Living with MCAS and POTS: A Patient's Journey of Struggles and Triumphs - An Interview with Kelly

In this interview, Linda has the pleasure of speaking with Kelly, a guest from the United States who shares her journey of dealing with MCAS and POTS. Kelly discusses how she first noticed that something was wrong with her body when she was a child due to severe GI symptoms, which led to her receiving her first colonoscopy at the age of ten. However, despite years of experiencing worsening symptoms, Kelly did not receive a formal diagnosis until 2019. She describes her frustration and the challenges she faced while seeking answers from various specialists, highlighting the systemic factors within the healthcare system that make it difficult for patients like herself to receive proper care. As a social worker and a patient herself, Kelly provides unique insights into how care for undiagnosed patients could be improved, emphasizing the importance of physicians believing and trusting their patients, providing them with resources, and access to care to help them find accurate diagnoses. Kelly also discusses the complexity of MCAS, a multi-system disorder that can affect various organs and the skin, making it difficult to recognize and diagnose. She shares her experience of how finding a physician who understands the condition was crucial to getting it under control. Overall, Kelly's story sheds light on the challenges of living with an undiagnosed condition and the importance of improving healthcare systems to support these patients. Kelly is taking LDN, Low Dose Naltrexone.