LDN Video Interviews and Presentations

Jill Brook, MA, LDN Radio Show 12 Dec 2016 (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Jill Brook, MA, is a long-time nutritionist, researcher and autoimmune patient benefiting from LDN.  After earning degrees from Princeton University and UCLA, she worked for both universities and the Pritikin Longevity Center before opening a private practice in Southern California. After experiencing serious health challenges of her own, she now focuses her research and nutrition work on autoimmunity, gut health, SIBO, mast cell activation, gastroparesis, and specialized diets for healing.

In this interview Jill discusses what we should be doing diet wise to help Low Dose Naltrexone (LDN) be more effective in our bodies. 

Topics covered answer the questions: 

“There are so many conflicting diets. What diet should people be following?”

“How would somebody who has never looked at their diet before go about looking to eliminate foods?”

“What about the blood test? Can they help show what foods you should avoid?”

“It's not easy to follow healthy eating. How does willpower come into this? What does the research show?”

“Could artificial sweeteners help get me off sugar?”

“How can I lose weight when I can't exercise?”

“Could digestive issues such as inflammation, leaky, gut, etc cause someone to have low sodium or potassium and vitamins?”

“For a patient with Mast Cell Activation and Autoimmune issues do you have any diet suggestions or inflammation information from your own experience that would help?”

Check out Jill Brook’s LDN Nutrition and Lifestyle page at https://ldnresearchtrust.org/ldn-nutrition-and-lifestyle where Jill posts recipes, nutrition research findings, a blog and LDN Lifestyle and Nutrition Q & A’s.  

Any questions or comments you may have, please contact us at ldnresearchtrust.org. 

Jill Brook, MA, Healthy Eating, LDN Radio Show (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Jill Brook, MA shares her Low Dose Naltrexone (LDN) experience on the LDN Radio Show with Linda Elsegood.

Jill Brook works as a Nutrition Consultant to the Dysautonomia Clinic, serving on the Boards of patient advocacy groups, and assisting several POTS specialists with their research. Most recently she was the subject of a published case study describing her unusually successful recovery.

Jill Brook suffered for over 17 years with dysautonomia and was on her “last legs” before discovering Low Dose Naltrexone (LDN). She shares her story, describing her worsening symptoms and various treatments on her road back to health. 

As a dietitian she also shares with us, how diet affects the immune system and overall health. This interview will benefit anyone with an illness caused by a low autoimmune system, and autonomic dysfunction.

This is a summary of Jill Brook’s interview. Please listen to the rest of Jill’s story by clicking on the video above.

Jessica - US: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Jessica is from the United States and since 1996 has had Multiple Sclerosis (MS). During this time, she had Optic Neuritis where she encountered balance issues, bumping into walls and tripping. In the month of November, she had her first MRI which confirmed she had multiple sclerosis (MS). Jessica was suggested that she take medication, but declined as she wanted to handle it herself. This is where she decided to try acupuncture, homeopathy, chiropractic, body work methods and more. 

Low Dose Naltrexone (LDN) was the first medication she agreed to; before trying these medications, her symptoms were: double optic neuritis in both eyes, loss of hearing in the right ear, numbing of hands, itchy face, partial sleep. Furthermore, this wasn’t the end, her right side of her face went palsy, as well as vertigo which caused bed ridden. Although these symptoms were very on and off. 

Jessica heard about LDN through alternative therapies in New York. Her primary care physician would not prescribe it to her, which she then switched doctor who heard about amazing results the LDN medication had given other patients.

Luckily, she was given the approval of the Low Dose Naltrexone medication, the effects were vivid dreams for roughly 2-3 days. But symptoms were also abated due to Jessica being pregnant with her second child. 

Now, Jessica has been on LDN medication for three years, there has been no lesions, no exacerbations, and feels more positive that her disease is now stabilised.

Summary of Jessica’s interview, please listen to the video for the full story.

Any questions or comments you may have, please Contact Us.  I look forward to hearing from you

Key words: LDN, Low Dose Naltrexone, Multiple Sclerosis, MS, Acupuncture, homeopathy, chiropractic, double optic neuritis, hearing,  numbing, sleep, symptoms, medication

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Jenny - US: Ulcerative Colitis, Hashimoto’s, Autoimmune Issues, 01 Nov 2017 (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Jenny from the US takes LDN for Ulcerative Colitis, Hashimoto's, Grave Disease and other neurological autoimmune issues. Jenny’s first symptom was ocular migraines about three years ago. Allergies increased after that, fatigue and mood swings. Jenny had heard of Low Dose Naltrexone early on in her illness as she had researched.  The first thing she tried was the Paleo diet which helped but she then saw a holistic doctor who diagnosed Hashimoto’s and Graves Disease.  Her doctor suggested Low Dose Naltrexone (LDN).  Jenny has been on LDN for 10 months and says it’s been spectacular - her food sensitivities resolved, energy levels improved, mood improved and her fatigue lessened.  Jenny now feels almost back to normal and would recommend that others try it for any autoimmune disease.

Jennifer from the United States shares her experience using Low Dose Naltrexone (LDN) to treat Hashimoto’s, Ankylosing Spondylitis, and Lyme disease.

She first noticed symptoms in January of 1999. She thought she had the flu, but was sick for a week with a high fever and migraines. After that, she didn’t feel as if she’d recovered. When she went back to the doctor, the only thing that came up on testing was kidney failure. At that point, she had to stop playing hockey and drop out of night school for college, and it was difficult to work her full-time job. She had problems with fatigue and focusing. Over 14 years she saw over 40 different doctors and had over 60 tests done, but the doctors never found much that they could diagnose. However, her health continued to decline. Doctors ran tests for Lyme disease, connective tissue disease, other types of autoimmune disease, and Marfan syndrome, but they couldn’t come up with a good explanation for her symptoms. Eventually Jennifer developed Hashimoto’s and Ankylosing Spondylitis. Her doctors also found she had two mutations of the MTHFR gene. 

In 2012, she went to the Cleveland Clinic and saw a neurologist who recognized her autoimmune conditions. He recommended a gluten-free diet, which was helpful in reducing her rheumatoid factor. At that time, she still suffered from fatigue and chronic urethritis, which was very painful. Finally she saw a urologist who recognized she had an infection in the walls of the urethra, and put her on antibiotics. However, the antibiotics weren’t very helpful in relieving her symptoms.

By 2013, her symptoms would flare and subside, but she began having IBS issues as well as increasing cognitive problems and migraines. She couldn’t walk right, she couldn’t talk right, and her writing was illegible. She felt that she had a lot of symptoms of Lyme disease, but the infectious disease doctor said she didn’t have it. She then went to a lung doctor who tested her again. This time her tests were negative for IgM, positive for IgG, and positive for bartonella, anaplasma, and mycoplasma. He started her on low dose naltrexone in October of 2013. They started at 3 or 4.5 mg, which was too high of a dose, so they went down to 0.5 mg, which was a better dose. She learned that she reacted badly to the higher dose of LDN because of her chronic Lyme disease, parasites, and systemic candida. Within a year, she responded to the LDN and her doctor was able to gradually increase her dosage to 3 mgs as her health issues resolved.  

Just before starting LDN, Jennifer would rate her quality of life at about a 1 on a scale of 1-10, due to constant pain, fatigue, and sickness. 

In terms of side effects of LDN, Jennifer had vivid dreams for the first week, but after that, she’s had no ill effect from the LDN. She does find that it works best for her to take LDN in the early evening, around 6 or 7 pm.

Jennifer noted positive effects from the LDN in the first week of taking it. She was able to lower her blood pressure medicine, and her IBS issues resolved. She also was able to get off all of her allergy medicine, including Singulair and two inhalers. Initially, her pain levels increased, but after the first two weeks, the pain went away. The LDN has allowed Jennifer to get off of about 90% other medications, and she’s lost over 30 pounds. 

At this point, her quality of life is significantly improved, though she’s still dealing with the Lyme disease and coinfections that had gone undiagnosed and untreated for over 14 years, so on a scale of 1-10, she’d rate her quality of life at about a 5. She would definitely recommend that patients with her conditions give LDN a try--she tried LDN instead of going on the biologic Remicade, and she’s glad she did. The LDN regulated her immune system rather than suppressing it. It might seem to make some symptoms worse at first, but in her experience the LDN just brought forward underlying health issues that needed to be addressed. As those issues are addressed, her quality of life continues to improve. 

This has been a summary of Jennifer’s story. Please listen to the interview for the full story. 

Jennifer - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Jennifer from Canada shares her Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) Story on the LDN Radio Show with Linda Elsegood

Jennifer was officially diagnosed in 2000 with Multiple Sclerosis (MS), but had suffered from a  litany of symptoms prior to her diagnosis. These included blurred vision, which she noticed when mowing the lawn one day and she couldn't see the bottom of the garden and bladder problems. Jennifer had also been suffering from fatigue since she was a child.

Jennifer had also tried multiple other medications that had little to no benefit on improving her health before she found Low Dose Naltrexone (LDN). 

“I noticed improvements in my health almost immediately. The muscle spasms in my legs stopped allowing me to walk again properly, and also the spasms in my bladder which were causing me to use the bathroom so frequently and have restless nights.

I would like to say that if you’re thinking about trying LDN, then give it a shot. It’s really not that expensive. Just start low and go slow, work your way into it.”

This is a summary of Jennifer’s interview. Please listen to the rest of Jennifer’s story by clicking on the video above.

Jennie - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Jennie from England shares their Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) Story on the LDN Radio Show with Linda Elsegood.

Jennie was diagnosed with Multiple Sclerosis (MS) at the age of twenty. She began with simple flu-like symptoms at first, but then began to notice that her balance was off; she couldn’t walk far without stumbling. 

Within five months of discovering and starting on Low Dose Naltrexone (LDN), Jennie noticed considerable improvements in her health almost instantly: she could stand up properly, she could walk further distances and her bladder was under greater control.

“I also no longer need my afternoon naps, which was another bonus. Overall, my quality of life has just increased tenfold.

I understand that LDN can affect everyone differently but, certainly from my experience, it can dramatically improve your health and enjoyment of life.”

This is a summary of Jennie’s interview. Please listen to the rest of Jennie’s story by clicking on the video above.

Jeni - England: Psoriasis (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Jeni:  Im here to talk about psoriasis and, um, my experience of using LDN with psoriasis and, and hopefully it'll help other people with psoriasis just to give them another option of treatment. Since I was, I had quite good success with it. Say, Just bit about the psoriasis. It affects approximately 2% of the UK population in varying degrees.

And it's a chronic skin condition, which causes basically red scaly practice to appear. And it's quite uncomfortable. It can be if it's all over, which is what I had, um, it's related to the immune system, but I think it's not knowing exactly, um, how. How it's related, or any say current treatments involve steroid creams and versed alignments moisturize.

Um, there are some immune system drugs out there at the moment. I think they just, they were long term. So, and they have quite a lot of side effects. So I've never been keen to try layers, or any of the confess, the physical effects that easy to see. But if it's. Quite, um, considerable coverage of psoriasis, then it can have other emotional and personal effects to you.

So let's start skiing is Rossi's when I was about 21, 22, funnily enough, when I was at Penn state university studying over there. So it wasn't a where they're doing the research at the time, unfortunately. Um, Um, stopped is just a small patch, my neck, and then gradually over the next couple of months, spread everywhere, basically arms, legs, body, face, scalp, every way you can think of really so pretty much covered, um, not very comfortable condition to have really, but I tried to not let it face anything all day, really day today, but for some people, it can affect the DC living.

Is that you tried various creams or ointments steroid creams? UVB light which is, which was quite successful, but don't want to repeat it too many times anything and different diets, gluten-free diets. Um, do you sing herbal remedies, acupuncture? Pretty much everything you could think of, but nothing really.

Whereas degree affects, obviously you didn't do some treatments were better than others, and everything varies for different people. Some things were better. Okay. So I was looking for something else to try basically. So after doing a lot of trailing around and the internet, I discovered LDN about a year ago and decided to give it a try. So I've seen his name. Mmm. The side effects as far as I can see. And you may say I visited the essential health clinic in Glasgow and started off taking malaria steaks. Congratulated next few months increase the dosage, um, by about, after about three months.

And I was kind of thinking, Oh, was not really working, couldn't see any effect really, and they're a great improvement, but if it was continued taking it off, six has no side effects I can see.

 so I've spent after about five, six months, my skin was clearing and all the red patches getting less red, basically less itchy and uncomfortable.

And it was very beneficial saying some. Pictures the evidence and all the leftovers, the exam on her face had it all in my face and both sides, forehead, um, psoriasis can vary. So in the song, they would get better sometimes because with the sunlight we can improve. But on the right-hand side, it's been a bit of better, better foods.

Actually, that was probably my camera phone, and neither was decent: because he wants to see. Completely clear to my face. Anyway, that's just the more back before on the left-hand side. It was pretty much covered. Um, and on the right-hand side, a few months later,

it's not great for our team, but I can kind of see Jose on the left-hand side is covered in red patches and, um, is actually, I think that was bout after two or three months taking it. So that's not the worst it's been. But I'm like no legs now. Completely clear. Same. So luxury to have skin pain, to be honest, search thing in conclusion, LDN definitely works for me.

I've actually, um, being offered every few months now. Cause I'm expecting a baby in February and it didn't kind of mix with morning sickness at the time, but it seems to have prolonged effects. And then my skin hasn't come back very, very much over the last four or five months stayed pretty constant,  which is good.

it hasn't. Suddenly the whole come back, which is great. And hopefully, it can help a lot of people with psoriasis and has actually talked to my GP yesterday for something else. And she mentioned she'd be prescribing LDN more, but didn't realize it more for psoriasis. So hopefully. I can educate her, get her to try on some other people.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. We really appreciated your company. Until next time, stay safe and keep well.

Jeff - US: Lyme, Parkinson's Disease (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Jeff from the United States who takes LDN for Lyme disease and Parkinson's Disease. 

Jeff first notice something was wrong in 1980, after a kayak trip, he woke up a few days later with a serious or urinary tract infection along with sensitivity to light and sound and very extreme fatigue.

Then 10, 15 years later the fatigue came back and he was diagnosed at that time with Parkinson's disease, which affects his speech. mid primarily. He was a photographer since retiring from the fire service. He then wasn't able to continue as the camera would shake and walking was an issue.

To listen to the full story click the video link.

Any questions or comments you may have, please contact us. I look forward to hearing from you. Thank you for joining us today. 

Jeanette - England: Multiple Sclerosis (MS) (LDN, low dose naltrexone) from LDN Research Trust on Vimeo.

Jeanette from England shares their Multiple Sclerosis (MS) and Low Dose Naltrexone (LDN) story on the LDN Radio Show with Linda Elsegood.

Jeanette’s first suspicion that something was wrong with her health was in 1998 when she woke up one morning and could barely see nor do anything other than go to a local optician. She was not officially diagnosed with Multiple Sclerosis (MS) for another 2 years.

After the initial relief of recognising the issue, Jeanette’s problems grew as fatigue began to settle in. She had a large relapse following the death of her mother, leading to great stress. However, finding Low Dose Naltrexone (LDN) helped her to recover and boost her health.

“My fatigue is much better, I have much more energy and can stay up later which is nice. I can spend more time with my husband and family, it’s all so great.”

This is a summary of Jeanette’s interview. Please listen to the rest of Jeanette’s story by clicking on the video above.