Debra - Lupus - 22nd Nov 2017 (LDN, low dose naltrexone) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.
Debra from the United states takes Low Dose Naltrexone (LDN) for lupus.
I was diagnosed back in 1988. So that's almost 30 years ago. I was in my mid to late twenties and first it was the diagnosis didn't really impact my life, all that much.
I just felt more tired and had in general, a low grade feeling like I was catching some sort of virus, but I was able to continue working.
It just kind of came and went depending on how much I worked and how much stress was in my life, but I was not debilitated. And that went on for about 10 years.
And then things started to gradually degrade. I was struggling to stay working. I would catch every virus that came along and it would degrade into bronchitis pneumonia.
I got H1 N1 and unable to work any longer. And that's been about 15 years ago. Fortunately my husband could support us, but it was quite a traumatic change in my life.
I was an undiagnosed Celiacs person, and that took several years to be finally diagnosed with the help of the Mayo clinic here in Rochester, Minnesota. I was finally diagnosed with that seven years ago.
Prior to LDN, just a year ago, I had about four hours of energy a day. And that meant I had basically one thing I could do that day, whether that was going to meet somebody for lunch.
I'm an equestrian. And if I chose that day to ride my horse, that was the thing I did. So prior to LDN and a year ago that was my life one thing a day.
And I had to be very careful not to schedule too much. In one day I wasn't able to do our house cleaning. For instance, it was too physically strenuous. I wasn't able to do the shopping. My husband did that. That was too physically strenuous. I really had to be very protective of the amount of energy I could expend and save it for the things that really brought me some joy in my life.
And so that's how things progressed over 30 years.Then I was introduced to LDN by my doctor who is a medical doctor. He's an MD with a traditional degree, but he also has continued on to get a functional medicine training and certification here in the United States. And that additional training and education has made the difference for my health and a number of ways.
I tried to start at 1.5 mg of Low Dose Naltrexone and it was just way too much. I had a big lupus flare up. Felt like I got hit by a truck and we had to back it down.
I started at 0.5 and every two weeks we would increase it by 0.5 and it took me several months to let me get to the level of now. My current dose is 4.5 mg and right away I noticed a difference. I noticed an increase in energy and I didn't pay the price.
As I say for that energy, I would be able to exceed my four hours of energy and not have a Lupus flare. As a result, I could have six hours of energy and not be in bed the next day. Then I noticed, I could go all day and not pay the price and have, and be in bed with a lupus flare the next day.
And then I was able to join a fitness club. I haven't done that for 25 years and joined a yoga class. All of which I couldn't do. I had tried to do, and it would just any sort of extra exertion would send me backwards into a lupus flare.
I was now walking 30 minutes a day. I had tried to keep walking. I would get sick and then I'd be in bed for a week and I have to start all over again with the walking and build up slowly.
All those old injuries that Lupus would like to inflame. It just didn't get inflamed anymore.
I'm pretty close to being a normal person. I still have Lupus. But I think you could safely say that it's pretty much in remission. I can live a relatively normal life.
I could work, for five or six hours out in the barn with the horses, I can help around the farm, help my husband build fence, repair fence. I'm back to cleaning my own home and doing my own shopping and making dinners again.
I'm thankful every day. I've learned to live one day at a time.
I'm very thankful that I have the doctor I have. I have organized and facilitate a auto-immune support group here in our local community. And there's a variety of people that attend, people with Ms., with Hashimoto's.
My mother is in her mid to late seventies and has Fibromyalgia in addition to a couple of other disorders, but fibromyalgia has been very debilitating for her. She started LDN. She's no longer living on a heating pad. And just got back from a two and a half week trip to Latvia and Estonia. I see her out gardening in the afternoons when normally she would have hit her limit and been inside on the heating pad.
Summary of Debra's interview. Please listen the full interview.