. He's also the kind of person who is very open-minded. I sent him research. He'll read it. I'm actually sending him the LDN book, um, that I've. Purchased the book that was recently written and I'm also sending it.

My daughter has, um, some, some, uh, some issues and she goes to an endocrinologist and he's interested in reading it as well. So I have a few doctors that I'm lucky that, um, that know about LDN and I've met some people in the community where I get my medicine. It's compounded at a local pharmacy. The gentleman that's, the pharmacist has done a lot of advocacy work.

For, um, for LDN in the area, he will go and visit doctors. Um, so he was one of the people that gave me other people to speak to, but my original doctor, the homoeopathic doctor, was familiar with it. So I actually see him exclusively. Um, for, for LDN, I have a regular medical, and that's partly just because here he doesn't take any insurance and it can be quite costly.

Linda Elsegood: And when you got used to the LDN, and you said that, you know, it started to work for you on the dose that you're on. What did you notice happened?

Christine: Well, on a pain level perspective. Um, for the most part, my pain went down to almost on days where I would have to stop and go. I'm almost normal. I had a, a realization of that.

And what I've noticed is that when I'm doing a lot, when I've pushed myself, Beyond that, that level of, you know, you need to relax now, Christine, or you need to do something good for you instead of just running and doing. Um, uh, sometimes exercise will bring on a little bit of the pain too, but normally I have found that I have a new normal, I have a good space that I've gotten down to in my pain level.

It's somewhere between being aware of it, but not necessarily calling it pain. And that's where the LDN got me too. It's also been great because I have no pain. Uh, really in my, in my feet. Um, I think one time that I can think of, I had some tingling, but it was nowhere near the pain that would be reminiscent of what I had before or the pain in my hands, the legs, as far as the restlessness, that still comes from time to time.

It's probably about the same frequency, you know, maybe one time, every, um, Three months. Um, and I'm still dealing with a number of other issues, um, relative to my back. So it's sometimes hard to exactly pull out if this is, and you know, this is what happens with my patients all the time, at least in my opinion, cause I've worked with them and I know people you're always wondering, is it the MS or is it something else?

And it's sometimes it's, it's hard to distinguish, and that can be frustrating sometimes.

Linda Elsegood: Well, you seem as though LDN is working really well for you. Um, and what would you say now that score would be on a scale of one to 10, 10 being the best.

Christine: Oh, I mean, I'm definitely operating, you know, at an eight-level, uh, predominantly.

Um, so I think that on a score level, you know, LDN being on it for this period of time, and I'm really, I have read research too, that has shown that maybe the longer you're on it, the better you get, because it has to sort of work through your system. And I'm also incorporating more of a. A healthy diet of organic food, um, you know, very clean food and, and doing whatever I can from a supplement perspective.

So I really do feel that the combination of all those things, uh, probably will in a year from now, maybe I'll be a nine. Um, but I would definitely say, you know, a good eight at this time.

Linda Elsegood: And what would you say about the tremors? Hopefully?

Christine: Yeah. They're, they're not gone. I mean, on occasion, I'll almost test it out if you will.

Cause it's not, it's not necessarily normal that you would just sort of put your head down. But when I do, I mean, for the most part, uh, it doesn't happen every single time, but they're there and it really, from day to day doesn't impact me. So yeah. I mean, I'm very, very grateful and appreciative for the fact that I am at the level I am now.

Um, I'm actually due to have, um, MRIs again to see, um, I have a very interesting thing where they didn't even know if it was MS. They thought it might have been optic neuritis, but my eyesight has never had, you know, thankfully an issue, but because of the way I present on. MRIs. I show one very long was perceived as one very long lesion in my thoracic spine, but they're not sure if it could have been a number of smaller ones.

So that was a diagnosis that was played around with before MS. Um, but, um, you know, I think I said to bill more forms at this point.

Linda Elsegood: Thank you very much for sharing your experience with us.

 

Any questions or comments you may have, please Contact Us.  I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

LDN Research Trust on Vimeo.

Christian, from Germany, takes low dose naltrexone (LDN) for multiple sclerosis (MS). He was diagnosed at age 30, in 2001.

In 1995 he had symptoms like inflammation of an eye nerve, but no one connected it with MS at the time.

In 2001 he could run 10 km and run a marathon, but became unable to walk 200 m without a walking frame. After internet research, he used e-med to get a prescription, which he filled at Dickson Chemist. For the first month he had wild dreams, but was able to increase from 1.5 mg LDN by 0.5 mg over 4 weeks.

He notes decreased fatigue and more energy, although his MS continues to get worse slowly. He recommends LDN for others with MS, as well as continuing activities that move the body. He also takes Tecfidera, but feels it is not more helpful than LDN. He remarks that it is difficult to find a doctor to prescribe LDN in Germany and turned to England for his prescription. He spends about 400 € annually.

Summary of Christian's interview, please listen to the video for the full story.

Any questions or comments you may have, please Contact Us. We look forward to hearing from you.

LDN Research Trust on Vimeo.

I am Chris from Taiwan and I have Sjogren's Syndrome.

Sjogren is a disorder of the immune system, often defined by two most common symptoms, like dry eyes and dry mouth which is exactly what I have. I was diagnosed when I was 42.

I was very healthy, and led a very active family life. I loved travelling. When I came down with this disease, it just made my life very difficult. It made simple tasks, very difficult because the eyes were just burning painful every single day. I used to walk in big shopping malls with an ice pack over my eyes because I just couldn't keep it open. And I couldn't travel. It was very difficult to travel by air, especially with cabin air and being in a very tropical climate.

I was very scared because I didn't know much about this disease and I couldn't find any help anywhere so  I became very depressed.

I went to see doctors, and they just told me that I had an excessive dried eye than normal and gave me eye drops. I knew something was wrong but I just couldn't pinpoint it.

After 9 months I made an appointment to see my rheumatologist and he confirmed the likelihood that I have Sjogren's.

I started also having other symptoms like pins and needles sensations in my upper body, heat or this burning sensation in my upper torso, which I couldn't explain.

I started to have little jerks and little spasms in my legs.

I even joined the Sjogren's World Society and  those discussions just frightened me more because I saw people taking Plaquenil, but still, everybody's disease we're still progressing. And the worst of all is that people seem to be getting more autoimmune disease one after another. So I just didn't believe that is the right course for me. And that's why I started searching and finally, came up with something that seems to share some light and that gave me hope and which was the LDN.

I met two patients who have Sjögren's like me in this United States through the internet.

I went on the net, and I bought my medication through the internet pharmacy.

I started taking it a November 27th of 2007. So it's over three and a half years now.

I remember clearly I had an unusual rash that afterwards I realized it was some kind of an yeast infection.

I immediately saw results in about eight days. My saliva came back in eight days,  and I was almost broke down and cried because I just couldn't believe it.

And then my eyes improved, even though the improvement in my tear, film production wasn't as dramatic as my saliva, but that just gave me all the hope in the world.

I had some headaches and anxiety. but after about four months of taking LDN at 4.5 milligrams, every night, I developed a reoccurring urinary tract infection that just wouldn't go away.

And my LDN began to fail as well because the LDN benefits that I had experienced were wiped out. I had a case of candida overgrowth. So I immediately treated with a strict diet and antifungal medications and LDN began to work again. But after another seven months, LDN failed me again.

When I found out that it was a matter of LDN build up in my body so I experimented with a lower dosage, and I skipped a few nights, and now it has performed more consistently, and I'm still able to enjoy the benefits of LDN.

LDN is the best thing that ever happened to me. I have great relief from my symptoms, and I have hopes again because I believe that LDN stopped my Sjögren's from progressing and possibly even prevented any other autoimmune diseases from developing. So overall speaking, I am just a happier and healthier person.

Play the video to listen to the whole story.

LDN Research Trust on Vimeo.

Linda: I’d like to introduce Chris from Scotland, who has primary progressive MS. Welcome, Chris. Can you tell us when you first started noticing your MS symptoms?

Chris: It’s right about 2004 when I was around 55 years old. The symptoms came on as problems with bladder control, feeling tired, and so on. It was a very slow realization that I put down to my age. Initially I was tested in  2005 because I was falling down in the street and people were looking at me as though I was drunk, but I was losing balance, tripping over, and falling in the street, so our doctor referred me to the local hospital to get some tests. It took about two years for the neurologist concerned to tell me that I had MS. I was a busy man at that time. I had three retail outlets, we did lots of contract work and this sort of thing, so I was here, there, and everywhere; and everybody’s everybody point of reference thing, so I realized I had to make some alternative arrangements for my business, and there was a lot of stress and a lot of difficult times. It took between 2004 and 2008, I think, to realize I wasn’t going to get any better.

Linda: How did you hear about LDN?

Chris: My neurologist was a disappointment, so I invoked my private health care policy and chose another neurologist, who confirmed the diagnosis and referred me back to the other neurologist, who wanted to give me a steroid IV over a three-day stay in hospital, and I point plank refused to take that and did a lot of research on my own and came up with the LDN solution. I read a book by and Irish lady whose husband was..

Linda: the book would be Up the Creek With a Paddle by Boyle Mary Bradley

Chris: I researched even deeper into that and decided well, if it’s good enough for Dr. Bihari and those guys to try, I’d try as a starting point. It took a while for my local GP to agree to prescribe LDN. He said he had a family to think about and was not going to get involved in this sort of quack therapy. I pressed the point with one of the other GPs at a later appointment and she, who’s the senior GP in the practice, saw what I was trying to do. I presented her with all my findings. LDN was on the NHS list of approved medications, but unfortunately the filler was calcium carbonate which my research through Skip Lenz shows apparently it’s a sort of counter-actor to LDN and negates the effect. Now I have a filler Avicel, for me, the preferred filler for LDN. My dose is between 3.0 – 4.0 mg, depending on how I feel. All available through my local GP at no cost to me.

Linda: Did you notice any introductory side effects?

Chris: Yes. Some great dreams of all sorts of weird little things for the first few weeks that settled down, and now I have LDN with absolutely no side effects.

Linda: Has LDN helped you at all?

Chris: I can only assume a beneficial effect, not knowing what the alternative would have been had I not taken LDN and gone for something else. My theory or philosophy on this is that I done want to ingest any stuff that’s on the drug market for the satisfaction of everyone except myself. I prefer to go with the low bang of LDN rather than the big bank of some of these steroidal drugs. I can only assume LDN is holding on to my MS, preventing it from progressing quite as quickly as I would otherwise normally experience, without the essential side effects, and restart.

Linda: Have you noticed any improvement at all, or have you just remained the same?

Chris: It’s clear the MS is not going to go away, but there is no remedy that cures this problem. My life has been modified not only in terms of the drug and the condition, but also in terms of my workload and work-life balance, and all the rest of it. So I keep taking LDN and assuming that it’s kind of holding on to where I was 2-3 years ago.

Linda: Have you noticed any improvement in your bladder or fatigue or anything? Is there anything that you’ve noticed is better?

Chris: The answer is no. I still have the fatigue and difficult bladder control, and all this sort of stuff, and other essential part of MS. But I’ve never seen LDN as a cure, rather as a means of holding on to my condition at the point at which I first started taking it, and slowing its progression.

Linda: Most people when they start taking it their bladder starts to improve and the fatigue isn’t quite as bad. Have you noticed any improvement in any of these symptoms?

Chris: I remember quite well the chapter in the book that said that somebody had said well, LDN isn’t working so I’ll stop taking it, and their account of that is that within three days or so, they were all over the place and they went back on the LDN and realized that LDN was in fact helping them. So, I don’t want to go down that route. I keep taking LDN.

Linda: So your symptoms are exactly as they were when you started LDN?

Chris: I don’t see that there’s been any great improvement.

Linda: Not even slight improvement?

Chris: I can’t say it’s improved, but that it has held on to it. Maybe there was slight improvement when I first started taking it for sure, but since then it’s kind of held on to the way it is.

Linda: Well, thank you very much for sharing your story with us Chris, I really do appreciate it.

Chris - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I'd like to welcome Chris from England and Chris has multiple sclerosis. Welcome Chris

Chris: Good evening.

Linda Elsegood: Could you tell us your story?

Chris: Uh, well, yeah, I mean, um, in back in 2002, I got diagnosed with multiple sclerosis. Um, after several years of going to the doctors and the Dr. Carney was stress, stress, stress.

Well, I had all these weird and wonderful things happening to me. One of them was, I was walking around. Super bummed balances  I felt drunk, really. And after being in the licensed trade for 25 years, that really wasn't a very good image, Didn't understand what was going on. And it wasn't until I moved out of London  And was taken into hospital when it was stay. Now  I'll go onto the road to actually discover what was the matter with me. Okay.

Linda Elsegood: When you say we'll deal with other than the staggering, what were your symptoms at that time?

Chris: Well, the first symptoms that I had were, Hey, I'm tingling at the end of the book fingers.

And obviously what I've already said, who can only see forward. Drunk really suddenly walk in the side and banging on the wall, uh, old-style or eight, um, pumps my bladder one minute or I didn’t want to go to the toilet and the next minute it was like switching a light on. I know, I know absolutely fasting. Yeah, no, it was another season.

So, you know, wasting between the sounds and what's going on here, you know? And, um, that's, that's the first symptoms that like go right.

Linda Elsegood: What happened later on?

Chris: Well, I mean, I didn't realize this at the time, and it wasn't until I turned on

I think they call it a cognitive thing. Kamia Oh, I actually tried. Oh, I'd call it to focus. So I was unable to concentrate on being a businessman. It was quite difficult, really either. I couldn't really concentrate on things and my reasoning sort of went out the window. Really. In fact, I might call you back to see you.

At one of the worst are people, is that I transferred all my assets over to my wife nine, um, bought house cash in the Knoll, cocking her nine, and then she decided that she didn't want to be married to someone who's here anymore. We got divorced. Um, that was quite a bank cause she's also was making the right decision at the time because I.

Well thinking strike really? Um, connectedness.

Linda Elsegood: How old were you when you were first diagnosed?

Chris: Um, with respect to 2002. So that, I mean,  9years ago he said that's I was 41 Right. A young man. Yes. Oh, I'll just do like a young man.

Linda Elsegood: Of course you are. You're younger than me. So what happened

Chris: Well, I mean, obviously I was going through, I think what lots of people do when they get a new with slight multiple sclerosis they do all the research on the internet, see all these weird and wonderful, wonderful cures. We can cure this and cure that and, um, just grasping at straws for it. And I, I sort of got a little bit disillusioned with the NHS who put me on, I was on steroids, which I really didn't like, no one told me what steroids would do to me. And actually, turn me into a bit of a mean person.

Also, the very nice person really turned into someone who was having the weight of it, um, and also was on, um, I think it's really best, which is interferon three to one. I, and always kept to myself three times a week for three years. And I kept saying to my consultant, no. No, I don't think that she's doing me any good, you know, too long, getting worse and worse.

I mean, I was under a lot of stress as well. I've got to be it. Um, but I sort of found out, I heard about LDN quite a number of years ago, and all these apps were read about it. Try to get LDN through my own GP. And she flatly refused to. Um, proceed within, in any way, shape or form to a private doc who I cannot remember.

He's nine. Um, But speaking, I think dial through with it now, just now I want to stick with what I'm doing, and I didn't go through, I think I had so much else going on in my life. There'll be 50 people and the children and pretty well. I've got to a point where I sort of came out of the episode of both. So I've got to accept some stuff and. I then got the volume to be, but the Scarborough, the multiple sclerosis resourcing through culture stuff, and their website have been texting a new man that the information that they've got and their bridge.

So he's colossal really. And what I like about, and you start, they tell you absolutely everything about everything that's on the market, you know? But they don't, they don't fight for anything, and they don't leave anything out to the person. And he said you should not. So then LDN comes back into my head, and then I start looking at what they were saying about OTA.

I obviously then saw the LDN research trust on there. I'm got in touch with you. you gave information about a doctor that would, um, speak to me then privately. I spoke to that doctor at my consultation, and I've now been taking LDN for a third of $233 today because I'll keep a diary. Right.

Linda Elsegood: Okay. So what have you found out with NHS?

Chris: Well, it's quite striking to me because I have to start all the research that I did about LDN. Um, Eight eight. I went off to start taking it. I was looking at me as this one, the drug. Yeah. And I was how he, it was going to be doing all these wonderful things for me and writing things that were wrong with me.

Um, but LDN for me is quite a subtle drug. And one of the first things that I notice that improved with, well, go ahead. We're more or less. So I got better. Most of my cognitive thinking and my concentration values got better. Yeah. I'm not as balanced as in. I have to be honest, hasn't actually improved that much.

Um, but I have had a situation where we've got our wires crossed, and I had her. I had a period of time I didn't take LDN, because I didn't get my prescription and I did actually nine to how much LDA is done for me, because also now these things coming back and my eyesight got worse. And as soon as I went back on the LDA, things started to get come right again, you know, I mean, LDA is not the only thing that I've done in my life to combat in it.

Positive thinking I exercise regularly, but there's regular stretching and also change diet considerably like, um, a natural one. I’m winning the battle if you say..

Linda Elsegood: Did you notice any initial side effects when you started?

Chris: No, it didn't have any side effects. No, no worries.

Linda Elsegood: So how is your fatigue now, Chris?

Chris: Well, since I've been taking LDN, uh, the fatigue has been barrable really.

I mean, I'll still get it from time to time, but all actually that's more of a. Food issue more than the multiple sclerosis where before it was all used to describe it, let's say fought in the cold in us, spider's web and the more full against people, more than twined I've got until you act to just give up, you know, you actually give up, but no action felt like that anymore.

And I like to think when I like when I do get fatigued. It's more actual. Thirty shirts more than the EMS while I can ELT. And yes,

Linda Elsegood: What foods have you found make you feel fatigue ?

Chris:  Well not, no, it's not so much the food that makes me

Feel fatigue this new food intake or insulate sort of block or four, maybe five times a day. I like to eat smaller meals, more regular. Like if work workload is. As such the loyal back to miss a snack or something, or that auto painted to the house and I'll get tired. Right. Cause I'll miss that out. Move a food issue, not putting some petrol in my body to take the DMS, you know?

Linda Elsegood: So would you continue taking LDN?

Chris: Absolutely. We got that. Absolutely. And what

Linda Elsegood: would you say to other people that we're thinking of trying out the LDN,

Chris: I'll have recommended it to people. I had a friend who had mine. Yes. I know. Recommended it today.

Uh, we don't have a lot local contact.

Um, and you know, I would recommend it to anybody. And I think, I think I've been uptown or talked to about it. Who initially said now, she's actually become to say my progress because I need the Mondo. What did you actually see him the next day? I've seen him a year ago,

looked at me, looked at his pipe.

Linda Elsegood: when you've got the progressive disease it’s great to actually get: it's still such a big deal. Isn't it. To actually stop progressing.

Chris: We've had that. I mean, you need to before. I mean, I, to have a lot of stress with people and stuff like that, but before I started taking it with LDN, I appeared at the time there all wasn't getting out a big bloke.

Yeah. Now on. Yeah, I'm not saying that I could run a marathon, but I'm walking, and I'm late in the next life. You know, I've discovered cycling, and I use it as my form of walking my children. Now, this is me from the marriage. They all have migrated over to me, and I cope with that as well. And I'm good and all sound always up because of that.

No boys crossed. I actually stopped taking them. Nope, not because I wanted to, but just the fact that I didn't have the medication and I think now it's a different,

Linda Elsegood: well, thank you very much for sharing your story with us, Chris. And may your success Continue

Chris: Thanks to you.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Cheryl - US: Lyme Disease (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Cheryl from the United States takes LDN for Lyme disease and Co infections.

Her story  goes back into childhood. She had always struggled with some sort of illnesses. Gastrointestinal issues,  stomach virus, rashes on her face, etc

In her teens she developed depression and anxiety and later pain.

When she was 21, her dog got very ill and she noticed she had a four to five inches in diameter round bite that  looked like a Brown recluse bite. She was having palpitations and strange symptoms.  That bite stayed for about two to three months on her body and it had a little centre point.

They diagnosed her with fibromyalgia in 1994 because she felt like she had the flu all the time. And it just never went away. She was vomiting all the time, she had to leave school in 1995 and declared total and permanent disability. Then she slept all day and night, was freezing all the time, and nobody paid any attention. And at that time, Fibromyalgia  meant "It was all in your head." In 1996 a  specialist put her on Ambien and Flexeril.

She went into remission after started seeing his current husband from 1996 to 2000 until her children were born.

She started to get all sorts of symptoms,  restless legs and vomiting.

She had twins and just slept one hour each night and by the time they were eight months old, her body was just in terrible pain, her gallbladder had gotten to the size of the liver. She got a two hour surgery.

The months following, she ended up trying Methadone, Oxycontin and all sorts of pain meds. She was freezing, had chills and sweats, had a lot of allergic reactions and scratched all the time, couldn't walk and visibly see swelling in her feet. So by late 2009, she was unable to leave her house, became housebound and couldn't wear shoes.

She would wear earplugs because she was so sensitive to sound and light. Everything had to be covered on windows. She was not eating most of the time and still was vomiting.

Later on she went to a clinic and they told her she had been exposed to Borrelia. She received treatment with herbs and after 3 months was able to at least get out of the house in a wheelchair.

She came off opiates because she had Sjogren's syndrome.  Eyes and mouth were extremely dry and so she started a huge elimination diet. She started  on very low doses of LDN she learnt about LDN through a naturopath.

She started at 0.1 milligram, and  was going to bed at 4:30 AM. So she started taking it at 4.30Am and her schedule readjusted. Now she takes LDN at around midnight. She tried to up the dose but because she is very sensitive to medications, It took 4 months to see any results.

 "I tell people don't quit just because you don't see results right away, my body's been sick my whole life,  so it's not going to turn around in five seconds.

But by three months or four months after starting LDN, I noticed that I really didn't need a coat.

I went out one day to bike, and I wear a normal shirt without not sweating and do not have chills. I was able to come off medications like Neurotin and Flexeril.  By 9 months I could bend and clean.

Before I couldn't even pull my back leg up to 90-degree position I couldn't walk down my stairs.

I think my quality of life is probably about an eight or nine now and some days it's actually 10. I have completed a course successfully at Oregon state university after not being able to go to school for years.

And I do pottery, I am a personal advocate now in Portland for a group.

And so I would say that my quality of life is quite good because I get to talk to my children and I get to eat food, and I get to walk up and down my stairs, and I get to sleep.

I'm not saying it's perfect. But I consider level three pain or level two pain to be really good."

Celia - Ireland: Parkinson's (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Celia from Ireland takes Low Dose Naltrexone (LDN) for Parkinson's disease.

Summary

In 2003 I had a bit of a shake in my right arm but the doctor said  it was not enough to worry about. Then two years went by, and it was obviously getting a bit worse and I was diagnosed with Parkinson's.

I started taking Mirapex and later Parkinson's had progressed, and I was beginning to find it very difficult balance-wise and was not confident about walking but I never stopped working.

I actually got an MBA last year for services to build a heritage of Northern Ireland because I'm trying to restore and regenerate our modern village, which I live in and which my family built-in 1835.

I never had a problem with driving so I've always been independent in that way, but sort of getting in and out of the car wasn't the easiest sometimes.

I heard about LDN through my cousin, went to a consultant and he did prescribe it to me.

I didn't notice an immediate relief but then I realized that I wasn't worried about walking anymore

neither shaking. I've straightened up a bit, not completely straight yet. I just feel so much better.

I had put on quite a lot of weight because I wasn't able to walk very much at all and that's all coming off now, so that's good.

I found it extremely difficult trying to write and now I can write perfectly normally again. I do use computers a lot, and I find that was quite an effort, but now it's absolutely fine.

Before LDN I would score my quality of life with a 5 out of 10 and now I would say 9.5.

Please listen to the video for the full story.

Cathy - US: Fibromyalgia (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Kathy from the United States, and Kathy takes LDN for fibromyalgia.

She felt something was wrong was in 1998 she started to feel as she had the flu.

After being diagnosed with fibromyalgia she was somewhat shell shocked, she was a single mother who owned a business and very active in my community, and she came from a family that did not do illness well, and didn't know what to do next.

She was on a lot of medication which they did help, but the side effects were not something she can live with.

Finally she tried all the natural holistic approaches. But nothing really helped her.

Somewhere around 2013, a friend told her about Low dose Naltrexone (LDN)

Before LDN her quality of life she was a 6 out of 10, 10 being the best. After LDN it was an 8 or 9.

To listen to the full very inspirational story click the video link.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. 

Cathy - England: Tumefactive Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda Elsegood: I'd like to introduce Kathy from England who takes LDN for TMS, which is tumefactive multiple sclerosis. Thank you for joining me, Kathy.

Cathy: Thank you.

Linda Elsegood: Could you tell us a bit about tumefactive multiple sclerosis.

Cathy: Um, yeah, sure. It's quite a rare form of multiple sclerosis. I was only diagnosed with it, um, in 2012 December, um, by my neurologist.

Um, he actually took a look at my scans and with my medical history said that you've got tumefactive multiple sclerosis. He said you haven't got an SP, which I thought I had or relapsing and remitting. Um, so he, um, I have to go back really to 1990 when I had a stroke. Um, it was classed as a stroke, and I was ill for five years, and my daughters were only 18 months and eight years old at the time.

I was blind for two months, and all the left side was affected. And, um, I couldn't talk, but, well, I could talk, but no one could understand me. it was almost like being in a bubble for five years. And then, um, I don't remember any of it at all. And then after five years, I gradually, um, came out of it.

And I learned, I learned to, um, I learned to, um, sorry. Um, I learned to, um, read and write again and, um, to do everything really. I went to, um, an access course to, to learn, and learn again. Um, and I only did six months of that cause I did what I wanted to do, which was learn to learn. And then did a basic counselling course.

And then, um, went to, um, college, and I went and worked at, um, Harefield Hospital as a healthcare assistant nights. And then while I was there, I did my NVQ level three. And then, um, I did my nurse training. I was the conduit. I was one of Blair's babies. And did my, um, envy, uh, did my nurse training in 2003.

 I qualified 2007 to be a nurse at Hartford hospital or my first staff nurse post. And then in 2008, I had what we thought was another stroke. Um, and my left side was all affected again. Um, and I was like having bad trouble with the perception of heat, hot and cold, the hot-cold was painful and hot was like lukewarm.

Um, and that caused quite a few problems, but anyway, went to the hospital. They said it was viral neuropathy. Um, and sent me to my doctors the next day. They said I did. They didn't think I'd had another stroke. Cause I had some tests for that. And then when I went to my GP, he sent me to the neurologist and the neurologist said, I think you've had another stroke.

So he said, why you're having strokes at this age? I don't know. Cause the first one is 36. And now I'm, I think I was about 46 or something then. Um, and then, um, he says we do all the tests, and I had done cardio, bobbin, bubbled grams, and all sorts of things. And they all came back negative. He says you haven't had a stroke until now.

He said, we will send you for the last one, which is a lumber country in Charing cross hospital. Um, and that I told them that I had actually had multiple sclerosis. Um, so he then started giving me the treatment for multiple well, um, tablets to help with the symptoms of multiple sclerosis. Um, and he said that I've got relapsing and remitting, and that's why I'm fully recovered.

And that the, um, stroke in 1990 was obviously an MS episode and not a stroke. So that made sense really. In 2008  I was off work for six months, and I went back on a stage return. And as soon as I told them in March, but I've got multiple sclerosis. I was, um, sat for my position in, um, 2009, um, August.

And since then, I've, uh, 2010. I've been on benefits ever since then. Um, I'm am I able to work. I went right downhill. When, when they sat me. Um, because of the actual, um, minor, you, as you said, it was because of the stress from all that, that made me actual actually deteriorate so fast. And I went from sort of like walking, like doing seven, 17,000 steps on my pedometer a day and down to do, I couldn't even get off the chair.

Do you know what I mean? I was really, um, quite ill. Um, and, um, my, um, memory was very bad. Um, and, um, I, um, I've had, uh, suffer from short term memory loss. Um, and, um, so that sort of made things quite difficult. I couldn't go out on my own because, um, I wouldn't remember where I was and things like that. So I had to have somebody with me the whole time I still do, but I'm so much better since I started on LDN.

Um, I went to, um, my, um, neurologist. He was a general one for, um, a few years. And then when he came to an end, he said Now that you've now got secondary progressive. MS You said, so we can't do anything for you now I'd like you to introduce you to another neurologist.

Who's an MS specialist. He said because I can't think of anything else to give you to help. So I said, okay. I went to a urologist called dr. Malik, can we call him magic Malik? Um, uh, in the MS. Society, you know, and everything because he's fantastic. And he just, as I said, looked at my scans and my medical history and said you are relapsing, remitting, all SP.

Secondary progressive disease you've got TMS, which is a totally different thing you said. So he said, we can actually treat you now actively treat you. And he said, we can give you DMDs, which are disease-modifying drugs, but I didn't want to go on that route because I'd heard so many things about women it's injecting every day.

I wasn't too keen on doing that. Um, and I said, well, um, I've actually heard from another friend who's on this LDN. Have you heard of that? So, yes, you still, I've got quite a few of my patients on LDN. You said, did you want to try that? I suggest I do. So he wrote me a prescription for it. Um, and I started taking LDN in April of this year, and well, I just couldn't believe it.

The second day I felt the benefit from it. I felt, um, all my brain fog lifted. Um, I thought clearly I could finish sentences. I couldn't even finish a sentence. My husband always. I was used to finishing the ending for me. Cause I couldn't remember what I was saying. Um, so I'm able to do that now. Um, I'm able to, um, um, uh, do things that like I hadn't been able to do for ages.

Like, um, I'm still limited to the time that I'm standing up, but I have to sit down. Um, but, um, before that I just, I couldn't stand up and do anything. I just help. I need help to get up out of the chair and get into my wheelchair. I don't use the wheelchair. It sits out there, and I keep looking at it and thinking why don't I need to use you.

So I'll wait until I have to before I sit in and sit on you again. Um, and um, I use a stick to walk with and, um, I use the car as an electric wheelchair really? Cause I get it, just get dropped where we're going. And I walked from where We're going into wherever we're going. But the best thing about it is that I can actually chat away to people now, whereas before I would just say something and then forget what we're talking about and move onto something else, you know?

So it's been a, an amazing, um, drug for me. And I, and I am an advocate for it. And I keep on telling all my people What I'm on, what different sites I'm always advertising LDN and telling them how it's helped me. And I'm sure it could help you, you know, especially because they've all got MS. Most of the people that I talked to, you know,

Linda Elsegood: When did you first, did you have an interested in psychotics?

Cathy: I used to have, um, some fantastic dreams. Um, and they weren't horrible at all. I, in fact, I quite miss them. Um, I used to have like really vivid dreams as if, um, the colour was like fabulous. It was like unbelievable. And, um, anything to do with like flowers or if there was anything to do with colour in there, it would be really vivid.

And you can remember the dream. I can't remember the last time I could remember a dream, you know, uh, but now I can remember them. Um, I haven't really had, um, that only lasted for a few, probably a few months if that, but they've, they've all gone now. I don't have any, any sort of side effects that I can think of.

Linda Elsegood: Thank you very much.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.