LDN Video Interviews and Presentations

Aletha - US: Psoriasis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Aletha from the United States was diagnosed with Psoriasis at the age of 14/15. She experienced this on her head and sometimes as far down as the back of her neck.

She was prescribed liquid form Low Dose Naltrexone (LDN), and tried it for three months, yet it did not provide any form of benefit at all. Upon telling her GP, Aletha was prescribed the pill form of LDN, and once again, tried it for a further three months. This time the medication worked. Aletha had realised she had not been itching her scalp and, in fact, the psoriasis had gone. She made it very obvious that she recommends LDN to those she feels could benefit from it.

This is a summary of the interview or the whole interview, watch the video.

Alan - England: Multiple Sclerosis; MS (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda: I would like to introduce Alan from England. Alan has multiple sclerosis.

Alan: Hello. Could you tell us when you first started getting ms symptoms?

Alan: Probably in my early twenties. The best part of 40 years ago. I used to get terrible headaches and tingling in my hands, and, the medical people put it down to migraines and growing pains and that sort of thing. And then they would disappear for years.

I'd get a bad headache, and I'm tingling in my hand now and again but nothing really bad. Nothing that I couldn't cope with. 

I was a young fit man and then back in the early eighties, they came back again. 

The same sort of symptoms came back, but more so, I went to the doctor.  He put me in for an MRI scan but he sort of diagnosed all that symptoms through the stress of my job because I had a massive job that was million times tiring man targets people working for me, travelling all over the country. 

Massive stress job. 

And so I changed my job and all my symptoms disappeared, so I never went back for the results of my MRI scan. 

Probably in 1988, the symptoms came back again.

And so I went back to the doctor and, he said: "Well, I'll send you for another MRI scan but you never came back for your previous scan results ten years earlier", to which I replied: "Well, the symptoms disappeared, so I wasn't really interested. And then he said: " Well, we had a doctor's dilemma that we couldn't tell you, because you didn't come back.

but we suspected you have Multiple Sclerosis at that time. 

 I was really pleased he didn't tell me because I'd had ten years of symptom-free, changed my job, moved house, did all sorts of things, without any worries that I might be able to have later on in my life. 

But when the symptoms all came back again, then they did an MRI again and told me that they were definitely a hundred per cent certain that it was ms.

And, I was totally devastated. I would say I was in the early fifties, pretty fit, playing great tennis, golf nearly every other day. I'm having a great life and all of a sudden they were telling me that in a couple of years I was going to be in a wheelchair. It was some pretty hard time.

Linda: So what were your symptoms at that time?

Alan: Well, my left leg used to get really heavy. If I was doing active things such as playing tennis, I'm like to play one set, and when I play the second set, and if I want it, that was fine. If I lost it, then I'd have to play the third set and I just couldn't run around because it felt as I just had a ball and chain instructed my leg.

So, I was losing the third set, and that was when I went back to the doctor and,  said: "Look, there's definitely something wrong with me, and I want to know what it is." So he told me about the previous MRI scan. 

And then we went from there to see a consultant and a final diagnosis.

Linda: And then what happens further down the road? 

Alan: Well, I got really depressed, terrible. I even attempted suicide and everything. I was succumbing in a terrible state and then all of a sudden I couldn't play tennis, I couldn't play golf. I couldn't go walking in the hills. I couldn't. I couldn't do anything that I used to do before.

I just got myself in a terrible state. I got really down. And then all of a sudden the guy that I was friendly with said:" Well, would you come to play bowls? And I said:" Bowls skim for old men". And he said: "I put his arm around me and said, Alan, you Bleep, bleep, bleep, cripple. And I looked at him and said, do you know what?

You're right. I can't do the things I want to. I'm a semi cripple. Why don't I go and play bowls? And it was like a new lease of life for me. I started playing bowls more than I used to play tennis and golf and things like that and got pretty good at it. Represented England in the Paralympics and, won a silver medal, Linda.

Linda: Oh, wow. 

Alan: Well, bowls saved my life. So, yeah and over the years I've had to manage my MS, until I heard about LDN and, that was just four, five or six years ago. And, I started taking LDN five or six years ago from Bob Lawrence and Swanzey, and I've been on ever since. And, my symptoms have not progressed hardly at all since in five or six years.

I'm virtually no worse now than I was probably six years ago before I started taking it.

Linda: You said you were secondary progressive. Is that right? 

Alan: I was secondary progressive. I was just gradually going down, down, down, and then It's just stopped. I'll go to the oxygen chambers every week and things like this, but,  that didn't really do, it made me feel better, but it didn't really progression.

LDN seems to have stopped it in its tracks.

Linda: Did you have any side effects when you first started?

Alan: Nothing. Absolutely nothing. Within a week of taking it, all the symptoms that I had, was tiredness especially. If I played bowls, I would play in the afternoon.

I'd come home and go to bed and not do anything else for the rest of the day. But that was fine. I could manage that. That's not a problem. Sometimes I would play twice a day, and I'm five years older, and I'm doing a lot more. So I'm like,I will put it all toward him.

Linda: So what else is LDN done to help you? 

Alan: I used to be sore in my muscle all the time, but you learn to live for that, and you don't sort of taking too much of it.

But no, unless I've done an awful lot of like stay, for instance, I drove most of the way now tonight. My leg will be really sore because I'd been sitting around in a car all day and I've done a lot so I take a sleeping pill and, rub some stuff in the leg and things like by tomorrow I'll be back to normal again. The tiredness is the main thing, the pain is another thing. I used to get up three or four times to go to the loo. It may be once or twice now, maybe.

The only thing that I find that affects me is alcohol. Whether that's because of the LDN or ms, I can't drink anything  I used to drink when I was ten years younger. But can anyone of us?

Linda: I don't know. I'm not there yet.

Alan: I can't drink.  Drinking affects my walking and nothing seems to stop that at all. So, I don't drink much at all unless I'm just going from my back patio to the bed and then I might. 

But most of my symptoms are all improved when I started taking LDN.

Linda: Good. So what would you say to other people who have been given that diagnosis of being labelled with multiple sclerosis and they are thinking about the LDN?

Alan: Well, first of all, I would say to anybody that has been diagnosed. It's not the end of the world.

There are certainly lots of worse things you can get it. I'm not saying it's a nice disease, but on the other hand, there's certainly lots worse ones around. And I think a lot of ms is about how well you treat it and your state of mind, etc. So many people say:

how's LDN going to affect my other medicine?" I have no idea but why don't you try it and see what it's like?  My doctor doesn't say I can take it. So, I'm not going to take it. I said:" Fine".  "You know, probably my doctor said, you don't know what it's doing to you in 10 years time"

and I said, will you guarantee I'll be here in ten years?

I say to anybody who's thinking of taking it, try it and see. If it doesn't do you any good, don't take it. But if it does, keep on taking it. So, I'm a big believer that you should try anything that might help you and if it doesn't work, okay.

So you've paid some money, and it cost you some time and effort, I understand but it may have you some good.

Linda: Okay. Well, thank you very much Alan. Any questions or comments you may have. Please email me. I look forward to hearing from you. Thank you for joining us today. We really appreciate it, your company. Until next time, stay safe and keep well.

Adrienne - England: Multiple Sclerosis; MS (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Linda: I'd like to introduce Adrienne who has multiple sclerosis and is from England. Welcome, Adrienne. 

Adrienne: Good morning.

Linda: Thank you. I can still remember meeting you. 

Adrienne: Yeah, 

Linda: it was awesome. So when were you diagnosed with MS? 

Adrienne: About 1977, age 27

Linda: A long time ago. How old were you, and how did the diagnosis affect you? 

Adrienne: Well, yeah, I think it's because. I mess up the many talked about and um, it was sort of like a bolt out of the blue, going to see the specialist. You've got MS background. I can’t say 100%. You got it. But 99%, go for lumbar puncture. Yeah. I ended up getting lumbar puncture, which is very painful and it didn’t do anything different. So. It's a bit of a waste of time. 

Linda: And what were your symptoms at that time? 

Adrienne: I was just tripping up, kept tripping over, you know, and I was walking and really the pins and needles in my legs really, slight blurring of vision. So that was when I was 27. Because you've got children, you've got to keep going. 

Linda: Yeah.

So what happened in the years in between finding LDN? 

Adrienne: It just gradually got worse and worse. My brother was 16 months older than me. He died about 5 years ago at age 52. So I was watching him decline and knowing that I was going to decline. Thanks, I didn’t decline.  Hyperbaric treatment. And the LDN

So the LDN has been a most positive contribution to the alleviation. Stop the spasming.  It makes me less likely to fall asleep during the day.  I'm the help to my feet to think more mentally acute has continued.  My feet...

Linda: When? When did you start taking LDN? 

Adrienne: I think 5 or 6 years ago.

Linda: and were you able to get it from your own GP or did you have to get a private prescription? I have a very understanding physician GP who agreed to cannabis also. He said that he might knock sometimes. That kind of bespoke. Yes. Come up with. I forgot his name, but his mom and I had a, um, acquaintance that day, hyperbaric oxygen treatment.

All, so I looked into the information sent by you. He agreed to let me have a go at it.

Linda:  what did you find it did for you initially? Did you have any side effects?

Adrienne: Slight sleep disturbance. Nowadays still happens, but quite mildly. So now, that's fine.  

Linda: How would you sum up what LDN has done for you? 

Adrienne: Well, I'll be honest, give me a, apart from the vaccines, the problems back then didn't get worse and worse. It makes me feel as though I'm contributing a little bit until improving in inverted commerce—my condition. I talk to the undesirable side effects, lethargy, the mental fogginess because all these, medications suggested I've tried by myself, has made possible to have to tell them how it was espousing, tended to send me doo lally

And that wasn't probably in control of my mental capacity. No, that's a horrible feeling. 

Linda: That's a horrible feeling when you don't feel in control mentally, isn't it? 

Adrienne: Because you, you're aware of it. You're aware. Worried about things, stupid things. 

Linda: Oh, I know. 

Adrienne: That has helped you to seem able to go to act without the horrible side effects of the other medication. 

Linda: Yeah. What would you say to other people who have MS who are contemplating trying LDN?

Adrienne: I recommend it, but I must say that being that once or twice I have recommended it, the person than to cross BMI. Yeah. You have nothing to lose by trying it.

Honestly, him today, it works, yeah. Yeah. I would recommend it.  You know, Each person must work out their own, know what's best for them, their own salvation. 

Linda: Well, thank you very much for sharing your story with us. 

Adrienne: Okay. Thank you so much for all the help and assistance you’ve given me over the last five years.

Adriana - US: Autism (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

This evening I'm joined by Adriana. She's from the United States. Thank you for joining us, Adriana. Could you tell us your story, please?

Adriana: Yes, sure. I have triplets, they will be seven years old on September 30th. Then I noticed the boys when you're around a year and a half, two years old, they were not talking.

They start having kind of autistic behaviours for walking, flapping and to not fall the direction pretty good. That kind of scared me. I have a daughter. She's eight years old, and she developed totally normal with no problems. But with the boys, me and my husband and started to note that something was not quite right.

Then the boys had always dry skin and red pimples growing around their checks and they didn't have normal regular bowel movements. Were like kind of diarrhoea almost every day. They were very skinny and very hard to gain some weight.

The boys were pale colour. They were not looking healthy at all. Then we found this neuro paediatrician in California that, asked us for a lot of blood work. His name is Dr. Michael Goldberg and he's well known in California for treating kids with ADHD, kids that have autism. My boys were from the local paediatrician here, and I live in Idaho Falls. They said the boys are autistic, not too much hope for the future, probably boys would need the iPads with pictures to communicate and we don't see the boys talking never because they're already almost four years old and they were still not talking.

Then we met Dr. Goldberg. We had the blood work done and Dr. Goldberg said: "Look, we're going to do this test  to make sure it's not in your family."  I don't have any kids and my family, all my husband's side family that has autism or mental retardation was something that was all new for us.

And dr. Bill Bruce said: " I'm pretty sure that on the blood work is going to come with the HSV-1 herpes virus very sky-high and the GI inflammation and all the immune system.  And then we identified the boys in the antifungals, antivirus and diets. Then we're going to see if the boys start responding to that.

After about 14 months on Dr. Golder's protocol, the boys start having regular bowel movements, not kind of worry diarrhoea, like before, their skin started getting much better, all that red pimples were gone and then the boys start talking. The boys started with open words, then little sentence and then start building up more sentences.

Then the boys start fading, all that flatting to walking all that autistic symptoms start fading away. And the doctor said: "90% of the kids I'm doing this for 30 years and 99% of the kids that have born classic autistic, the kid says the  HSV-1 herpes virus is sky-high and  GI is like mess with  a lot of inflammation and we need to treat with the antifungals and antivirus and diets."

It's when these kids started having the brain working properly again. The frontal lobe which is the part that's responsible for speech and behaviours is where the virus and the inflammation from the GI shut the doors for speech and behaviours.

We follow Dr. Wellbutrin and I would say 80% of the boys recovered from all the symptoms. My third boy is fully recovered. He is talking, he doesn't have any autistic symptoms anymore. The other two has a little bit more to recover. About six months ago I found about LDN, and I saw some specifical video that say LDN story on a YouTube and in a doctor from Florida was talking about the benefits of LDN for autistic kids. I would say not autistic but kids that have autistic symptoms because it's treatable. I was watching the video and that caught my attention, the benefits of LDN.

And I talked with all the parents too, that was already using LDN and seeing some friends that I have in California, that we're seeing good results with the kids, 3.5 mg dosage for LDN. They get the prescription with their local paediatrician. I talked to my local paediatrician, and she was already working with patients that have cancer and kids with ADHD problems and kids that are very, very hyper or kids that have melted stick symptoms and then was very successful. She asked me if I would like to try it. I said, yes and my boys started with 1 mg.

We build up all the way to 3. The boys right now are taking 3.5 mg every night 8:30 PM, half an hour before bedtime. What I saw after LDN the very quality of sleep. They used to sleep good nights but sometimes waking up in the middle of the night.

Now they can sleep straight the full night with quality sleep because I can tell in the morning you don't have the dark circles anymore. Dr Michael Goldberg, the one that treats my boys in California say the dark circles around the eyes is a big red flag for food allergies.

I learned with LDN that helps with dampen the system because my boys don't have the dark circles anymore around their eyes. There's sleeping pretty good. The eye contact is really good. I saw in the very next day, the boys took LDN in one night and then the next day in the morning, I saw all three with the very, very good brighten fall to look at following directions really good. And then all of the therapists that work with the boys at school or occupational therapy or a speech therapist said, the boys seem really bright and alert. One of my boys was like very hyper and then he seems a way calmer. Another thing that I notice his speech longer.  They're talking in a long clear sentence. Before the LDN, one of my boys, if he wanted a banana, he just would look at me, " Mama banana, please." Now he can say, "Mama, can I have my banana, please?" More clear in a long full sentence. After LDN, instead of just saying water, now he can say, "Mom, can I have water, please?" or Can I have my food, please?" And before he would just say food or I want food, a very short sentence. Now I notice it helps with the speech because they are talking longer sentences in more clear and add new words to that I never saw them talking before.  I'm going to give an example. The other day he asked me for a specific food that he cannot eat and I said, No, Brian, you can not eat that food." and he looked at me straight, and said, "Why not?" He would never say something like that. He looked straight in my eyes and said: "Why not mommy?"

And then I explained it. Now he's coming the why not and the more questions like Can I get my iPad, please?" And using better in longer sentences. And I note his speech is taking off pretty good. That's the LDN and they look healthier. One thing that caught really, really my attention is,  the last blood work before LDN HHV6 was 1.60 and after four to five months on LDN, the HHV6 drop dramatically for 1.04 and Dr. said, that was a huge difference only in three or four months.

Now they called the HHV6 IgG blood test is normal. They are at a normal level now is not sky high anymore. So that caught my attention too. If LDN is helping to drop the high numbers I think LDN works for the entire immune system.

I believe so. And the blood works is showing much better with everything and with the CD4, CD8 cells and everything. Any case cells at a good level too. So I really believe that LDN is really helping the boys and showing they're sleeping better.

The skin is nice and soft, and they look healthier. I'm really happy with the results.

Linda Elsegood: Well, what an amazing story! Thank you very much for sharing it with us.

Adriana: You have a great day.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Adam - US: Multiple Sclerosis(LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Adam: Hi, Linda. 

Linda: Could you tell us when you first started to notice MS symptoms? 

Adam: Well, I was actually diagnosed in January of 2007. I had a lot of symptoms that were unknown for years, prior to that, prior, before 2000.

Linda: Well, what were your symptoms at the time of diagnosis. 

Adam: Well, I had a, a massive migraine kind of headache at the base of my skull. I had long-lasting carpal tunnel symptoms through my arms running up to my shoulders. I had a loss of feeling within my arms, excessive loss of balance, loss of muscle.

There was a kind of tight, extreme fatigue for years, sometimes paralysis when I'd wake up in the morning. Excessive sweating, twitching and bladder and bowel control.  

Linda: so what medication were you offered at that time? 

Adam: Copaxone daily injections. 

Linda: And how old were you then, Adam? 

Adam: 34 

Linda: How did it impact on your life being diagnosed with MS?

Adam: Pardon me? 

Linda: Having the label, MS. 

Adam: Actually, it wasn't bad. The diagnosis was okay. It gave a reason for what was wrong. I didn't think I was crazy at that time. I think a lot of times, being misdiagnosed for, for years with so many different things. That was more of an impact on my life.

Linda: and how did you get on with the Copaxone?  

Linda: Right. So I'll, I'll ask you that last question again. How did you find taking the,  How did you get on with taking Copaxone?

Adam: It was a daily injection. It wasn't so bad, doing the injection. For me, it was more of an impact on the financial burden, to my future how I would afford to be on this medication if by chance I lost my job. Concerns like that. 

Linda: How long did you take Copaxone for? Are you still taking it?

Adam: I took it through starting LDN, and I continued to take it probably about six months after. So I would say I was on Copaxone for at least a year and a half.

Linda:  How did you find LDN? 

Adam: My wife emailed me a YouTube video clip. She joined a support group, and someone had blessed her and sent her a, just a short little YouTube video clip, and she forwarded to me  

Linda: easy to get a prescription for LDN?

Adam: For me, it was, I did my research beforehand. I went while prepared for my neurologist who was prescribing me the Copaxone at the time, and I basically laid it out in front of him and demanded that that's what I was going to try next. And I agreed to continue taking Copaxone at that time.

Linda: And was it easy to get the prescription filled at first?

Adam:  Not necessarily because he didn't understand how to write it. He didn't know much about it. I found out more on my end, how to make it myself, which I don't recommend. Um, but then I think within the first month I was able to get him to write a proper way, you know, a proper script for it.

Linda: And when you first started, did you notice any introductory side effects? 

Adam: Zero! My wife said that, that my leg twitched for a couple of or one night. Um, but I don't, I don't think that that was connected.

Linda: And how long did it take for you started to notice improvements?

Adam: Very next morning. 

Linda: What did you notice?

Adam: I went from feeling like I was 85 years old when I would wake up, every day for the last ten years to feeling like I was 15 again. That was the main thing right off the bat. I, I wasn't fatigued. I had a ton of energy, and I couldn't explain why, other than the LDN. 

Linda: Did it help with your other symptoms?

Adam: In time it did. In a very short time, actually, at the time when I started LDN, I had flu-like symptoms that wouldn't go away after two courses of antibiotics. And that flu went away within, I believe, three or four days. A lot of my bladder things like a bladder infection, that went away within two or three days.

Just about everything, all my symptoms that I had with the exception of anything that was permanent, like nerve damage, all of those symptoms went away. 

Linda: If you were to rate your quality of life before LDN on a score of one to 10, what would it have been? 

Adam: Probably about a two.

Linda: And what would you say it is today.

Adam: Probably about an eight. 

Linda: That’s amazing. Isn’t it? that it's very good. It is. What would you say to other people who are contemplating trying LDN? 

Adam: well, if you're contemplating trying LDN, you've already heard about it, which is the first part, and I think that's the most important part. For me, it works.  I'm a strong believer in it.

I tell whoever I can about it. My biggest thing is, you know if you know about it, you should, you should look more into it and don't give up. Just because one doctor says, you know, I don't agree with that because it's maybe not FDA approved in the US or different places like that. Just be persistent and keep trying.  For me, I lucked out, you know?

Linda: so how would you say your life is now? Would you say it's more or less back to normal? 

Adam: I would say it's about 90% back to normal. My biggest benefit, I probably should have said this a couple of minutes ago, but my biggest benefit was I was able to get off of the Copaxone, which is a daily injection. And at that time, when I started at my insurance was paying 2,500 every month. And that fear of, you know, worrying about how I would afford to continue that treatment is away because now I'm able to not rely on daily injections. I don't take them at all. And the LDN costs me $65 like us dollars every three months without insurance.

So it's, it's affordable, and it's, you know, that worry has gone. 

Linda: Did you notice any difference in your health once you stopped taking the Copaxone? 

Adam: When I stopped taking Copaxone? Yes. No, it was, no. 

Adam: Some of the other things that were, you know, leading up to my diagnosis of the ms, you know, those went away after I was diagnosed, but I think with the LDN, I pretty much don't have anything that I really worry about and have any type of symptoms.

Linda: What does your doctor think to improvements since you've been on LDN? 

Adam: he's amazed. However, my doctor, you know, talks a lot and says he'll tell all his patients, but since March of 2008, he hasn't told one person. 

Linda: More importantly, what does your wife think? 

Adam: She's definitely happy and can't believe the change.  We were actually able to conceive.  We had our first son.

Linda:  That’s a blessing. Thank you for sharing your story with us today.

Pharmacist Dr Sam Lebsock - LDN Specialist (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Pharmacist Dr Samantha Lebsock received her Bachelors in Human Biology and Doctorate of Pharmacy from The University of Montana. She began working at Belmar Pharmacy in 2014. She is the Director of Clinical Trials for Belmar Pharma Solutions and the resident LDN specialist. Samantha has become an expert in compounded medication formulations and has become a trusted advisor to providers around the country.

Pharmacist Stephen Dickson - LDN Specialist (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

LDN Specialist Pharmacist Stephen Dickson talks about the need to bring all LDN prescribers and Pharmacists sharing the same information of Low Dose Naltrexone (LDN)

Masoud Rashidi, PharmD discusses LDN and Pain (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Rasoud Rashidi learned about LDN (Low Dose Naltrexone) at one of Linda Elsegood’s LDN Conferences. He has become very knowledgeable in compounding this remarkable drug. He councils doctors on it’s many applications for their patients. He is experienced in LDN and Ultra LDN, which is used to help patients get off the dangerous opioids they take for chronic pain. He recommends a slow increase in micro grams of LDN while reducing and eventually stopping the opioids. LDN increases our naturally produced opioids and relieves the pain. This was a very informative interview.

Review by Ken Bruce

Carrie Forrest, MBA, MPH (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Carrie takes LDN for an autoimmune thyroid disorder/thyroid cancer, PCOS, chronic fatigue, and migraines.

Carrie Forrest is a nutritionist and takes Low Dose Naltrexone (LDN) for a variety of conditions. She had thyroid cancer in 2012 and started taking LDN 6 years ago to help control her antibodies. It also relieves her joint pain and IBS symptoms. She has become an ldnresearchtrust.org volunteer and shares healthy recipes on the LDN news letter. Listen to her story in this interesting 21 minute interview with Linda.

Review Ken Bruce
Listen to the video for the full story.

Katie gives an update on taking LDN for Fibromyalgia, Interstitial Cystitis, GERD, IBS (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Katie from the US gives as an update on taking Low Dose Naltrexone (LDN) for Fibromyalgia, Interstitial Cystitis, GERD, IBS.

Katie suffers multiple autoimmune conditions including Fibromyalgia, which caused pain, extreme fatigue, and foggy brain. She eventually learned about Low Dose Naltrexone (LDN). After experimenting with various doses, she found her sweet spot at around 4 mg. She is excited about her new energy and pain relief. She is thankful to be thinking clearly again!

Review by Ken Bruce