Rusti from the US shares her story of Hailey-Hailey Disease. Rusti first showed symptoms when she was 25 years old but by the time she got to her forties she was bedridden for four months out of the year and couldn't even function.
Rusti found out about Low Dose Naltrexone (LDN) on social media while she was researching Hailey-Hailey disease and eventually found a doctor who prescribed it. At the time of this interview, Rusti had been taking Low Dose Naltrexone for four and a half months. She had no side effects at all and says she is 98% better than she was. Rusti is one of six children and her other siblings also have Hailey-Hailey Disease, she is afraid her children will also suffer from the same and wonders whether LDN could be given to them as a preventative measure.